If anyone can help me Id be so happy, even just for suggestions as Im desperate now!
I have a constant fatigue feeling in my hands and feet, like Im wearing heavy socks and gloves. They feel like Im moving them slowly, but Im not and that Im trying to move them through sand, that heavy dragging feeling. When really bad the feeling goes up to my knees and elbows but this is unusual. I feel like they are slightly swollen but to look at there is nothing, I also wonder if they mark quickly and that my veins poke out a lot. I think I may be just imagining this though! They feel so tired that they are extremely painful.
I have had blood tests, all it found was b12 deficiency which is now sorted but the pain is still there, MRI scan normal, x rays normal, nerve conduction tests normal, 2 neurologists happy, 1 rhuematologist happy, so they conclude its either fibromyalgia or ME/CFS.
I dont believe this as it is constant, no remission. It doesnt worsen with activity or get better with rest. I dont have any of the other symptoms of this condition so I think they are just fobbing me off.
Any help much much appreciated - thank you