Discussions By Condition: Muscle conditions

fibromyalgia

Posted In: Muscle conditions 151 Replies
  • Posted By: Anonymous
  • August 23, 2006
  • 05:37 PM

:cool: I was diagnosed with fibromyalgia last year. I have muscle pain, all over my body, everyday, and i have to wonder...........why am i hurting so bad? I do still work, somehow.....but i have to be very careful or i
ll be down and miss a weeks work.... Fibro is real, and it is no fun at all. Where r the other fibromyalgia patients? Why arent they posting here?:rolleyes: C'mon people...lol

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  • I Also Have Fibromyalgia It Does Suck The Pain Is So Bad At Times My Joints Hurt As Well Have Osteorthritis On Tbop Of It Ultram Helps Ask Your Doctor About That One For Pain....and Make Sure You Keep A Normal Sleep Schedule Wake Same Time And Go To Bed Same Time Every Day Helps ....eat Healthy No Junkfood And Get A Massage The Schools Of Massage If You Have One Nearby Are Much Cheaper And Are Good. Also Reflexology Is Great.. Good Luck I Feel Your Pain...Deb
    Anonymous 42789 Replies
    • August 24, 2006
    • 00:35 PM
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  • I have fibromyalgia, too. It's funny that people seem to think it's made up or a "wastebasket" disease. I wish those people could feel what I feel every day. They would never judge us again. Sometimes we look "normal" and people don't understand why we sometimes can't get out of bed. I have a question.... are any of you dealing with knots in your muscles that are always there? I've noticed small pea size knots in my deltoids (shoulders), on top of my shoulders, and down where the shoulder blades are. I want to know if this is common for people with fibromyalgia.
    Anonymous 42789 Replies
    • September 11, 2006
    • 03:08 AM
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  • I did want to mention that when my doctor put me on Lyrica, it helped with the pain immensly. Lyrica is an anti-seizure drug that is usually used for diabetic peripheral neuropathy or shingles nerve pain. But is being used more and more for patients with fibromyalgia. It cut my pain down by 4/5ths.
    Anonymous 42789 Replies
    • September 11, 2006
    • 03:10 AM
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  • Hi - I'm Lee, and I have fibro. I wish I could find a doctor that will prescribe meds without worrying about addiction!!! I would rather they worry about getting rid of the pain!!Bluemacaw - check out Myofascial Pain Syndrome. One of the symptoms is small hard lumps in the muscles.Best of luck to us all!!Lee
    Anonymous 42789 Replies
    • October 15, 2006
    • 00:44 AM
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  • Lee (and others)I am so with you about the pain med addiction!!!!! What the heck! What would you be addicted to? PAIN RELIEF!!!!!!!!!????????I don't care about addiction at this point. I am suicidal, which is worse? I called my neuro crying with the pain, his answer was to refer me to a pain clinic. He said they would call and set up an appointment......that was 3 months ago....still waiting for that call. My pain is now so bad I have lost my job, come close to divorce and actively plan my suicide on a dialy basis. I saw someones post about Stiff Person Syndrome. That sounds more like what I have...plus it is associated with Prediabetes, which I just found out I have, along with PCOS.I just want something for the pain!!!!!! I have neurontin, but it does nothing for the stiffness.
    Anonymous 42789 Replies
    • October 19, 2006
    • 04:53 PM
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  • Is it possible to have Fibromyalgia in just certain parts of your body. Such as an arm? But only one arm? Or just one leg?
