Discussions By Condition: Muscle conditions

hurt from med-levaquin anyone else?

Posted In: Muscle conditions 20 Replies
  • Posted By: lifechanging
  • January 4, 2009
  • 07:50 PM

I was on IV Levaquin in Oct 2008 for Sinus infecion-now I have told i have a connective tissue desease-will find out maybe which 1 on Jan. 16-severe pain s in legs-started the first drip till now-can not walk in wheelchair anyone else affected this way:mad:

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  • I was on IV Levaquin in Oct 2008 for Sinus infecion-now I have told i have a connective tissue desease-will find out maybe which 1 on Jan. 16-severe pain s in legs-started the first drip till now-can not walk in wheelchair anyone else affected this way:mad: More details please. How long were you on the IV levaquin? You are saying your symptoms started immediately after the onset of the IV drips? Any other medications at this time? When did your leg pain start and do you also have low back pain? Do you have muscle weakness as well? Do you still have any sinus issues? DOM
    acuann 3080 Replies
    • January 4, 2009
    • 08:02 PM
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  • This drug can cause you to tear a tendon,requiring surgery. Have you had an MRI done of both legs? This should be ruled out.Please research your medication on this site: http://www.drugs.com/mtm/levaquin.html There is a black box required for those antibiotics that can cause tendon damage. Avelox is another med that can do this. This should definitely be ruled out as it is possible this medication has caused some damage and this is what is causing your pain. In the meantime, please consider trying acupuncture to help you. It can be very helpful! Best wishesDOM
    acuann 3080 Replies
    • January 4, 2009
    • 08:13 PM
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  • I am so sorry to here this med has hurt you too. I too reacted to it, I had foot surgery it ended up infected so was given levaquin. I had nearly every reaction on the back, it also damaged my nerves and I too was told after words I have connective tissue disease. The worst damage it did to me is, I already had RSD due to my foot surgery and after the med and reaction it help push the RSD into my entire body, its just a nightmare. A specialist in UCLA confirmed the damage the med did and the reason my RSD is severe now. Like you too I went from walking to a wheelchair, and still cant walk without crutches partly from the RSD and partly from the med. I sure hope the affects this drug has done to you will slowly go away. I have talked to other and research about people and reactions to this med and found out some are still suffering from damage ten years later. It has been a year now for me and I think the affects are all but gone accept the damage it has already done to my body.
    nikiski1 35 Replies
    • January 5, 2009
    • 00:21 AM
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  • sorry to hear about you too- what is RSDdid you research litagation
    lifechanging 2 Replies
    • January 5, 2009
    • 09:14 PM
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  • No I havent done any research on litagation, we started to but have been pretty preoccupied with finding treatment for my RSD. RSD stands for Reflex Sympathetic Dystrophy, or CRPS, Complex Regional Pain Syndrom. It is basically a nerve dissorder due to some type of nerve damage such as surgery or even just a sprained ankle or a needle poke. The symptoms include swelling, pain, skin color change, temperature changes, really bad sensitivity to everything, I cant even have a breeze blow on my skin without me flaring up. When I had the reaction to the antibiotic, I already had the RSD in my foot, but with the damage to my nerves by the med it basically set of a chain reaction of my nerves in my spine, so now it is full body and even in my internal organs. Since the damage from the med was so wide spread and the RSD moved everywhere, I cant even fly anymore due to the pressure it puts on my body, I end up frozen and have to be taken to the ER, for oxygen ect. Have you read the book Bitter Pills? It is written by a husband who's wife reacted to the quinalones, It is really a good book, after her reaction he goes to the FDA to get a black box warning on all quinalones, which I believe recently it was. Also I was wondering if anyone has told you about foods to avoid after having a reaction to quinalones. Ever since the reaction I get sick anytime I eat any food, meats/eggs/milk that the animal was fed antibiotics. I was told to avoid all animal products that arent organic, as the non-organic animals I was told are actually fed quinalone antibiotics and depending on how bad your previous reaction you could be very acceptable to reacting from non-organic animal products. That is why after mine, everytime I didnt eat organic I would get really sick, I couldnt at first understand why I was getting sick so brought it up to a doctor and he gave me the answer and ever since I only eat organic and I dont get sick.
    nikiski1 35 Replies
    • January 5, 2009
    • 09:43 PM
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  • I took levaquin for 3 days and connective tissue in neck and back is destroyed, always inflamed, and chronic pain? How are they diagnosing you with "connective tissue disease"? What specialist and what tests? Thank you.
