Discussions By Condition: Muscle conditions

Muscle wasting of shoulder/upper back and drooping shoulder

Posted In: Muscle conditions 8 Replies
  • Posted By: Anonymous
  • April 5, 2009
  • 04:30 AM

Hi All,

I am new to this forum and hope that other members may be able to give me some ideas or opinions on my condition that is causing me a fair bit of stress at the moment. Rather than give a long story of my situation, I'll put it in points below:



I am a 26 y.o. male
My trapezius muscle on my right side has really wasted to almost nothing and my shoulder is drooping. Currently I cannot raise my right arm above my shoulder. When I do this, there is no pain, but it just feels that the deltoid (shoulder muscle) is doing all the work in lifting the arm
Over the last 3-5 years (as far back as i can remember) my shoulder blades have been sticking out (scapular winging)
On the request of a neurologist, I have done an MRI scan and some blood tests on CK levels. The MRI showed myopathy of the muscles and some high atrophy or the right trapezius. The CK levels were fairly high at 850.
My neurologist did nerve conduction test around my arm and found that everything was fine there. He reckons that these results point to Facioscapulohumeral muscular dystrophy, but is trying to get a timeslot for a genetic test.


The symptons point to FSH muscular dystrophy, and if that is the case then I will find a way to deal with what has hit me.

But FSH is in most cases hereditary, and I cannot think of one extended family member who has had it. Also, I am seeing a massage therapist that specialises in muscle releasing, and he reckons that my muscles are so tight that they have rolled like a pancake due to years of stress and anxiety. He doesn't think it is dystrophy.

I am a person that suffers from depression and anxiety, and have a family background of thyroid problems (my mum had thyroid cancer), and my blood test showed my thyroid to be on the hyper side, but within the ok range. I asked my neurologist about the possibility of Chronic Thyrotoxic Myopathy and he told me that if that was the case then my blood test results would not be in the ok range.

So as you can see, I am trying to look at all possible angles on this condition, and hope that someone out there may have an idea of what desease or cause this could be other than FSH muscular dystrophy? Having and extremely weak and wasted right upper back is causing me a lot of pain around the neck area and along with the stress of not knowing what the future holds has made me seek alternatives such as natural health. Does anyone know if natural therapy can rejuvinate wasted muscle?

If anyone has some advice or similar experiences with my situation or ideas on what my condition could be I'd really appreciate it.

