Hi and thank you for reading this. I hope someone has an idea on what is afflicting my husband. It all started about 6 months ago with a pain in his right hip. We were then told it was just a back muscle and to go on Methylprednisone and it would clear up. It did lessen but never totally went away. It got worse about 2 months later and he was put back on the Methylprednisone and it only got a bit better. The pain now was going down the outside of his right leg and in the right side of his groin. At this point he was still able to walk, however a month later the pain started on the left side and mimicked the other side in the same places.
We were sent to a spinal surgeon and had MRIs and Xrays done. All showed minimal disc bulging but it was suggested to begin cortisone epidural injections. He went for the first one, but was in excruciating pain after it and it became evident that this not the path to cure the pain. At this point his pain was an 8 on the pain scale (1-10) and nothing brought relief. One morning he awoke and his right arm was also in excrutiating pain and was weaker than the other. We went to the doctor and he was sent into the hospital for tests to be ran. He saw neurologists, orthopeds, etc...all the tests (MRI with and without contrast, EMGs, more Xrays) concluded that nothing was wrong with him. So after 4 days he was discharged with no diagnosis, still having pain of an 8 at all times and not sure what to do next. We were also told to not continue the epidural injections because this was not disc related.
I want to also mention that with this he has eye pain that he says "feels like my eyeball is going to pop out of the socket". Since he had extensive MRIs of the brain, there is no mass up there to cause the feeling. Lately his stomach has been painful and there is a bruise on it with no injury to it. He is also suffering from numerous cramps in his feet throughout the day. My husband cannot walk without a walker, and I have to help him stand up, get out of bed, use the toilet, get dressed, etc. He has had numerous blood tests done and we were told that there was no virus, bacteria, or diabetes causing this.
Up until 6 mths ago, my husband was a phsyically active person with no health probelms. He is now on a Fentanol (prob not spelled right) patch for pain which doesn't work and also Vicodin which again does not control the pain. He was also put on Gabapentin 200mg 3 times a day which does nothing but give him an upset stomach.
Probelms that occured in order:
Right hip pain...down to right knee
Right groin pain
Left hip pain...down to left knee
Left groin pain
Right arm pain and weakness
Right and Left Eye pain
Also has cramping in feet
Every test done has said he is normal
If anyone knows please help...I feel like I'm watching him slowly die.