Discussions By Condition: Muscle conditions

In pain 15 years

Posted In: Muscle conditions 3 Replies
  • Posted By: Byrdberes
  • April 15, 2008
  • 09:47 PM

aching joint pain that changes joints almost daily. eyes are hot, knee pain, elbow, foot, toe, but always extremities, weakness, fatigue, erathema nodosum on legs, high sed rate (130+) low platlet count, low blood pressure,chills, scalding water helps with pain sometimes as does crushing or twisting of the skin around joint. been tested to about everything. Prednisone is the ONLY medication that seems to help.Tried every other type of antiinflamatory but nothing helps. Ready to just give up. Have been to infectious disease doc, RA docs, Internal medicine docs, gynogologists, dermatologists, gastro docs. This all started after normal vaginal birht of my son 15 years ago. No diagnosis yet. ANY help would be great.:(

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  • aching joint pain that changes joints almost daily. eyes are hot, knee pain, elbow, foot, toe, but always extremities, weakness, fatigue, erathema nodosum on legs, high sed rate (130+) low platlet count, low blood pressure,chills, scalding water helps with pain sometimes as does crushing or twisting of the skin around joint. been tested to about everything. Prednisone is the ONLY medication that seems to help.Tried every other type of antiinflamatory but nothing helps. Ready to just give up. Have been to infectious disease doc, RA docs, Internal medicine docs, gynogologists, dermatologists, gastro docs. This all started after normal vaginal birht of my son 15 years ago. No diagnosis yet. ANY help would be great.:(Not sure, but check out this site: http://www.palindromicrheumatism.org/syptomsanddignosis.shtml
    CindySue54 32 Replies Flag this Response
  • CindySue54 I think you may have saved my very life. I went to the website you recommended and I was overwhelmed that SOMEONE has the saem symptoms as I do! I can't thank you enough! I went to my internal medicine doctor today and she thinks I might be on the right track! Thanks to YOU that is! I have test scehduled for tomorrow and I am setting up apts with rheumatologist!!! I wish there was some way I could express my gratitute. I have spent all day crying just feeling that FINALLY I am not alone. You literally may have saved my life and my sanity!Eternally your friend, Dawn
    Byrdberes 3 Replies Flag this Response
  • Oh Dawn...I sure hope this does give you an answer!! I thought I was crazy the way the pain/swelling/redness traveled! I also have little swelling and most times no redness, as well as asymmetrical pain, so I was convinced that the doc was going to blow me off. But I was very lucky in finding a doc that recognizes PR and knows how to treat it. I've been taking an antibiotic, but not sure if I'm going to be able to continue it. (PR is mostly treated the same as "regular" RA)Be sure to check out the forum on the PR site....there are some great members!! Very helpful and supportive group!Edited to add: Be aware that RA factor, sed rate, etc may or may not be elevated, but levels are not the definitive diagnosis. Some say positive RA indicates we'll progress to RA, but others disagree. In my case, all except CRP (inflammation marker) are "wildly" elevated, but I think I have a relatively minor case. Lots of pain, but not as much as some. The good thing about PR is there usually is no joint damage....the bad thing is that it's said to be the most painful form of RA.
    CindySue54 32 Replies Flag this Response
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