    Anonymous 42789 Replies
    • October 25, 2006
    • 11:24 PM
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  • i have repeating pain within only one hand which hurts me greatly.. mmmmm.. do you think this is fibromyalgia?
    leuviah 8 Replies
    • October 26, 2006
    • 04:51 AM
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  • I too suffer from Fibro and lose about 8 days a month to it; this is when I can't function well enough to leave my home. Sometimes the pain is awful, but it pales to the loss of life from fatigue. I take SAM-EE which seems to help and my doctor prescribed Nortriptyline, from which some fibro patients find relief. I keep trying to increase my exercise, but I get knocked by down repeatedly.Know you are not alone. Maybe together we will figure out some help.A Fibro Friend
    Anonymous 42789 Replies
    • October 27, 2006
    • 10:49 PM
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  • Hi, We are here! We know exactly what you are going through. Look at my post "I have been misdiagnosed twice" and another post from a woman "I'm new here". You can see our stories and how we relate. We would be glad to give you any advice or answer any questions you may have. Some of us have been living with this for a little bit longer, so we may be able to tell you some things you don't already know, and that your doctor probably won't tell you. :cool: I was diagnosed with fibromyalgia last year. I have muscle pain, all over my body, everyday, and i have to wonder...........why am i hurting so bad? I do still work, somehow.....but i have to be very careful or ill be down and miss a weeks work.... Fibro is real, and it is no fun at all. Where r the other fibromyalgia patients? Why arent they posting here?:rolleyes: C'mon people...lol
    jenn38018 7 Replies
    • October 28, 2006
    • 07:21 AM
    • 0
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  • I have had fibromyalgia since 1991. Symptoms started after getting caught in undertow. My pain started in my neck and arms with carpel tunnel symptoms. Also I noticed i was not sleeping well. A rheumatologist diagnosed my 1996, it gave a name for the pain. But I was basically told no one knows how to cure it. I can relate to all postings. I have knots allover. I am so tender it is hurts to get even a hug from my husband. And people pat me on the back without thinking. Sometimes i say "ouch" other times I try to just smile so I don't hurt their feelings because I know they intend to hurt me. I have low thyroid and messed up hormones which causes confusion on what disease is causing what symptoms since so many of them can be the same for all three, example muscle aches and headaches. Weight gain is one of my biggest frustrations right now because I am trying some new meds.I have learned that eating a healthy diet does make a difference. I found I have food sensitivities -you may too but not know it. Food sensitivties cause aches and pain also, But it may be delayed so it is hard to link with a particular food unless you keep a food diary for a while. Their are some books out their like "From Fatigued to Fantastic" "The Yeast Connection"
    Anonymous 42789 Replies
    • October 29, 2006
    • 01:33 AM
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  • :cool: I was diagnosed with fibromyalgia last year. I have muscle pain, all over my body, everyday, and i have to wonder...........why am i hurting so bad? I do still work, somehow.....but i have to be very careful or ill be down and miss a weeks work.... Fibro is real, and it is no fun at all. Where r the other fibromyalgia patients? Why arent they posting here?:rolleyes: C'mon people...lolHey there - I have been living with (often severe) fibromyalgia for about 6 years now. It's hard. Yes, it's a real illness - However, they are only beginning to understand where it comes from and what to do about it. Current research mostly shows it's a neuroendocrine disruption that occurs from trauma (physical injury, illness, extreme stress) whichover-sensitizes and knocks off kilter the nervous system, causing amplification of pain and other symptoms. Check out http://fibroresearch.blogspot.com for recent researchHang in there!
    2silverwings 9 Replies
    • October 29, 2006
    • 07:18 PM
    • 0
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  • Is it possible to have Fibromyalgia in just certain parts of your body. Such as an arm? But only one arm? Or just one leg?No, fibromyalgia is by definition a widespread chronic pain condition that must affect a certain number of quadrants of your body for a certain number of consecutive months in order to be considered fibromyalgia.
    2silverwings 9 Replies
    • October 29, 2006
    • 07:19 PM
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  • Hellow My name is nickie you are not alone. The symptoms are muscle stiffness and joint pain and muscle spasms especially when you first wake up unfortunatily people who have this illness work and then like myself they work part time and sometimes they completely stop working. if you end up noticing you over time feel worse get your gp to send you to a fibro specialist and then apply for disability benefits through your work plan if they have an existing one or through the government. It is painfull and then depressing since you are in so much pain and so stiff and it really sucks I hope you feel better very soon and defenitly see a specialist.
