Discussions By Condition: Muscle conditions

Goldie with reoccuring symptoms???

Posted In: Muscle conditions 3 Replies
  • Posted By: Anonymous
  • July 20, 2006
  • 06:01 PM

I was diagnosed with Chronic Fatigue Syndrome after staying sick like for so long after mono it was back in 1988-89. Since then I got married and had four children held down jobs blah blah and felt pretty good. One plus year ago I started working out every day switching from weights to walking. Physically I look the best I have in a long time but I don't feel so good. My muscles are so sore, my throat is always sore, my glands are all swollen and my joints ache. Could this disease ly dormant for a while and come back is my question??? Anybody else have anything like this happen to them??

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  • I was diagnose with CFS in 1980 after many, many years of tests for everything under the sun ! Over the years I have had months, sometimes years of feeling pretty good, and slumps of almost wanting to die. I am in a bad period now, where I can hardly do anything. I retired on disabililty 2 years ago because of it. It can definitely come and go. I think you really have to be careful about working out! Everything I have read says that overdoing it will cause you to be flat on your back the next day or two. Moderate walking - about 20 to 30 minutes 3 or 4 times a week - seems to be the key. Then try to build up gradually to every day if possible. That's really hard for someone who can hardly get from the house to the car right now!!! I have not been able to do any walking yet. Any little thing I do right now puts me in bed for a whole day. Read about CFS at www.askdrweil.com He has good information for us. Unfortunately, not much helps a lot. Good luck. Keep in touch. :)
    Anonymous 42789 Replies Flag this Response
  • I was also diagnosed with CFIDS and Fibromyalgia in 1993. It seemed to be the worst in the beginning and gradually improved after 2 years of ***l but then got worse again a few years ago. There are many resources out there on the web but be sure to check www.cfids.org and check the Arthritis Foundation website for info on Fibromyalgia and others like: fibromyalgiasupport.com Many Doctors believe it may be the same disease/syndrome. They also think it may have been caused by an infection such as Mono or Epstein Barr but still nothing definitive. It causes a host of symptoms and like the previous person said as far as exercise you need to pace yourself. They think persons with CFIDS do not have the same amount of oxygen in their muscles to do what we use to so when you over-do it then you suffer by painful relapses and fatigue for days. It is called post-exertional malaise or fatigue. Our muscles don't recover from over activity like normal people. Over activity means the same things you were use to doing in the past. It's important to take frequent breaks, rests between activities. The symptoms are: CFIDS is characterized by incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina) and problems with concentration and short-term memory. It is also accompanied by flu-like symptoms such as pain in the joints and muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A distinctive characteristic of the illness is post-exertional malaise, a worsening of symptoms following physical or mental exertion occurring within 12-48 hours of the exertion and requiring an extended recovery period and a host more seen at the website's. for CFIDS the good news is some people actually improve and it goes away, for others it is a life time illness. For Fibromyalgia, gentle stretching your muscles everyday is important as your muscles shorten and cramp with tightness. Look for local support group in your area to learn more and find a doctor that is familiar with the treatment of CFIDS and Fibromyalgia, usually a Rheumatologist or Infectious Disease Specialist. Best of Luck.
    Anonymous 42789 Replies
    • August 13, 2006
    • 04:30 AM
    • 0
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  • HiI was diagnosed with Fibromyalgia and Chronic Fatigue as well. My Fibromyalgia was so bad I was using a cane, then it subsided and the Fatigue took over with Fury....Many Many tests were done and I was told I had to learn to live with it, and rest as much as possible. I got mad, because nobody should have to learn to live with this extreme exhaustion...I decided to do something about it.....I am 48 years old and was about 50 lbs overweight, so I went to the Dr. Bernsteins Diet Center and put myself on their diet, this diet is very strict but while you are on it you get vitamin B6 and B12 injections....I lost my 50 lbs within 2 1/2 months and the fatigue and fybromyalgia all disappeared. After I lost my goal weight they teach you how to eat properly and you don't get the B6 and B12 shots anymore.Well within a month of not receiving those shots, the fatigue reappeared as well as the pain from fybromyalgia. So this started me thinking that has to be the key to getting rid of this fatigue.So I started to buy good quality B6 and Liquid B12 as well as Folic Acid and started taking it in large doses and found that sure enough the fatigue and pain subsided as well as the fatigue.Today I am going to my doctor as I found a site on the internet that as well confirms that this helps alot of people, b6, b12, folic acid and multi-vitamins daily, so I am going to ask her if I can get the injections as they work much faster than the pills.Try doing this and see if it helps you, because I am amazed at how much better I feel.Brown Eyes
    Anonymous 42789 Replies
    • September 19, 2006
    • 02:15 PM
    • 0
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