Discussions By Condition: Muscle conditions

Need Help! Elevated CPK in 3 year old

Posted In: Muscle conditions 1 Replies
  • Posted By: klocke
  • January 11, 2009
  • 04:17 AM

Does anyone know how struggling while having blood drawn will effect CPK levels? How long does it take for them to rise? My son is 3 and has had repeated (5 tests) CPK levels that come back between 1,100 ( most recent) - 2,380 over a 1 year period. I just switched dr. and we are having a MRI preformed soon but I’m not sure how accurate the lab results are. My son is Autistic and fights terribly while having blood drawn. There have been times it took 4 adults to hold him still. Can this be causing a false positive? I asked my dr and he said that he had never seen that happen before but that it was technically possible. He didn’t feel it would cause it to rise that much. Any info. on this? I hate to have to subject my son to a muscle biopsy (which my dr wants to do after the MRI) if it is a false positive. He is a very small framed child and has some pigeon toeing but other that that no signs of muscle weakness.He doesn't complain of any pain or discomfort either. He finds drs. and medical procedures to be very traumatic so I try to limit any unnecessary tests. I suggested to the Neurologist having my son be given some kind of sedative and then having blood drawn (after this last high result 12/10/08) but dr. says that isn't necessary that we need to go ahead with the MRI and then possibly muscle biopsy. Just trying to do the right thing here. Hopefully someone will have some one will have some info on this.

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  • Does anyone know how struggling while having blood drawn will effect CPK levels? How long does it take for them to rise? My son is 3 and has had repeated (5 tests) CPK levels that come back between 1,100 ( most recent) - 2,380 over a 1 year period. I just switched dr. and we are having a MRI preformed soon but I’m not sure how accurate the lab results are. My son is Autistic and fights terribly while having blood drawn. There have been times it took 4 adults to hold him still. Can this be causing a false positive? I asked my dr and he said that he had never seen that happen before but that it was technically possible. He didn’t feel it would cause it to rise that much. Any info. on this? I hate to have to subject my son to a muscle biopsy (which my dr wants to do after the MRI) if it is a false positive. He is a very small framed child and has some pigeon toeing but other that that no signs of muscle weakness.He doesn't complain of any pain or discomfort either. He finds drs. and medical procedures to be very traumatic so I try to limit any unnecessary tests. I suggested to the Neurologist having my son be given some kind of sedative and then having blood drawn (after this last high result 12/10/08) but dr. says that isn't necessary that we need to go ahead with the MRI and then possibly muscle biopsy. Just trying to do the right thing here. Hopefully someone will have some one will have some info on this.I don't know if this helps you any but I also have elevated CPK levels mine was 17,000 last January and they are still high and I am 35. I also have had a muscle biopsy in the ICU unit and they found that I have Rhabdomylosis. Mine was from taking a drug. It was many of the side effects that it has. I do know that it can cause a false negative on certain tests you may have done for example, a pregnancy test and so forth. I don't know much about this I am learning as I go along. But do what is best for your child, this does cause kidney failure when it goes untreated that is where I am at now. Never hurts to get a second opinion.
    Anonymous 42789 Replies
    • December 31, 2009
    • 03:09 AM
    • 0
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