Discussions By Condition: Muscle conditions

Pain became too much, feel like crying...

Posted In: Muscle conditions 4 Replies
  • Posted By: shadeshadow
  • November 7, 2008
  • 08:32 PM


I have come here due to not being able to find any help or information about the type of pain I go through, so I am hoping someone can help at least point me in the right direction.

Recently I was diagnosed with Inflammatory Bowel Disease due to many tests, before this I was in pain across my shoulderblades and down my back, at this time it was not severe but barely tolarable. It has gotten worse, I was taking Co-Cordamel but found it gives intergestion and had to stop taking them for they were aggrivating my other condition. But the fact was they were not even touching the pain at all.

Now the pain has gotten worse and I am at a loss with where to turn, the pain has now spread across the whole of my back, up my neck and partway to the front of my neck, down my arms and into my hands.

My skin has become that sensitive to touch it is like something is hurting me 20 times over with the slightest brush against my nerve endings. Movement is ***l, even shifting slightly can cause my body to flare up in agony and I am getting to the point of crying.

Heat does help but only for a short time, I am hogging a hot water bottle and using it to try to help my back at least some.

I also have slight shaking of the body, it is all over and I cannot stop.

I am very lost, having only been diagnosed with one thing i don't want another but I also hope to find out what it could be. The pain itself in my back is a buring type pain, in my wrists and hands a throbbing type of pain if that helps.

I am a 20 year old Female if this helps.

It has not spread down my legs yet thankfully. But I am wary of that happening.

Hoping for some help.

Shade Shadow

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4 Replies:

  • Though I do not remember what the diagnosis was, I do remember watching an episode of Discovery Channel's Mystery Diagnosis where a young girl had almost the exact symptoms you described. I tried to look for you on the internet, but I can't seem to find it! If I do, I promise to contact you ASAP. At least now you know that you're not alone with your symptoms. Best of luck!
    dejpau3825 6 Replies
    • December 13, 2008
    • 07:56 AM
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  • Thankyou for looking, i myself are looking around; as well as getting seen to by a consultant and my GP. If you don find it in the future i would be glad to see what it is ^_^
    shadeshadow 2 Replies
    • December 13, 2008
    • 04:09 PM
    • 0
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  • Get an MRI, You might have a tumour in spinal cord, upper region.I speak from personal experience. good luck,
    Anonymous 42789 Replies
    • January 1, 2009
    • 09:43 AM
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  • i had pain as you have described....started in my upper back - shoulder-blade area,,,,then up into the neck and down the back,,,,then wrapped around the front. Then,,,on into my arms,,,,then hands ..... and on and on. It took some four years for the pain to creep into those new areas. extreme pain. I spent four and a half years down in bed down. then my skin started hurting. then shooting pains in my skin....scalding in my skin.... Many doctors and specialists and dollars and tears later, they diagnosed it as fibromyalgia with chronic myofacia pain. During that 4 plus years I also developed IBD --- the kind where you lack control,,,,, and get abt eight seconds warning time,,,,!! So you cant leave the house. *** Careful, dear, deep depression lies just around that corner. I finally had a doctor say/ask, "are you depressed" ... and she said, "of course you are. ive never met a patient with chronic pain who wasnt!!" She prescribed Cymbalta (an antidepressant) because it has the wonderful side effect (for abt 50 -60% of patients) of relieving peripheral pain. So all the pain in my hands, arms, shoulders, stopped with that prescription. Its a very very spendy medication,,,at least for us here in the U.S. My understanding is there were some older (less $$)antidepressants that also had a side effect of eliminating pain... a physician should know which ones...amyltriptolin (mis-spelled) I believe. But my shoulders, neck and back were still in miserable pain. Then I heard of the Soloflex Whole-Body-Vibration-board, (abt 350$, try for 60 days, money back guarantee), and I researched and learned that for many people it relieved pain....among other great effects. I was lucky,,,,,I stand or lie on it for 15 minutes every day and all the pain in my back and neck is gone. GONE. It took about a week... and I have to do it daily.....!!! Chronic pain is awful. you lose friends...your job.... and on and on. I do know that the longer I was down with the pain, the weaker my body got, and I hurt so much I could not stand it. Standing hurt, and sitting was worse,,,most of the time. I wish you well.... its a hard, long road getting the doctors to listen and help you when they cant put a specific label on you. Mostly its because without the label, there is no prescription... as per insurance rules. I'll say a little get well prayer for you.... loulou
    loulou 3 Replies
    • February 15, 2009
    • 01:09 PM
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