Discussions By Condition: Muscle conditions

Anyone ever seen this?

Posted In: Muscle conditions 4 Replies
  • Posted By: Anonymous
  • January 17, 2010
  • 01:55 AM

Hi and thank you for reading this. I hope someone has an idea on what is afflicting my husband. It all started about 6 months ago with a pain in his right hip. We were then told it was just a back muscle and to go on Methylprednisone and it would clear up. It did lessen but never totally went away. It got worse about 2 months later and he was put back on the Methylprednisone and it only got a bit better. The pain now was going down the outside of his right leg and in the right side of his groin. At this point he was still able to walk, however a month later the pain started on the left side and mimicked the other side in the same places.

We were sent to a spinal surgeon and had MRIs and Xrays done. All showed minimal disc bulging but it was suggested to begin cortisone epidural injections. He went for the first one, but was in excruciating pain after it and it became evident that this not the path to cure the pain. At this point his pain was an 8 on the pain scale (1-10) and nothing brought relief. One morning he awoke and his right arm was also in excrutiating pain and was weaker than the other. We went to the doctor and he was sent into the hospital for tests to be ran. He saw neurologists, orthopeds, etc...all the tests (MRI with and without contrast, EMGs, more Xrays) concluded that nothing was wrong with him. So after 4 days he was discharged with no diagnosis, still having pain of an 8 at all times and not sure what to do next. We were also told to not continue the epidural injections because this was not disc related.

I want to also mention that with this he has eye pain that he says "feels like my eyeball is going to pop out of the socket". Since he had extensive MRIs of the brain, there is no mass up there to cause the feeling. Lately his stomach has been painful and there is a bruise on it with no injury to it. He is also suffering from numerous cramps in his feet throughout the day. My husband cannot walk without a walker, and I have to help him stand up, get out of bed, use the toilet, get dressed, etc. He has had numerous blood tests done and we were told that there was no virus, bacteria, or diabetes causing this.

Up until 6 mths ago, my husband was a phsyically active person with no health probelms. He is now on a Fentanol (prob not spelled right) patch for pain which doesn't work and also Vicodin which again does not control the pain. He was also put on Gabapentin 200mg 3 times a day which does nothing but give him an upset stomach.

Probelms that occured in order:
Right hip pain...down to right knee
Right groin pain
Left hip pain...down to left knee
Left groin pain
Right arm pain and weakness
Right and Left Eye pain
Also has cramping in feet
Every test done has said he is normal

If anyone knows please help...I feel like I'm watching him slowly die.

Reply Flag this Discussion

4 Replies:

  • Are you sure your husband does not have Fibromyalgia..... It does not hurt to see a Rheumatologiast. Fibro does not show up on any tests at all.. It does however have a trigger point test to confirm the syndrome. I currently live with Fibro. i swear just woke up one day and it was here.. Any questions feel free to email me at sahagunc@sbcglobal.net
    sahagunc 1 Replies
    • January 17, 2010
    • 07:00 AM
    • 0
    Flag this Response
  • Are you sure your husband does not have Fibromyalgia..... It does not hurt to see a Rheumatologiast. Fibro does not show up on any tests at all.. It does however have a trigger point test to confirm the syndrome. I currently live with Fibro. i swear just woke up one day and it was here.. Any questions feel free to email me at sahagunc@sbcglobal.netThank you for replying!Yes they had checked him for that and said he did not fit the criteria for it (trigger points, GI issues, etc). We have and yet another appt ( I think we are up to the 25th dr) on Tuesday. Hopefully we will be able to have some more direction. I just can't believe that he can be the only person who has ever encountered this. Just honestly wish we had a name to this disorder. One more piece of info I forgot to put in is that he is 39 yrs old and for some reason (just noticed this tonight) his feet are so dry that the skin is literally peeling off. It is white, scaly and comes off in large patches. He has never had dry feet in the 7 yrs I have known him so this is quite shocking to us.
    Anonymous 42789 Replies
    • January 18, 2010
    • 02:16 AM
    • 0
    Flag this Response
  • Perhaps he has a small leak of his spinal fluid. It could be so small it has gone undetected by the MRIs etc. Ask a trustworthy doctor who will not scoff at this as many do.
    Anonymous 42789 Replies
    • January 27, 2010
    • 04:12 AM
    • 0
    Flag this Response
  • Perhaps he has a small leak of his spinal fluid. It could be so small it has gone undetected by the MRIs etc. Ask a trustworthy doctor who will not scoff at this as many do.Thank you for your suggestion but we finally have received a diagnosis!!! My husband has Polymyalgia Rheumatica which is rare in someone his age (38) and they never considered it. He is being treated with Prednisone, Gabapentin, Savella, and Fentynal. Hopefully in a year he will be fully recovered but we are so happy to finally have a positive light after so many months of not knowing if he was going to end up paralyzed or worse.This disease brought him to being in a wheelchair 60% of the time and using a walker the other 40%. The saddest part on this disease is because it happened so quickly that many relatives figured he was "faking it". Sadly we have realized who really cared for us through these past 6 mths and who didn't. My sympathy goes out to anyone who ever has this or knows anyone with this disorder. It literally can disable you overnight and as his only caregiver it has been extremely hard watching him suffer in so much pain. Thank you to all who read and responded and to anyone else who read this post. I hope that what we went through will help someone else who reads these posts looking for answers.Good luck to everyone in search of answers!
    Anonymous 42789 Replies
    • January 31, 2010
    • 06:18 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.