Discussions By Condition: Muscle conditions

Chronic Grinding Joint Pain (neck and shoulders)

Posted In: Muscle conditions 3 Replies
  • Posted By: MissComunikation
  • October 28, 2007
  • 06:35 AM

I've had chronic pain for more than 3 years now. I'm only 22 and appear to be in good health otherwise. I've seen 3 orthopaedic doctors, 2 chiropractors, 3 physical therapists, 1 neurologist, 1 pain specialist, and 2 internal medicine doctors. I've had x-rays and an MRI. I've tried ultram, vicodin, excedrin, tylenol, muscle relaxer, and herbs/vitamins. I am allergic to advil, so I can't try that. I have been tested for Rheumatoid Arthritis, Lupus, rotator cuff injury...all negative. All of the doctors agree that I am EXCEPTIONALLY hypermobile. Besides that though, they throw up their hands and say they have no idea what's wrong with me.

I'm in constant pain, stabbing, burning, grinding. Sometimes it feels like someone stuck a knife in between my joints and won't take it out. I'm worse when I'm sitting for long periods of time (though nothing makes it better except lying down on a heating pad, and even then it only subsides, not disappears). On the pain scale (0-10 with 10 being the worst), I'm never below a 6 and can hit a 9 on an exceptionally bad day. My shoulders, shoulder blades, upper back, and neck joints constatly grind and slip out of place. I can crack them back, but they will slip again 5 seconds later. I got worse after seeing the chiropractors. I think, since I'm so hypermobile and have such lax joints, that made the joint even LESS stable. It's like my ligaments/tendons are too loose to hold my joints together. I feel like I'm literally falling apart...

I have yet to meet anyone else with these symptoms. I'm tired of trying to motivate my doctors to FIX ME! Not to mention, I don't know where else to go! Is there anyone out there experiencing the same symptoms as me? Do you know what's wrong? :confused:

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3 Replies:

  • Hi, welcome to the agony of the hypermobile body. I was diagnosed 7 years ago with the connective tissue disorser Ehlers Danlos (type 3. ) If you go to my profile you will find I have the Ehlers Danlos website as my link. Take a look there for others like yourself. The forum is a useful tool for finding and asking questions. Take careMidge
    Anonymous 42789 Replies
    • October 28, 2007
    • 04:33 PM
    • 0
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  • You did not mention trying acupunture - please try it!DOM
    acuann 3080 Replies
    • October 29, 2007
    • 03:32 AM
    • 0
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  • I've had chronic pain for more than 3 years now. I'm only 22 and appear to be in good health otherwise. I've seen 3 orthopaedic doctors, 2 chiropractors, 3 physical therapists, 1 neurologist, 1 pain specialist, and 2 internal medicine doctors. I've had x-rays and an MRI. I've tried ultram, vicodin, excedrin, tylenol, muscle relaxer, and herbs/vitamins. I am allergic to advil, so I can't try that. I have been tested for Rheumatoid Arthritis, Lupus, rotator cuff injury...all negative. All of the doctors agree that I am EXCEPTIONALLY hypermobile. Besides that though, they throw up their hands and say they have no idea what's wrong with me.I'm in constant pain, stabbing, burning, grinding. Sometimes it feels like someone stuck a knife in between my joints and won't take it out. I'm worse when I'm sitting for long periods of time (though nothing makes it better except lying down on a heating pad, and even then it only subsides, not disappears). On the pain scale (0-10 with 10 being the worst), I'm never below a 6 and can hit a 9 on an exceptionally bad day. My shoulders, shoulder blades, upper back, and neck joints constatly grind and slip out of place. I can crack them back, but they will slip again 5 seconds later. I got worse after seeing the chiropractors. I think, since I'm so hypermobile and have such lax joints, that made the joint even LESS stable. It's like my ligaments/tendons are too loose to hold my joints together. I feel like I'm literally falling apart...I have yet to meet anyone else with these symptoms. I'm tired of trying to motivate my doctors to FIX ME! Not to mention, I don't know where else to go! Is there anyone out there experiencing the same symptoms as me? Do you know what's wrong? :confused:I have all the same problems you have, and have also been to see all the doctors you have, and all my tests come back negative as well. I have had this problem with my left shoulder for around 3 years now, but now my right shoulder is doing the same. It is very painful. And almost impossible to play sports of any kind. I have no answer for you on why, but try to stay positive, your not the only one out there living with this problem,
    Anonymous 42789 Replies
    • January 6, 2011
    • 11:35 PM
    • 0
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