Discussions By Condition: Muscle conditions

is this fibro , please read , need advice

Posted In: Muscle conditions 13 Replies
  • Posted By: Anonymous
  • March 1, 2007
  • 09:06 PM

hi
for the past 2 years i have been having symptoms, the first was upper abdominal pain stretching around my back , this was servere enough for docs to unecessarily take out my gallbladder,this was 2 years ago and i still get the pain now , i also get really bad joint pains especially tops of legs , other symptoms include vertigo, pins and needles in hands, severe restless legs,pin ****k sensations, weak arms, clicking jaw, fatigue, anemia, floaters in eyes, and also everywhere seems tender to touch. just poking my arm or leg feels as though ive just been punched full force...ive had bloods done which are always neg, i forgot to mention i also had my appendix out (again for no reason) at the time i had really sore skin as though it had been burnt ..i would like to go to my docs and say this is what i think i have , but afraid of having the idea rejected, (theres alot on the web about docs not believing in fibro) does anyone agree with me that this could be fibro, im getting quite depressed just latley , just so sick of feeling this way..i feel like im falling apart bit by bit , just one symptom after another...thanx for reading...

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13 Replies:

  • I am 23 and I woke up with sore arms and chest.I have posted my symptoms under neurological and nerves section. First they thought it was viral but it progressed.Have bad burning pains in my arms and chest.Now I have a stinging pain in my legs.Seem to get burning pains anywhere.i think I am starting to get a shadow now and again in my left eye.have another week to wait to see a neurologist.But she won't be able to tell me much on the first visit.Is it fibro or ms? really scared.
    Anonymous 42789 Replies Flag this Response
  • I have fibromyalgia as a secondary condition to my Ehlers Danlos syndrome and you have described my pain very well so I would suggest you do ask your doctor about it. It is a very variable condition that is why many doctors are unsure of the diagnosis. Many rheumatologists will know if you have this or not. I'm sure someone unregistered will be along in the next post to ask you to test for Lymes disease though as that seems to be their obsession. :D
    Anonymous 42789 Replies Flag this Response
  • I have fibromyalgia as a secondary condition to my Ehlers Danlos syndrome and you have described my pain very well so I would suggest you do ask your doctor about it. It is a very variable condition that is why many doctors are unsure of the diagnosis. Many rheumatologists will know if you have this or not. I'm sure someone unregistered will be along in the next post to ask you to test for Lymes disease though as that seems to be their obsession. :DLOL YOU TOOK THE WORDS RIGHT OUT OF MY MOUTH..
    Anonymous 42789 Replies Flag this Response
  • Hi-I was diagnosed with fibromyalgia by a rheumatologist recently, but I have been through many years of crazy symptoms, this past year being the worst. All my blood work was totally normal, and I have pain in my joints and muscles that can't be explained by other illnesses. I also have a lot of migraines, nerve twitches, anxiety, and severe fatigue. There are 18 points on the body that the Dr presses to see if there is pain. For diagnosis you have to have 11 of the 18. I didn't think I had these tender spots, but it turned out I had all of them. You should ask your Dr about fibro for sure, as you have most of the same symptoms that I do. I don't have anemia, though, but if Dr's are removing bits from you by trial and error, there is no surprise you might be anemic. The only problem with fibro is that there is no cure. you just treat the symptoms as necessary and make healthy lifestyle changes- exercise and getting enough sleep. I hope this helps- (lymes titer came out negative, too, btw)
    pumibel 42 Replies Flag this Response
  • Hi-I was diagnosed with fibromyalgia by a rheumatologist recently, but I have been through many years of crazy symptoms, this past year being the worst. All my blood work was totally normal, and I have pain in my joints and muscles that can't be explained by other illnesses. I also have a lot of migraines, nerve twitches, anxiety, and severe fatigue. There are 18 points on the body that the Dr presses to see if there is pain. For diagnosis you have to have 11 of the 18. I didn't think I had these tender spots, but it turned out I had all of them. You should ask your Dr about fibro for sure, as you have most of the same symptoms that I do. I don't have anemia, though, but if Dr's are removing bits from you by trial and error, there is no surprise you might be anemic. The only problem with fibro is that there is no cure. you just treat the symptoms as necessary and make healthy lifestyle changes- exercise and getting enough sleep. I hope this helps- (lymes titer came out negative, too, btw)Hey,I recently was diagnosed with fibro also. I was just looking up lymes disease and also fell under those signs and symptoms and was wondering if that was a possibility. I did years ago live in NY and had the symptoms of bulls eye rash and flu like symptoms never really made the connection. do you get vertigo, headache, tingling of the skin (neck area), palpatations, sensative to light? I get so frustrated sometimes I feel like I'm going crazy.
    vermontani 2 Replies Flag this Response
  • You best get the western blot test for Lyme because as you know the bull's eye rash thing is the clencher. There could be treatment for this. I have 3 friends who have it although I am not close to them. I have fibromyagia and there is just no doubt about that.Fibromyalgia network at www.fmnetnews.com is the best help for people with this condition.C
    Anonymous 42789 Replies Flag this Response
  • Hey,I recently was diagnosed with fibro also. I was just looking up lymes disease and also fell under those signs and symptoms and was wondering if that was a possibility. I did years ago live in NY and had the symptoms of bulls eye rash and flu like symptoms never really made the connection. do you get vertigo, headache, tingling of the skin (neck area), palpatations, sensative to light? I get so frustrated sometimes I feel like I'm going crazy. I had a mystery bite with bulls-eye rash 12 years ago in CA, but I have been retested several times for the antibody and it is always negative. I do have all of those symptoms you have listed, too. I had been wondering for over a year if there was an infection, cancer, etc. I have a lot of twitches, so I even saw a Neurologist, but every single test has come back negative, which is typical of a fibro sufferer. I am confident that my diagnosis is correct now. If you have not had all the possible bloodwork, you could ask your Dr for all possible tests for your symptoms just to make sure. The fatigue is probably the worst part of the illness. I was so fit and energetic until 7 months ago, and it just kills me that I have to go easy on myself. Very frustrating as I am only 34
