Discussions By Condition: Muscle conditions

Lymphedema

Posted In: Muscle conditions 5 Replies
  • Posted By: Anonymous
  • January 29, 2007
  • 09:50 PM

I was diagnosed with lymphedema last summer. I have swelling in the leg, especially in the ankle and calf area and hardening of the tissue around the calf. I had several tests done to see if the veins were blocked and a MRI. The doctor told me that there is no cure and to wear compression stockings to help control the swelling. I've been wearing the stockings but I don't see any difference and sometimes I have to take them off because it feels like my circulation is being cut off around the ankle area. Now I'm experiencing burning and heaviness of the leg as well as burning in my left wrist. I elevate my legs several times a day but that doesn't seem to be helping that much with the pain or swelling. Has anyone experienced any of these symptoms and found a way to manage the swelling?
Thanks,
AF

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5 Replies:

  • I will be seeing a specialist for lymphedema on Wednesday. I have thoracic outlet syndrome so I had my first rib removed along with some lymph nodes. I have the same heaviness in my arm. I also have the burning and swelling. I too try to keep my arm raised when not at work. What I find is that as soon as I have my arm at my side, it blows up and is very painful. Did the doctor find blocked veins? I have a severe long narrowing in a vein my arm, but would be too risky to do surgery or insert stents. I personally think the stockings are a joke (and not too fashionable) - but I'm not sure that there are other options. Is there a bigger size you could get for the stockings to help with the tightness? I haven't used them yet, so I'm sorry if I sound naive. If you would like, I can let you know what they say at my appt on Wednesday.B
    Anonymous 42789 Replies
    • January 29, 2007
    • 10:15 PM
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  • That would be great if you could let me know how you make out on Wednesday. My tests showed no signs of blocked veins. I'm wandering if I should have my lymph nodes checked to see if any are damaged or blocked. Yes, you are right about the stockings. They are a joke and not very fashionable.af
    Anonymous 42789 Replies
    • January 29, 2007
    • 10:36 PM
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  • Will do.I also heard of a machine that can be put on an arm or leg to increase blood flow and may help with the painful swelling. The very same machine that they put on your legs when you have surgery to prevent blood clots. Now, I'm not sure if this is specific to my condition or not. I'll hear more about this on Wed.B
    Anonymous 42789 Replies
    • January 29, 2007
    • 10:46 PM
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  • I went to see the Specialist. In my case, I don't have lymphedema - or atypical lymphedema. He thinks I have nerve damage from surgery that is not correctly controlling the blood flow down my arm - hence swelling and pain. When treating these symptoms, he said to see a lymphedema specialist -have you done that? They talked about lymph massage also. My husband asked (because I'm about 50 lbs overweight) if weight has anything to do with the swelling. This has been a concern on mine, but the Dr said that if it was in my legs - then it may be a concern - but not in the arm. Briefly asking about the treatment, he said that they put cotton, then foam with a covering around my fingers and arm to control the swelling This would need to be on for 24 hours per treatment. No mention of a tens stocking. When you said that the stocking is tight, etc. I would see if you can see a lymphedema specialist. The Dr. mentioned that the treatment shouldn't be uncomfortable/painful. It shouldn't be that tight.Hope this helps.
    Anonymous 42789 Replies
    • February 1, 2007
    • 04:18 PM
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  • In 04 I was pregnant and had my first set of twins. In 5 months into it, I had excessive leg swelling in the ankle and foot. In the beginning of 07 it had came back and swells like a 400lb foot! Im getting it checked out today, wish some luck.
    Anonymous 42789 Replies Flag this Response
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