    Anonymous 42789 Replies
    • November 2, 2006
    • 03:09 AM
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  • I was diagnosed with fibro about 1 and 1/2 years ago. I have numbness, tingling, muscle pain, joint pain, and severe headaches. I had a great doctor who prescribed real pain medication along with Indocin (anti-inflammatory). The Indocin worked on the body pain and the pain medication worked on my headaches. He moved out of the area and my new doctors won't refill my medication. So far, I've been able to continue working, but ask me again in about 10 days (10 Indocin left)!! I don't think the doctors get it!!!
    Anonymous 42789 Replies
    • November 2, 2006
    • 04:13 AM
    • 0
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  • Well, I just knew there were others here with fibro. As for the people asking about one leg or one arm.........I don't believe fibro is like that. We usually have multiple areas, tender points, and such. My main areas of discomfort are the neck, shoulders, arms, and chest. During a flare up, its my entire body sometimes. Anyone notice that if ya get the flu, or even a cold, your fibro symptoms get much worse?//
    Anonymous 42789 Replies
    • November 29, 2006
    • 00:51 AM
    • 0
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  • RE: Pain meds and addiction. Here's the problem: most pain meds don't really work, or they may work for a time and then stop working. Doctors just don't have a good answer for people with chronic pain, and oxycontin and morphine are horrible drugs... Has anyone tried acupuncture for fibromyalgia? This can really help.Cheers,
    acuann 3080 Replies
    • November 29, 2006
    • 08:58 PM
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  • may i please just tell my story and ask for your suggestions? for past 6 weeks or so have had severe pain. Drs say that it seems to be muscle related after many tests ruling out joint and bone problems and kidney stone movement. (I do have psoriatic arthritis, kidney stones, and kidney cysts but they are all in good check right now.)Pain is a lot upper body, particularly shoulder areas. Painful to raise arms, push a button on radio scan, etc. Painful to move about from hip pain, fingers hurt, a lot of the symptoms are arthritis like to me.Have taken muscle relaxers, ibuprofen, and lortabs. Ibuprofen is typically what squelches the pain the most and keeps it somewhat in check for aoubt 6 to 8 hrs. Lortabs hold it for a couple of hours and muscle relaxers do not do that much. Sleeping is next to none. Have been getting up at 4 and going on into the office. Painful to be in bed. To move is unbearable.I have been to ER 3 times and in hospital twice for 10 days. They were sure it was kidney stones and then they thought pancreatitis.I have no clue what has brought this on. It seems to have had a sudden onset.I was told by my rheumatologist to move (I went back to the gym), take ibuprofen, moist heat and see him in another month now. He says it is not joint, that they are fine.I do think that the drs think I am nuts for complaining about this and being in so much pain. Of course, there are no answers.Any suggestions I really appreciate. Fibromyalgia is what is now on my mind.I am 50 yr old male. I have a great aunt and great uncle who had lupus. Much bloodwork has been done. Surely they would have checked for lupus, rights? I don't have all of those symptoms but occasionally someone will mention it and rarely I seem to have that face rash. I do know that the rheumatologist has told my wife that my SED rate is good.Thanks for any help.Scott
    Anonymous 42789 Replies
    • December 4, 2006
    • 07:31 PM
    • 0
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  • may i please just tell my story and ask for your suggestions? for past 6 weeks or so have had severe pain. Drs say that it seems to be muscle related after many tests ruling out joint and bone problems and kidney stone movement. (I do have psoriatic arthritis, kidney stones, and kidney cysts but they are all in good check right now.)Pain is a lot upper body, particularly shoulder areas. Painful to raise arms, push a button on radio scan, etc. Painful to move about from hip pain, fingers hurt, a lot of the symptoms are arthritis like to me.Have taken muscle relaxers, ibuprofen, and lortabs. Ibuprofen is typically what squelches the pain the most and keeps it somewhat in check for aoubt 6 to 8 hrs. Lortabs