Thanks in advance

Reply Flag this Discussion

8 Replies:

  • Hi All, I am new to this forum and hope that other members may be able to give me some ideas or opinions on my condition that is causing me a fair bit of stress at the moment. Rather than give a long story of my situation, I'll put it in points below:I am a 26 y.o. maleMy trapezius muscle on my right side has really wasted to almost nothing and my shoulder is drooping. Currently I cannot raise my right arm above my shoulder. When I do this, there is no pain, but it just feels that the deltoid (shoulder muscle) is doing all the work in lifting the armOver the last 3-5 years (as far back as i can remember) my shoulder blades have been sticking out (scapular winging)On the request of a neurologist, I have done an MRI scan and some blood tests on CK levels. The MRI showed myopathy of the muscles and some high atrophy or the right trapezius. The CK levels were fairly high at 850.My neurologist did nerve conduction test around my arm and found that everything was fine there. He reckons that these results point to Facioscapulohumeral muscular dystrophy, but is trying to get a timeslot for a genetic test.The symptons point to FSH muscular dystrophy, and if that is the case then I will find a way to deal with what has hit me. But FSH is in most cases hereditary, and I cannot think of one extended family member who has had it. Also, I am seeing a massage therapist that specialises in muscle releasing, and he reckons that my muscles are so tight that they have rolled like a pancake due to years of stress and anxiety. He doesn't think it is dystrophy.I am a person that suffers from depression and anxiety, and have a family background of thyroid problems (my mum had thyroid cancer), and my blood test showed my thyroid to be on the hyper side, but within the ok range. I asked my neurologist about the possibility of Chronic Thyrotoxic Myopathy and he told me that if that was the case then my blood test results would not be in the ok range.So as you can see, I am trying to look at all possible angles on this condition, and hope that someone out there may have an idea of what desease or cause this could be other than FSH muscular dystrophy? Having and extremely weak and wasted right upper back is causing me a lot of pain around the neck area and along with the stress of not knowing what the future holds has made me seek alternatives such as natural health. Does anyone know if natural therapy can rejuvinate wasted muscle?If anyone has some advice or similar experiences with my situation or ideas on what my condition could be I'd really appreciate it. Thanks in advanceHi there.I know its been a long time since this post but i found it while searching for a similar problem I have currently. If you recieve this message please let me know as I would be interested to discuss what/if anything has helped you and I can also comment on my similar experiences. many thanks. Dave
    Anonymous 42789 Replies Flag this Response
  • Hi thereI've had problems with my shoulders and found that it was all linked to tension in my head and neck.I've come to a pretty good place with this now and am willing to do what I can to help.Frank
    frankmullen 1 Replies Flag this Response
  • Hi thereI've had problems with my shoulders and found that it was all linked to tension in my head and neck.I've come to a pretty good place with this now and am willing to do what I can to help.Frankiv also had this problem for 2 years now, no doctors knows my problem says everything looks fine when really i am in pain with it & gets shooting pains down my left elbow! im a thai boxer & not been able to go cause this problem, my shoulder clicks really badly my pyshio said my neck was causing the problems & my posture but dont know how to sort this
    Anonymous 42789 Replies
    • November 17, 2010
    • 04:54 PM
    • 0
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  • Hi, I am a physical therapist. It does sound like your symptoms could be related to the neck/cervical spine. I would hope that your doctor would consider evaluation of the cervical spine. ~JTrempe PT, ATChttp://www.joint-pain-solutions.com
    JTrempe 101 Replies
    • November 21, 2010
    • 04:54 AM
    • 0
    Flag this Response
  • Hello - check out Brachial Plexus Injury - also a website that may help is sports medicine. I've had same symptoms and mine was from a auto accident - hit broadside and sprained my neck, broke ribs, and my shoulder was weak, and now almost 2 yrs. it is drooping - again. check out injury stated above. poor posture doesn't sound logical. Check out; brachial plexus injury - traumatic adult iv also had this problem for 2 years now, no doctors knows my problem says everything looks fine when really i am in pain with it & gets shooting pains down my left elbow! im a thai boxer & not been able to go cause this problem, my shoulder clicks really badly my pyshio said my neck was causing the problems & my posture but dont know how to sort this
    Anonymous 42789 Replies Flag this Response