    poisoned 1 Replies
    • January 6, 2009
    • 00:07 AM
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  • No I havent done any research on litagation, we started to but have been pretty preoccupied with finding treatment for my RSD. RSD stands for Reflex Sympathetic Dystrophy, or CRPS, Complex Regional Pain Syndrom. It is basically a nerve dissorder due to some type of nerve damage such as surgery or even just a sprained ankle or a needle poke. The symptoms include swelling, pain, skin color change, temperature changes, really bad sensitivity to everything, I cant even have a breeze blow on my skin without me flaring up. When I had the reaction to the antibiotic, I already had the RSD in my foot, but with the damage to my nerves by the med it basically set of a chain reaction of my nerves in my spine, so now it is full body and even in my internal organs. Since the damage from the med was so wide spread and the RSD moved everywhere, I cant even fly anymore due to the pressure it puts on my body, I end up frozen and have to be taken to the ER, for oxygen ect. Have you read the book Bitter Pills? It is written by a husband who's wife reacted to the quinalones, It is really a good book, after her reaction he goes to the FDA to get a black box warning on all quinalones, which I believe recently it was. Also I was wondering if anyone has told you about foods to avoid after having a reaction to quinalones. Ever since the reaction I get sick anytime I eat any food, meats/eggs/milk that the animal was fed antibiotics. I was told to avoid all animal products that arent organic, as the non-organic animals I was told are actually fed quinalone antibiotics and depending on how bad your previous reaction you could be very acceptable to reacting from non-organic animal products. That is why after mine, everytime I didnt eat organic I would get really sick, I couldnt at first understand why I was getting sick so brought it up to a doctor and he gave me the answer and ever since I only eat organic and I dont get sick. I am sorry for all you have been thru. Have you tried acupuncture to help manage your pain? I think it would help, especially auricular acupuncture. Best wishesDOM
    acuann 3080 Replies
    • January 6, 2009
    • 03:11 AM
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  • acuann, no I havent tried any acupuncture as it deals with needles and causes my RSD to flare, right now I am so sensitive no one can even touch me. I have tried basiclly every treatment for RSD and am now currently doing the Ketamine infusions which I am hoping it will be my answer, as the last is the ketamine coma. Thanks for the suggestion though. Niki
    nikiski1 35 Replies
    • January 8, 2009
    • 10:32 PM
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  • acuann, no I havent tried any acupuncture as it deals with needles and causes my RSD to flare, right now I am so sensitive no one can even touch me. I have tried basiclly every treatment for RSD and am now currently doing the Ketamine infusions which I am hoping it will be my answer, as the last is the ketamine coma. Thanks for the suggestion though. Niki Yes, I understand that RSD causes severe sensitivity. That is just awful. You may try laser therapy? DOM
    acuann 3080 Replies
    • January 9, 2009
    • 01:48 AM
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  • Thanks for the suggestion about the laser therepy, I havent heard of that yet, I will have to talk with my RSD friends and see if they know anything about it. I have gone through countless treatments for help: blocks, meds, epidurals, spinal stimulaters, pain programs, Pt/OT and now I am trying the ketamine which alot of my friends said it brought there pain down to a three which would be wonderful. I kind of have been a difficult case for doctors(I have seen over 112), not only do I have full body RSD but dystonia as well and also still have a bone infection from the foot surgery I had more than a year ago which is causing lesions, then with the damage the levaquin caused its just a mess. Thanks again for the suggestion, any idea are always great. Niki
    nikiski1 35 Replies
    • January 10, 2009
    • 02:20 AM
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  • I took levaquin for 3 days and connective tissue in neck and back is destroyed, always inflamed, and chronic pain? How are they diagnosing you with "connective tissue disease"? What specialist and what tests? Thank you.I had a ANA titer blood testreslt was very poistive foe connective tissue diseasewill see a Rheumatoid doc 1/21 to find out which it is--maybe:mad:
    lifechanging 2 Replies
    • January 11, 2009
    • 01:42 AM
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  • I too had a positive ANA, but I also had scans done not sure which one it was came back showing tissue disease, it may have been the MRI. As for doctor I wouldnt really know I have seen over 110 doctors in a years time, I do know it was in the mayo clinic in scottsdale that the tissue disease was found, and I just saw a internal doctor who sent me to see specialists with in the clinic and all the results came back to her.Also all where I had the tissue disease, I had really wierd bruises.
    nikiski1 35 Replies
    • January 12, 2009
    • 02:19 AM
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  • I took 3 doses, developed tendonitis and that turned into RSD/CRPS. My doctors are stumped, they've never seen this happen, but I think they finally believe me.