    pumibel 42 Replies Flag this Response
  • Lyme disease is very real, so are the co infections. Many people who have been dx'd with Fibro, MS, ALS and much more ACTUALLY, have Lyme thats hasn't been dx'd. Do some searches and learn abt it.. The dr's normally don't test for Lyme in routine blood work. The dr's don't even think to test for it, cause they think its not across the US. There are other co infections too. Oh and Lyme is transmitted by flies and misquitos, too, not just ticks. MAny Lyme tests give false negatives, esp the elisha, that they use in Canada. No one wants to be sick. I surely didn't ask to be for the last 15 yrs. At first it was thought I had MS. Then, 5 yrs I was given the Fibro/ CFS dx. Treated with nothing but anti depressants for Fibro. The first two Lyme tests that I pushed for, were neg, the 3rd & 4th were positve. I was just dx'd last summmer , after 15 yrs of all the same symptoms you are speaking of. I have a long way to go , to even begin to feel better.Which is why "some of us Lymies" don't want others stay misdx'd and go through what we did . Education abt Lyme is very important. Check out lymenet.org or canlyme.com or lymeinfonet... Some of you may see yourselves there. Best wishes~~ Dee/ A JerseyLymeVictim
    Anonymous 42789 Replies Flag this Response
  • I have been diagnosed with Fibromyalgia by a Rheumatologist, but I can't say whether or not I am sure that I have it or if it is helpful to be diagnosed with this. The pain you speak of is so awful, I can empathize. I am sorry you have to deal with this. Have you seen a Rheumatologist? They seem to be good at trying to figure out what is going on and realizing that a lot of tests come up negative but that doesn't necessarily mean you don't have it. The diagnosis itself is very depressing to me. . .in fact the depression and fatigue has been the most difficult part. Keep seeking help and answers. Don't give up on yourself! I have to tell myself these words, so just know that you are not alone in your frustrations. Sorry, I am not so helpful, but I know that you are going through something real and painful. Keep seeking health!
    Anonymous 42789 Replies Flag this Response
  • It sounds like Fibro. I've been getting treatment for about 10 years now. I have been interested in the new research on Fibro and Vitamin D deficiency. I had a Vit D test done last month and Doc told me it was very low. She gave me a script for calcitriol .5mcg to take once a week. I have been taking 6000 IU og Vit D3 for the past month also. I a feeling better allready but have my fingers crossed.I would recommend anyone who thinks they have or does have Fibro or Lyme (or any other autoimmune disorder) to have their Vitamin D levels checked. My husband had (and we believe still does) have Lyme and he is developing Fibro systems. We are starting him on Vit D3 also and he is going to get his levels checked soon.Fibro is not a death sentence, it just feels like one.
    Anonymous 42789 Replies Flag this Response
  • It is so comforting to know that there are other people out there that are experiencing the same things I am and that we are not alone.We really need each other ,because to hurt so bad every day and ,in my experience,not have Dr. who care can be almost too much to bear.To the person who asked if it could be fibro,my opinion is YES.I have also been sick many years and my lupus test,rheumatoid test, lymes test and MRI all come back neg.I am fixing to have a spinal tap done to rule out MS.I started with pain in the side of my heels and pain with deep breathing(pleurisy).Then the shoulder muscle ,shoulder, elbow, and hand hurt very bad.My thigh muscles always felt pulled and i have irritable bowel syndrome.I just had a bad flare up where I have had numbness in my legs and i can't walk.I've also have bad tremors some times.I was diagnosed several years ago with fibromyalgia.The only thing though is they told me it doesn't progress and that is not true.I have been in a wheel chair.I am thankful to God though that I found this site because the people here have been such a blessing to me.Every one is so understanding.
    Tabaitha Brown 31 Replies Flag this Response
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  • hifor the past 2 years i have been having symptoms, the first was upper abdominal pain stretching around my back , this was servere enough for docs to unecessarily take out my gallbladder,this was 2 years ago and i still get the pain now , i also get really bad joint pains especially tops of legs , other symptoms include vertigo, pins and needles in hands, severe restless legs,pin ****k sensations, weak arms, clicking jaw, fatigue, anemia, floaters in eyes, and also everywhere seems tender to touch. just poking my arm or leg feels as though ive just been punched full force...ive had bloods done which are always neg, i forgot to mention i also had my appendix out (again for no reason) at the time i had really sore skin as though it had been burnt ..i would like to go to my docs and say this is what i think i have , but afraid of having the idea rejected, (theres alot on the web about docs not believing in fibro) does anyone agree with me that this could be fibro, im getting quite depressed just latley , just so sick of feeling this way..i feel like im falling apart bit by bit , just one symptom after another...thanx for reading...sounds like fibromyalgia and possible ms
    Anonymous 42789 Replies Flag this Response
  • For anyone with Fibro please try synthroid. I suffered incredibly painful symptoms for years which left me bed-bound. After trying every treatment under the sun, I insisted my doctor try to raise my rather low thyroid levels by prescribing synthroid. It has been a miracle for me. Everything changed immediately and I have never had a return of the full body pains again.Please try it for yourself even if your doctor is resistant they don't live in our bodies and often do not know best I've found. In fact for years I was basically told that since they didn't see a problem in my blood work my ailments didn't exist! Good luck to all.
    Anonymous 42789 Replies
    • January 5, 2010
    • 00:58 PM
    • 0
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