  • Hi All, I am new to this forum and hope that other members may be able to give me some ideas or opinions on my condition that is causing me a fair bit of stress at the moment. Rather than give a long story of my situation, I'll put it in points below:I am a 26 y.o. maleMy trapezius muscle on my right side has really wasted to almost nothing and my shoulder is drooping. Currently I cannot raise my right arm above my shoulder. When I do this, there is no pain, but it just feels that the deltoid (shoulder muscle) is doing all the work in lifting the armOver the last 3-5 years (as far back as i can remember) my shoulder blades have been sticking out (scapular winging)On the request of a neurologist, I have done an MRI scan and some blood tests on CK levels. The MRI showed myopathy of the muscles and some high atrophy or the right trapezius. The CK levels were fairly high at 850.My neurologist did nerve conduction test around my arm and found that everything was fine there. He reckons that these results point to Facioscapulohumeral muscular dystrophy, but is trying to get a timeslot for a genetic test.The symptons point to FSH muscular dystrophy, and if that is the case then I will find a way to deal with what has hit me. But FSH is in most cases hereditary, and I cannot think of one extended family member who has had it. Also, I am seeing a massage therapist that specialises in muscle releasing, and he reckons that my muscles are so tight that they have rolled like a pancake due to years of stress and anxiety. He doesn't think it is dystrophy.I am a person that suffers from depression and anxiety, and have a family background of thyroid problems (my mum had thyroid cancer), and my blood test showed my thyroid to be on the hyper side, but within the ok range. I asked my neurologist about the possibility of Chronic Thyrotoxic Myopathy and he told me that if that was the case then my blood test results would not be in the ok range.So as you can see, I am trying to look at all possible angles on this condition, and hope that someone out there may have an idea of what desease or cause this could be other than FSH muscular dystrophy? Having and extremely weak and wasted right upper back is causing me a lot of pain around the neck area and along with the stress of not knowing what the future holds has made me seek alternatives such as natural health. Does anyone know if natural therapy can rejuvinate wasted muscle?If anyone has some advice or similar experiences with my situation or ideas on what my condition could be I'd really appreciate it. Thanks in advanceTo me it seems like you have very weak back muscles and trap muscles. That's why your shoulders are sticking out at front, and you have shoulder blades sticking out from the back.I have similar condition with the shoulders, but much lighter in condition..After working out those muscles at the gym, my shoulders are in much better condition and the back muscles can now support the shoulder to a good extent.About you losing muscles.. I believe if you don't use muscles, you lose them. and since your shoulders are not in the correct form, your trap muscles are not being utilized at all!!!! that's true with your lat muscles too.I recently realized that myself. I never developed good lat muscles after working out at the gym for many years. Then recently realized that if I push my shoulder DOWN and to the back whenever I do lat exercises I start to utilized those muscles! Before then I wouldn't really feel the lat muscles being used at all. It used to feel I was only using my arms to do lat exercises, not feel totally different. And the reason was my shoulder was not transferring the work to other muscles; being trap and lat muscles. instead the work was only being done by my hands.So to seems like you are not using your trap muscles in your day to day activity, and as a result of them not being utilized they are shrinking! If you are on a wheel chair for too long you'd lose your leg muscles too in a very short time.Hope this helps.
    Anonymous 42789 Replies Flag this Response
  • Hi All, I am new to this forum and hope that other members may be able to give me some ideas or opinions on my condition that is causing me a fair bit of stress at the moment. Rather than give a long story of my situation, I'll put it in points below:I am a 26 y.o. maleMy trapezius muscle on my right side has really wasted to almost nothing and my shoulder is drooping. Currently I cannot raise my right arm above my shoulder. When I do this, there is no pain, but it just feels that the deltoid (shoulder muscle) is doing all the work in lifting the armOver the last 3-5 years (as far back as i can remember) my shoulder blades have been sticking out (scapular winging)On the request of a neurologist, I have done an MRI scan and some blood tests on CK levels. The MRI showed myopathy of the muscles and some high atrophy or the right trapezius. The CK levels were fairly high at 850.My neurologist did nerve conduction test around my arm and found that everything was fine there. He reckons that these results point to Facioscapulohumeral muscular dystrophy, but is trying to get a timeslot for a genetic test.The symptons point to FSH muscular dystrophy, and if that is the case then I will find a way to deal with what has hit me. But FSH is in most cases hereditary, and I cannot think of one extended family member who has had it. Also, I am seeing a massage therapist that specialises in muscle releasing, and he reckons that my muscles are so tight that they have rolled like a pancake due to years of stress and anxiety. He doesn't think it is dystrophy.I am a