Discussions By Condition: Muscle conditions

Does Fibromylagia Cause Extreme Itching/electric Shooting Pain,need Advice On Symptom

Posted In: Muscle conditions 14 Replies
  • Posted By: Anonymous
  • January 18, 2008
  • 10:47 AM

Hi there, really need advice on Fribromylagia.

I was diagnosed with this conditon last year after complaining for a year prior to that about my pain in my back/hip which was also effecting my ribs & my muscles aching all the time, but am really baffled & I am wondering if this Fibrmylagia.

I have read up on the condition & cannot find a couple of the symptoms I am experiencing.

1)For the past couple of months I have started to itch like made on many parts of my body, the face being the worse. There is no rashes what so ever & it seems to attack really bad at times where sometimes I also do experience a electric shock kind of pain with itchness on the same spot, There are times I am alright. It has got to the stage where I am even scratching whilst I'm asleep which is effecting my husbands sleep. I have noticed though when I have a mad itch attack, my heels start to really throb & my back/hip starts hurting again.

2)I am also experiencing my body needs to have a very good long stretch, about 2-4 times in the day, which at times feels good but also feels horrible, (if that makes sense?)

3)Also my balance is really bad, Went to the doctors who even said my balance was poor. Gave me some tablets,these did not work) went back saying they had not work, gave me a different tablet to take (these did not work either).

4) I have got slight athritis in both hands, I have had loads of blood work, the last being about 8months ago.The only test that came out positive, was the HLA-B27, but my doctor said you can have a positve result but this test does not say you have Ankylosing Spondylitis, many have positve results but never suffer with this condition. Have had a MRI scan on pelvic/lower back, nothing found.

Can anymore please advice me who also suffers with Fibromylagia if this is part of the condition as am quite confused, especially as well when I hear many suffer with extreme tiredness, yes at times I do get extreme tiredness, not that frequent. If anything my body feels extreme tiredness nearly everyday not my mind, I can stay up to about 2 in the morning, & still get up early.

Thank-you in advance for any advice received!!!!

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14 Replies:

  • You should visit www.fibroandfatigue.com, these centers can really help you. They can treat underlying infections that could be causing a lot of your symptoms, and when they are treated many times the symptoms of FM get better.
    Anonymous 42789 Replies
    • January 19, 2008
    • 04:52 AM
    • 0
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  • You should visit www.fibroandfatigue.com, these centers can really help you. They can treat underlying infections that could be causing a lot of your symptoms, and when they are treated many times the symptoms of FM get better.Thank-you for providing the above site which I really appreciate, but sadly I live in Britain, so am unable to use them.I have looked at many Fribromylagia sites & have even looked the condition up in books, also reading other Fibromylagia suffers on this site but not any of them mentions the itching I am suffering with or the freguent urge to really stretch. When I started to suffer with this many months ago (but it was only mild then), my doctor just said it was inflamation, had blood test negative. I forgot to mention my oldest lad who is 17yrs has now started to complain about his back & leg hurting him now & then, just how mine started. Firbomylagia if I'm correct does not run in familys. Going doctors later this week as need to find out what is this that is really going on, mainly really for my lads sake so he can get on the right treatment quickly!!! Thank-you once again!!
    Anonymous 42789 Replies
    • January 22, 2008
    • 00:45 AM
    • 0
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  • Hello 1810, Going through your post i feel we have few complaints which are common between us.I have been getting diiferent degrees of muscle pain all over the body right from the neck upto the toes since last 3 years.Worst affected parts are hips,legs,and ribs.I have itching all over the body since last 2 years and i dont get sleep easily at night.I go to sleep at varied time and usually my sleep lasts for 4-5 hours.I have done Rheumatic ,calcium,uric acid & potassium blood test but nothing suggestive came.Yes i had vitamin b12 less than the required for which i had injections and i am still taking ones in 2 months.For managing pain i take pain reliving pills once in a while and that too at night only, may be once in a week.Yes i take lot of ultrasound heat therapy from which i get relief from the aching pain.I take an ayurvedic medicine for strengthening the immune system of the body called GERIFORTE.MY email:calwalk81@hotmail.com
    Anonymous 42789 Replies
    • February 23, 2008
    • 08:23 AM
    • 0
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  • I went back to the doctors & had some blood work done to test for my kidneys/liver/iron etc as the doctor said these can cause itching, they all came back negative.My right hand side muscle of my back has got so much worse, where the pain is sickening & am finding walking very differcult because of the pain. I wake up in the night about every 2 hours due to my back muscle going into complete spasm, in the end I have to get up as it hurts too much. My itching can be really bad as well. I am now loosing my footing quite alot now, sometimes I trip over for no reason, or I just topple to the side as if I'm drunk (if only!!) The one thing I have noticed which has concerned me & my husband is now worried. My right shoulder has now dropped alot.I feel I am hitting my head against a brick wall with the doctors, I keep saying to them about all my symptoms but they are just not listening, again I have looked into Fibromylagia symptoms & none mention itching & (now) my shoulder dropping.I would appreciate any advice on this so I can aim in the right direction, as I really do not think this is Fibromylagia but I could be wrong!!!!!
    Anonymous 42789 Replies
    • February 24, 2008
    • 06:13 PM
    • 0
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  • I went back to the doctors & had some blood work done to test for my kidneys/liver/iron etc as the doctor said these can cause itching, they all came back negative.My right hand side muscle of my back has got so much worse, where the pain is sickening & am finding walking very differcult because of the pain. I wake up in the night about every 2 hours due to my back muscle going into complete spasm, in the end I have to get up as it hurts too much. My itching can be really bad as well. I am now loosing my footing quite alot now, sometimes I trip over for no reason, or I just topple to the side as if I'm drunk (if only!!) The one thing I have noticed which has concerned me & my husband is now worried. My right shoulder has now dropped alot.I feel I am hitting my head against a brick wall with the doctors, I keep saying to them about all my symptoms but they are just not listening, again I have looked into Fibromylagia symptoms & none mention itching & (now) my shoulder dropping.I would appreciate any advice on this so I can aim in the right direction, as I really do not think this is Fibromylagia but I could be wrong!!!!!Hi there,Since I posted this the other day I have since been back to the doctors about my shoulder as it has dropped alot. She also agreed that my shoulder was alot lower than the other & when she got me to bend as far as I could she said my right shoulder was not going in line with the other. I did aslo stress to her that my bottom of my spine is getting alot so much painful!!!She has now refered me back to the hospital so they can hoepfully find out what is causing this (fingers crossed)I would still like any advice on what is going on thank-you
    Anonymous 42789 Replies
    • February 28, 2008
    • 01:48 PM
    • 0
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  • I have been doing research on these symptoms because i have them, too. I have stumbled across some info on Multiple Sclerosis. You might want to research it. Many of the symptoms seem related.
    Anonymous 42789 Replies Flag this Response
  • Hello I was just recently diagnosed with fibromyalgia knowing i have had it for several years but my previous Dr did not believe in it,my new one does and is great i am on both cymbalta and lyrica not helping much yet but giving it more time,anyway i have the itching part and yes it can be maddening i get it more at night than during the day no rash just horrible itching kinda like from the inside i tried bendryl but it did not help .i wish i could b of some help but so far have not found much myself ...Good luck:)
    mytrose43 5 Replies Flag this Response
  • Hello I was just recently diagnosed with fibromyalgia knowing i have had it for several years but my previous Dr did not believe in it,my new one does and is great i am on both cymbalta and lyrica not helping much yet but giving it more time,anyway i have the itching part and yes it can be maddening i get it more at night than during the day no rash just horrible itching kinda like from the inside i tried bendryl but it did not help .i wish i could b of some help but so far have not found much myself ...Good luck:) I have the worst itchy feelings from head to toes. Getting my 2nd MR next week to see if it is MS. I use gabapention 300 mg 3x a day. It makes my life bareable now. I can sleep and function most of the day.