hold it for a couple of hours and muscle relaxers do not do that much. Sleeping is next to none. Have been getting up at 4 and going on into the office. Painful to be in bed. To move is unbearable.I have been to ER 3 times and in hospital twice for 10 days. They were sure it was kidney stones and then they thought pancreatitis.I have no clue what has brought this on. It seems to have had a sudden onset.I was told by my rheumatologist to move (I went back to the gym), take ibuprofen, moist heat and see him in another month now. He says it is not joint, that they are fine.I do think that the drs think I am nuts for complaining about this and being in so much pain. Of course, there are no answers.Any suggestions I really appreciate. Fibromyalgia is what is now on my mind.I am 50 yr old male. I have a great aunt and great uncle who had lupus. Much bloodwork has been done. Surely they would have checked for lupus, rights? I don't have all of those symptoms but occasionally someone will mention it and rarely I seem to have that face rash. I do know that the rheumatologist has told my wife that my SED rate is good.Thanks for any help.ScottOk, first I'm gonna touch on the subject of sleep.(This goes for EVERYONE! :-D)No matter WHAT condition you have, it CANNOT get any better with inadaquate sleep.I have been given Trazadone, Ambien, and Lunesta, but the Trazadone works much better. (try staying on it for a few months, then gradually ween yourself off of it, using something else to help you sleep, then eventually, you may be able to sleep unaided!)I was diagrosed with fibromyalgia in April, (thought I've known I have it for YEARS).I also have psoriasis, and am a bit worried of developing psoratic arthritis.My rhumetologist says that a lot of times, psoratic arthritis and FMS can coincide, and (in a lot of cases) mimick each other.The symtoms of Fibromyalgia arent just pain, that's just the biggie.Not much is known about how it works, but some doctors think that if may be a sensory disorder, causing pain receptors to misfire, and over react to pain, and can also cause other normal sensory reactions to be mistranslated by your body as pain.I, for instance, am botherd by smells. There's a certain parfume that doesn't just give me a headache, it makes my entire body hurt.Short, percussive (or staccato) speech or music, can really bother a person.And, oddly enough, the hum of a computer monitor, TV screen, or flourescent lights can drive some people NUTS! (not to mention it hurts both the eyes and the upper back/neck)Talk to you rhumetologist about Fibromyalgia, but also concider Chronic Myofascial pain.I also have CMP, and have experienced a LOT of the same symptoms as you."Pain is a lot upper body, particularly shoulder areas. Painful to raise arms, push a button on radio scan, etc. Painful to move about from hip pain, fingers hurt, a lot of the symptoms are arthritis like to me."Here's a WONDERFULL site that explains what Fibromyalgia AND Chronic Myofascial Pain are.http://www.sover.net/~devstar/(read the information for doctors and patients. There's some handouts to give to everyone you know if you are diagnosed.)(BTW, the pain in one hand and arm, may be carpal tunnle and/or Chronic Myofascial pain. Fibromyalgia is pretty much all over.)Good luck!Sheena
    Anonymous 42789 Replies
    • December 7, 2006
    • 06:51 PM
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  • :( Hi Everybody! My name is Michelle and I too have Fibromyalgia and also Rheumatoid Arthritis! I am so fed up that I sometimes feel like just giving up! I have been on sick leave since 2004 and I still do not feel better.To top it off I have a loving son who can hardly touch me without my whimpering in pain. It seems to me that I am always extremely fatigued and cannot seem to function well with day to day chores. I was not like this before and it is really very depressing. I was wondering if any of u have been diagnosed with abnormal pap smears because of R.A. or Fibro? Thanks in advance for reading my story! Your friend, Michelle
    rheumy 1 Replies
    • December 14, 2006
    • 02:10 AM
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  • I just want to wish everyone a MERRY CHRISTMAS!! And a pain free holiday too. Thanks to everyone who has posted here. We have our stories to tell, huh? LOL
    Anonymous 42789 Replies
    • December 14, 2006
    • 08:30 PM
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