Discussions By Condition: Muscle conditions

Chronic tenderness/pain...docs not helpful

Posted In: Muscle conditions 9 Replies
  • Posted By: critterseverywhere
  • October 7, 2006
  • 08:24 PM

For about 3 years now, I have had chronic extreme tenderness over my entire body (large muscle groups on legs, buttocks, & low back the worst). The closest I've been able to describe it that it's as if my entire body is a giant, severe bruise. The lightest pressure is painful. Exercise doesn't make it better or worse. Neither do dietary changes. I used to have extremely sensitive skin to go along with it (same type of sensitivity as you would have with a sunburn, but without the hot-feeling to the skin). My GP gave me a tentative diagnosis of Fibromyalgia and a prescription for Cymbalta. The Cymbalta helped a LOT with the skin sensitivity, but not so much with the soreness.

I don't really have any of the other symptoms of Fibro (almost no joint pain--only in the finger joint I shattered in college--for example) and am not convinced that this diagnosis is correct.

I have had a LOT of bloodwork done...everything comes back normal (thyroid, etc).

I live in an extremely rural area and the doctors are not terrific. At this point they've pretty much told me that they can't do anything else for me other than give me some serious painkillers if I need them.


Anyone have any suggestions? Or heard of symptoms like this?

Thanks!

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9 Replies:

  • Hi..what you describe sounds familiar to TPS, or Trigger-point syndrome..as I have that..where for unknown reasons, your body is extremely sore,with a bruised feeling, but not directly large muscles masses..mine is if someone pokes you..its extreme pain!! I too was diagnosed with Fibromylasia..am as well not sure if the Dr's are right...Good luck! Take Care,Kim
    Anonymous 42789 Replies
    • October 10, 2006
    • 07:32 PM
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  • I have had this type of pain for the last 15 years. I have been to numerous doctors to find out what is causing it. My pain is only on my left side, mainly mid-low back, hip, outside of thigh and sometimes to my heel. I currenty take 50mg amitriptyline at night to help me sleep and also to relieve some of the pain. A rheumotologist prescribed it about 14 years ago. He didn't have an answer as to what was causing it. I wish someone could point me in the right direction in getting help.
    Anonymous 42789 Replies
    • November 19, 2006
    • 10:11 PM
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  • I myself have been through the tenderness and joint pain for years. I finally got a diagnosis of Fibromyalgia and Muscle Skeletal Disease. My rhemo had precribed Cymbalta, Tramadol, And Trazadone for my symtoms. I have recently had a skin cancer develop and taken off and now they have found a mass in the thyroid. All my test have came back normal from arthritis' to lupus to whatever. My thyroid functions are normal. I have been told that stress and the mind can make the pain more intense so try to alleveate all the stress in your life. I had to give up my Policewoman job because of this disease. I feel the same way as you all do. There has to be something that causes this NOT Fibro cause all it is a diagnosis of exclusion. If any of you find a true diagnosis please let me know.
    Anonymous 42789 Replies
    • November 21, 2006
    • 00:27 PM
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  • It seems to me that you are suffering with Fibromyalgia. I have been living with F.M.S. for 12 years now and trust me I know how frustrating it is. I was diagnosed at a time when most Docs. did not even know what it was and made me feel crazy!!!!Of course, I am not a Rheumatologist and I in no way can diagnose you BUT I live with this crap daily and you described almost all symptoms associated with F.M.S.Today, they have advanced tremendously with this disease. In studies almost all F.M.S. patients have shown that they do not respond to pain as a normal person would. Pain is exagerrated when the signals are sent to the brain....ex. a stubbed toe feels like a knife in the foot....a pat on the shoulder can feel like a brick being thrown on you...it's crazy but at least they are figuring out that are actual brain abnormalties causing this disease.New meds. are being tested every day. Anti~depressant are really beneficial for lack of chemical production while sleeping, etc.....I hope that I helped a bit. There is hope and you can live a good life with the right meds. and excercise......good luck!!
    Anonymous 42789 Replies
    • November 27, 2006
    • 04:23 AM
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  • I've been given anti-depressants for my fibromyalgia, including Cymbalta.It also helped me with the skin sensativity (that kind of pain is nerve pain.)I'm on this pain medication called Ultracet. It actually helps!It may make you a little goofy till you get used to it, but it really is helping me.Also, Fibromyalgia doesn't always come with painfull joints. I have Fibromyalgia AND Chronic Myofascial Pain. (trigger point syndrome)Sometimes CMP is misdiagnosed as Fibromyalgia, because of the whole "11 out of 18" tender points test. (That was originaly used just as a diagnostic for a clinical trial, not as an OVERALL diagnostic tool)TENDER points are usually centered around those charts you may have seen, but TRIGGER POINTS can happen ANYWHERE. Untill you can get good treatment for these two, make sure that you are addressing all other posible causes of pain. (Fibromyalgia causes pain signals to me amplified, and causes other senses to be mistranslated as pain. I.E. certain smells and bright lights make your whole body hurt.) Get to a physical therapist, and a pain management doctor.(the physical therapist would help with both trigger point release therapy, but also with strengthening exercises. The last thing you want is muscle atrophy. Been there, done that...)No matter how good of a doctor yours may be, they are not specialists in managing pain. Make sure you're getting LOTS of GOOD sleep. You may need medications to do that. I'm on Flexaril (muscle relaxer) as needed at bedtime, and if that doesn't work, I use Trazadone to help get into a deep sleep. Good luck, and if there's anything I can help with, just ask, Sheena
    ShawneeGirl 37 Replies
    • December 8, 2006
    • 06:16 PM
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  • I have been diagnosed with fibro, cfs, and trigger points since I was 17. Now I am 25. I just started going to a pain management therapist because the pain meds don't work. My first appointment was pretty good. They put me on something like a tinge unit but newer and better. That was great for the trp's. I have a physical therapist there, a psychologist for the frustration, depression, and anxiety, and also a sleep therapist. I would check out these pain management clinics and begin working out to their orders.Now if I can get the rest of my problems solved.... ;)Leah
    Chameleah 2 Replies
    • December 8, 2006
    • 06:25 PM
    • 0
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  • I am not sure but I have been tested for all the same things as you. I also have a tumour in my thyroid. I suffer from chronic pain in all joints as well as cracking and grinding in the joints. I have muscle and bone pain aswell as weakness. This has all worsened over time. Sometimes it is hard to move. A massage is out of the question because it is just too painful. Other symptoms I have are chronic infections with little or no response to antibiotics. Chest pain, headaches, hot flashes, chills and night sweats. I am always tired to the point of exhaustion it doesn't matter how much sleep I get. My thyroid has normal function despite the tumour. I am always in pain and always sick with whatever bug is in the air and my recovery takes forever (weeks+). My conditions have worstened over the last 5 years to the point where it is affecting my job. I am always ill. I am a 33 year old female
    Anonymous 42789 Replies
    • January 29, 2007
    • 00:48 AM
    • 0
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  • For years, i have had increase of pain in muscles, best described as the way one feels when you exercise heavily, and havent for years, and your whole body is so tender and painful from not using those muscles for a very long time. Thats how i best can describe this terrible ailment. Im in cronic pain every single day. Im so sick of pain, but luckily have a high torerance. Cutting out white from my diet does help some, sugar, potatos, etc...seeing specialist next week for what i hope will be some diag. Every few months, I crash, and only sleep can help. God, i feel like some lazy **m when it happens. Pain wears you out, and after months of it, i just crash for about 3 days.
    jillharling 1 Replies
    • October 9, 2007
    • 02:05 PM
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  • Hi Everyone, I'm your local neighborhood Chiropractor in Kennesaw, Georgia. I have patients that deal with these problems all the time. I have found several things that help in addition to regular chiropractic adjustments.1. Lots of Water to flush the system of built up toxins. Take your body weight number and divide by 2. That how many oz of water you need to drink daily. ie, 100 pounds of weight = 50 oz of water daily.2. A powdered Calcium/Magnesium supplement taken at bed time. you can get this from your health food store.3. Do not use anti-prespirants. The Aluminum is very toxic to you. Use a deoderant instead. Do not drink canned beverages. Again the aluminum. Ladies, do not use Blue Eye shadow, again aluminum and get rid of any aluminum cookwear.4. Take Apple cider vinegar (the brown kind) 1 to 2 oz daily. You can make this more palitable by using one can of white grape juice concentrate, one can of water and one can of applecider vinegar. Keep in the frig, real cold and take three oz every morning.5. If you are not already doing so, find a local chiropractor and start getting adjusted. You just might be amazed at how well you respond. 6. You may contact me directly at drjimeaton@yahoo.com Best of luck and let me know how this works for you.Doc Eaton
    Anonymous 42789 Replies
    • December 27, 2007
    • 11:27 PM
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