Discussions By Condition: Muscle conditions

I have had 12 surgeries on my legs..NOW the doctors quit..help me

Posted In: Muscle conditions 0 Replies
  • Posted By: susie769
  • September 6, 2012
  • 09:02 PM

I have Ehlos Danlos III, A connective tissue disorder that makes my tissue very thin and very lax. I also have Mitochondrial Myopathy which weakens my muscles. Most severly my legs. I have had 12 plus surgeries on my Quads due to the fascia tearing and causing herniations. Now I have 2 herniations and a "bulging, likely postoperative in nature of the vastus lateralis mid level with ABRUPT contour change" When I stand with my quad fired there is no blood flow through this region. My first 11 surgeries were done by one surgeon but he has left our hospital, Now the surgeon who did this last one (and didnt listen when I said it didnt feel right) has said he will not do any more. So what am I to do? Lose more muscle mass? That doesnt seem like a fair option. Im not done fighting. Is there an option to repair the fascia? Can you do a graph or something? I have already had cadaver tendons placed into my knees so I cannot believe that there is NOTHING they can do for me. Please please help

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