I am a 29 year old female, with a history of join problems, and recently had a very severe flare up disabling arthritis, yet I can't seem to get any real diagnosis or treatment.
Here's my history: As a child I had idopathic arthritis in my knees and ankles. It disappeared around age 10. At age 15 I began having arthritis in my hands and wrists - the doctors wrote it off as tedonitis, but now my doctors are saying it is arthritis. I also began having low back pain at age 15. It is on either side, but no usually on both at the same time. The doctors said it was an injury, yet I was never injured and this back pain continues to come and go almost 15 years later. In my early 20s I also began having arthritis type pain in my feet, I notice it especially around my menstrual cycle. After my son was born I began having episodes where my neck hurts and I can't turn it very far in either direction, I will also have pain in my upper back. Also after my son was born, my hips began popping constantly. A few years later, at age 28 I woke up one day with terrible pain in both hips. I was dx with torn labrum and osteoarthritis is both hips and in the lower spine. I had steroid injections in both hips which helped tremendously - I no longer limp or walk hunched over. I also get intermittent shoulder pain that feels like arthritis pain, but does not show up on xrays.
Throughout all this, I have always been prone to bouts of fatigue and anemia.
My RF, ANA, and ESR all come back negative. My MRIs have not shown inflammation so far. My ortho thinks my hip MRI/xrays look like a rheumatoid patient, and my primary doc thinks I may have seronegative arthritis. My rheumy said I just tore my labrum and have osteoarthritis and will not treat me, I feel like she thinks it is all in my head. As I have military health insurance, my insurance will not cover another rheumy visit. I am going to pay out of pocket for another opinion, but I want to go to that appointment with all the information necessary, and the right questions to ask. Any help is appreciated!