Hi ~ I was told by my the school nurse to ask my doc about my son having possible Marfans Syndrome ~
He is tall and thin, 5'6" and 94 lbs. He is 12.5 years old. His scoliosis is minimal, 4 degrees, he is flat footed, and the indented sternum. Complains of legs hurting alot (we thought just growing pains) and has had a murmur that has been heard on rare occassions. Is it possible to have these symptoms without it being marfans? Or are his chances of having it pretty high? His dad has sleep apnea, the very high pallete, the long toes that look like they have extra joints. I left a message with his doc to call me and I'm nervous that they will think I am just a mom who is over worried and silly to be asking and that it isnt it ~ His head is not thin, it is round actually. Would love any input ~ TX! Robin ~
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