    samstarr 24 Replies Flag this Response
  • Hello I was just recently diagnosed with fibromyalgia knowing i have had it for several years but my previous Dr did not believe in it,my new one does and is great i am on both cymbalta and lyrica not helping much yet but giving it more time,anyway i have the itching part and yes it can be maddening i get it more at night than during the day no rash just horrible itching kinda like from the inside i tried bendryl but it did not help .i wish i could b of some help but so far have not found much myself ...Good luck:)hi I am have just been reading this blog site as I too have extreme itchiness all over,. more pronouced at night.. abnormal blood results.. high c-reative protein.. i take apo-doxepin and is a mild anti- anxiety as well as mild antidepressant.. but is a great antihistimine.. I am on the lowest dose of 10 mg.. it works soo well to help me sleep at night.. my husband is sleeping better as well.. all the best.. M
    Anonymous 42789 Replies
    • December 29, 2009
    • 01:58 AM
    • 0
    Flag this Response
  • After battling fibromyalgia (and numerous doctors) for almost 12 years I found a neurologist and rheumatologist willing to listen and diagnose me.The chronic fatigue,itching (nerves messing around), muscle spasms, numerour body points of pain, headaches, etc are all symptoms of fibromyalgia. They are also symptoms of other conditions such as MS, system lupus (SLE), etc and therefore require the care and ongoing watchful eye of a physician.It is your responsibility to report ALL changes in your condition in a TIMELY manner. I think you are doing a great job of that. Good for you! If you find nurses or others "blowing you off" just make an appointment and go in and see the doctor or insist on talking to the doc. The assures any diagnosis made is a good one.I was diagnosed after 12 years of doctors telling me "all your labs are normal", "all the tests look great", "You definitely don't have......" Well in March 2007 my brain could no longer handle the amount of pain messages it was getting; way too much pain! In less than 24 hours I went numb from head to toe. The ER doctor that saw me while I was numb arms to forehead, did a brain MRI and because it was "clean", diagnosed me with a "panic attack". Well let me just say I was just about ready to have one when he said that!I apparently am still having a panic attack here in January 2010....LOL. Moral of the story: manage your own health care and your doctors. If you are in pain, call them. You have a right to reasonable pain management.Here's what I have found effective:muscle spasms: Zanaflex (take daily)pain management: Celebrex, gabapentin, Topamax (extra benefit you'll loss some weight! and it worked very well for pain with gabapentin), Savella (recently approved for fibromyalgia)Sleep: Ambien CRUnfortunately I moved and my new PCP will not script Ambien so I cannot sleep (Lunesta, yuck). I ALWAYS sleep but am exhausted; that is because we don't sleep deep enough, long enough to be rested. Ambien CR allowed me to sleep deep enough not to be draggy all day every day which was good.For the "itching" I would insist on seeing a neurologist if you are not being followed by one already. They can rule out other conditions and readily adjust your medication to alleviate that problem.
    Anonymous 42789 Replies
    • February 7, 2010
    • 02:10 AM
    • 0
    Flag this Response
  • Hi there, really need advice on Fribromylagia.I was diagnosed with this conditon last year after complaining for a year prior to that about my pain in my back/hip which was also effecting my ribs & my muscles aching all the time, but am really baffled & I am wondering if this Fibrmylagia.I have read up on the condition & cannot find a couple of the symptoms I am experiencing.1)For the past couple of months I have started to itch like made on many parts of my body, the face being the worse. There is no rashes what so ever & it seems to attack really bad at times where sometimes I also do experience a electric shock kind of pain with itchness on the same spot, There are times I am alright. It has got to the stage where I am even scratching whilst I'm asleep which is effecting my husbands sleep. I have noticed though when I have a mad itch attack, my heels start to really throb & my back/hip starts hurting again. 2)I am also experiencing my body needs to have a very good long stretch, about 2-4 times in the day, which at times feels good but also feels horrible, (if that makes sense?)3)Also my balance is really bad, Went to the doctors who even said my balance was poor. Gave me some tablets,these did not work) went back saying they had not work, gave me a different tablet to take (these did not work either).4) I have got slight athritis in both hands, I have had loads of blood work, the last being about 8months ago.The only test that came out positive, was the HLA-B27, but my doctor said you can have a positve result but this test does not say you have Ankylosing Spondylitis, many have positve results but never suffer with this condition. Have had a MRI scan on pelvic/lower back, nothing found.Can anymore please advice me who also suffers with Fibromylagia if this is part of the condition as am quite confused, especially as well when I hear many suffer with extreme tiredness, yes at times I do get extreme tiredness, not that frequent. If anything my body feels extreme tiredness nearly everyday not my mind, I can stay up to about 2 in the morning, & still get up early.Thank-you in advance for any advice received!!!!You may want to check out a possible allergy to any medicines. Good luck
    Anonymous 42789 Replies Flag this Response
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  • hi I am have just been reading this blog site as I too have extreme itchiness all over,. more pronouced at night.. abnormal blood results.. high c-reative protein.. i take apo-doxepin and is a mild anti- anxiety as well as mild antidepressant.. but is a great antihistimine.. I am on the lowest dose of 10 mg.. it works soo well to help me sleep at night.. my husband is sleeping better as well.. all the best.. MI went to http://www.fibromyalgiatreatment.com/GuaiProtocol.htm and read about this. I take one 12 mucinex everyday and it has helped me so far, although I still have to apply some benedryl creme from time to time, the pain is much, much less!
    Anonymous 42789 Replies Flag this Response
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    Tonglimit 2 Replies Flag this Response
  • I know that this thread is old,but still. M,you are going into kidney failure.High creatnin is a sure sign.I am in stage 4.I pray to God that you get this.I am sorry.
    bloodreigning 1 Replies
    • October 1, 2011
    • 05:59 PM
    • 0
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