    Anonymous 42789 Replies Flag this Response
  • I am so sorry to hear about your reaction and that you too are dealing with RSD. Can I ask what you were taking the antibiotic for? I had RSD in my foot before I had my reaction but then it went full body. What I was told and I also read about it is that this certain antibiotic can actually damage nerves if you go into a reaction. A doctor in UCLA says that is how my RSD spread so fast was with the nerve damge plus the infection it made it go into hyperdrive and spread up my spinal cord within a week. Depending on what infection you had , infections are known to cause RSD its self. I have a freind that got RSD froma respitory infection and a nother from a strep infection, but any infection can set it off. So its possible that the infection started the RSD and when given the antibiotic and had the reaction it made it worse. How bad of reaction did you have? When I had my reaction I had everything on the list except stevens syndrom, I had seizers that lasted 3 months which was just horrible, I even got hemorrages in my right eye. I too had doctors that were stumped while some others were not at all surprised. Have you started treatment for your RSD? I am so sorry your having to go through this horrible disease, I know all to well how bad it is and how much it changes a life. Niki
    nikiski1 35 Replies Flag this Response
  • Niki sorry I didn't post sooner, totally forgot about posting here to be honest. Darned RSD. I took the Levaquin for misdiagnosed bronchitis, got sinusits and had a zpak that I had a reaction to.The ER doctor decided that it wasn't an allergic reaction, it was bronchitis, even though I never coughed. 3 pills,3 days of absolute he** and a shot so I could get some water into my system, still told to keep taking the stuff, but you don't have bronchitis, a visit to the primary care guy who says you don't have bronchitis, quit taking it.The next day my ankle started hurting. After that for the next month the pain kept getting worse and crawled all the way up to my knee. I had a couple of lumbar sympathetic blocks, which I swear caused it to jump to the opposite sacroiliac joint. Cut my other foot and it decided to stay there and a month later mirror all the pain from the original side. Now they say RSD and they have never seen this from a side effect from Levaquin. I now have pain starting in my wrists, fingers and shoulders as well as under my ribcage. I want this drug off the market.
    Anonymous 42789 Replies Flag this Response
  • There are hundreds of people who have suffered this reaction to fluoroquinolones as well as a ton of other symptoms. Look up "fluoroquinolone toxicity" or just search on fluoroquinolone, Cipro, Avelox, Levaquin and you will come across numerous sites , forums and such documenting all of this. Most victims have a hard time finding a doctor who believes any of the side effects of these drugs except the tendonitis. You have not listed any other symptoms in your posts, but have you experiences any of the following since that time? severe fatigue, PVCs (Premature Ventricular Contractions - feels like skipped heartbeats), Visual floaters (those visual anomalies that look like you have lint on your eye), sudden rise in blood pressure, panic attacks, depression, elevated Creatine Kinase (CK or CPK) enzyme, Vitamin D deficiency, changes in blood glucose or ringing in the ears?
    Anonymous 42789 Replies Flag this Response
  • 7 day regimen in Feb of Levaquin for suspected pneumonia. Joint pain, headaches, but most importantly I began to see floaters in my right eye day 3 of the medication in Feb 2010. Floaters became worse and last night Apr 9 2010 I had emergency surgery to repair a posteriorly detached retina!!! If you have black spot floaters and or what looks like a hair or speck of dust in your vision field see an opthamologist immediately.. it could be a retinal tear and or a detachment...
    Anonymous 42789 Replies Flag this Response
  • I took Levaquin at the end of 2009. I have tendon ruptures, tendinosis as well as neuropathy. Someone mentioned in a post that he/she saw a specialist at UCLA. Does anyone know who the specialist was? I am in Georgia. Does anyone know of a specialist in the south? Has anyone with Levaquin neuropathy had surgery for their tendon ruptures? I want to know if surgery will make my neuropathy worse. Please help. I badly need a knowledgeable Doctor.
    neckburn02 1 Replies Flag this Response
  • Just like anonymous, I developed tendonitis and that turned into RSD/CRPS. If any of you that have posted previously on this thread come across this now, I would love to hear how you are doing. I am four years into this and progressed from cane, crutches, walker and now to wheelchair. This is brutal! Doctors at this point could care less what initiated all this – I am just seen as a chronic pain patient with RSD. Unless you have regular side effects of Levaquin, which RSD isn't, drs ignore!
    Anonymous 1 Replies Flag this Response
  • Wish I knew about the side effects, I have RSD in left foot and it was in semi remission for the last 2 years, only acting up under certain times. Thanks to Levaquin it started up full blown again. Hoping to achieve some remission soon. Boy, I almost forgot what it was like to have that kind of pain. Didn't miss it that's for sure. Hope some of you can find a good RDS therapist, I had a great one that only worked with people with it.
    Anonymous 1 Replies
    • September 7, 2014
    • 11:46 PM
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