I am new to this forum and hope that other members may be able to give me some ideas or opinions on my condition that is causing me a fair bit of stress at the moment. Rather than give a long story of my situation, I'll put it in points below:
I am a 26 y.o. male
My trapezius muscle on my right side has really wasted to almost nothing and my shoulder is drooping. Currently I cannot raise my right arm above my shoulder. When I do this, there is no pain, but it just feels that the deltoid (shoulder muscle) is doing all the work in lifting the arm
Over the last 3-5 years (as far back as i can remember) my shoulder blades have been sticking out (scapular winging)
On the request of a neurologist, I have done an MRI scan and some blood tests on CK levels. The MRI showed myopathy of the muscles and some high atrophy or the right trapezius. The CK levels were fairly high at 850.
My neurologist did nerve conduction test around my arm and found that everything was fine there. He reckons that these results point to Facioscapulohumeral muscular dystrophy, but is trying to get a timeslot for a genetic test.
The symptons point to FSH muscular dystrophy, and if that is the case then I will find a way to deal with what has hit me.
But FSH is in most cases hereditary, and I cannot think of one extended family member who has had it. Also, I am seeing a massage therapist that specialises in muscle releasing, and he reckons that my muscles are so tight that they have rolled like a pancake due to years of stress and anxiety. He doesn't think it is dystrophy.
I am a person that suffers from depression and anxiety, and have a family background of thyroid problems (my mum had thyroid cancer), and my blood test showed my thyroid to be on the hyper side, but within the ok range. I asked my neurologist about the possibility of Chronic Thyrotoxic Myopathy and he told me that if that was the case then my blood test results would not be in the ok range.
So as you can see, I am trying to look at all possible angles on this condition, and hope that someone out there may have an idea of what desease or cause this could be other than FSH muscular dystrophy? Having and extremely weak and wasted right upper back is causing me a lot of pain around the neck area and along with the stress of not knowing what the future holds has made me seek alternatives such as natural health. Does anyone know if natural therapy can rejuvinate wasted muscle?
If anyone has some advice or similar experiences with my situation or ideas on what my condition could be I'd really appreciate it.
Thanks in advance