person that suffers from depression and anxiety, and have a family background of thyroid problems (my mum had thyroid cancer), and my blood test showed my thyroid to be on the hyper side, but within the ok range. I asked my neurologist about the possibility of Chronic Thyrotoxic Myopathy and he told me that if that was the case then my blood test results would not be in the ok range.So as you can see, I am trying to look at all possible angles on this condition, and hope that someone out there may have an idea of what desease or cause this could be other than FSH muscular dystrophy? Having and extremely weak and wasted right upper back is causing me a lot of pain around the neck area and along with the stress of not knowing what the future holds has made me seek alternatives such as natural health. Does anyone know if natural therapy can rejuvinate wasted muscle?If anyone has some advice or similar experiences with my situation or ideas on what my condition could be I'd really appreciate it. Thanks in advanceTO me it seems like you have very weak back muscles and trap muscles. That's why your shoulders are sticking out at front, and you have shoulder blades sticking out from the back.I have similar condition with the shoulders, but much lighter in condition..After working out those muscles at the gym, my shoulders are in much better condition and the back muscles can now support the shoulder to a good extent.About you losing muscles.. I believe if you don't use muscles, you lose them. and since your shoulders are not in the correct form, your trap muscles are not being utilized at all!!!! that's true with your lat muscles too.I recently realized that myself. I never developed good lat muscles after working out at the gym for many years. Then recently realized that if I push my shoulder DOWN and to the back whenever I do lat exercises I start to utilized those muscles! Before then I wouldn't really feel the lat muscles being used at all. It used to feel I was only using my arms to do lat exercises, not feel totally different. And the reason was my shoulder was not transferring the work to other muscles; being trap and lat muscles. instead the work was only being done by my hands.So to seems like you are not using your trap muscles in your day to day activity, and as a result of them not being utilized they are shrinking! If you are on a wheel chair for too long you'd lose your leg muscles too in a very short time.Hope this helps.
    kamy2809 1 Replies Flag this Response
  • It sounds like you have thoracic outlet syndrome (brachial plexus injury), causing scapular winging among other things. Go to atosa.org to read about this condition. Hi All, I am new to this forum and hope that other members may be able to give me some ideas or opinions on my condition that is causing me a fair bit of stress at the moment. Rather than give a long story of my situation, I'll put it in points below:I am a 26 y.o. maleMy trapezius muscle on my right side has really wasted to almost nothing and my shoulder is drooping. Currently I cannot raise my right arm above my shoulder. When I do this, there is no pain, but it just feels that the deltoid (shoulder muscle) is doing all the work in lifting the armOver the last 3-5 years (as far back as i can remember) my shoulder blades have been sticking out (scapular winging)On the request of a neurologist, I have done an MRI scan and some blood tests on CK levels. The MRI showed myopathy of the muscles and some high atrophy or the right trapezius. The CK levels were fairly high at 850.My neurologist did nerve conduction test around my arm and found that everything was fine there. He reckons that these results point to Facioscapulohumeral muscular dystrophy, but is trying to get a timeslot for a genetic test.The symptons point to FSH muscular dystrophy, and if that is the case then I will find a way to deal with what has hit me. But FSH is in most cases hereditary, and I cannot think of one extended family member who has had it. Also, I am seeing a massage therapist that specialises in muscle releasing, and he reckons that my muscles are so tight that they have rolled like a pancake due to years of stress and anxiety. He doesn't think it is dystrophy.I am a person that suffers from depression and anxiety, and have a family background of thyroid problems (my mum had thyroid cancer), and my blood test showed my thyroid to be on the hyper side, but within the ok range. I asked my neurologist about the possibility of Chronic Thyrotoxic Myopathy and he told me that if that was the case then my blood test results would not be in the ok range.So as you can see, I am trying to look at all possible angles on this condition, and hope that someone out there may have an idea of what desease or cause this could be other than FSH muscular dystrophy? Having and extremely weak and wasted right upper back is causing me a lot of pain around the neck area and along with the stress of not knowing what the future holds has made me seek alternatives such as natural health. Does anyone know if natural therapy can rejuvinate wasted muscle?If anyone has some advice or similar experiences with my situation or ideas on what my condition could be I'd really appreciate it. Thanks in advance
    Anonymous 42789 Replies Flag this Response
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