Discussions By Condition: Muscle conditions

Mount and Reback Syndrome

Posted In: Muscle conditions 0 Replies
  • Posted By: Anonymous
  • February 26, 2014
  • 06:31 PM

I have Mount and Reback syndrome. I was given this diagnoses back in the 70's when all other epilepsy
medications did not work. Now at 63 years of age the symptoms had lessen however, under stress I have severe attacks. Because of a recent nose surgery had complications and couldn't breathe for about 2 months. I went to several doctors and referred to a heart specialist because of the pressure in my chest. After my stress test- which I aced- my face and hands- arms- thighs went numb= then the attack. It starts in the stomach- or so it seems. My heart doctor saw this and called am ambulance. Twice that day in the hospital my hands became numb and deformed and they gave me some anti anxiety drip and I was ok
And when I was hit by a drunk driver back in 2012 and the ambulance emts strapped me down I had another attack.. they were confused and shocked - I told them during the attack that it will go away in a few minutes. I was told back in the 70's that I had abnormal electrical impulses from the spinal cord. When I was younger I used to get a warning- a cold chill up my spine. I have been on Klonopin for the last 30 years and recently put on zolaft for the panic attacks since my recent surgery which caused problems . My ex husband - who is also Ukrainian- had several heart surgeries and now at age 67 he is experiencing what I have been going through with the Mount Reback syndrome. Not an easy disease because you don't know when its going to hit and have uncontrollable muscle movements- arms flying in the air and head snapping to the side- along sometimes with a grunt .
I am grateful you have this discussion page for if my symptoms can help someone diagnose their problems( I had more symptoms when I was younger- I will be glad to help you

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