I'm a 38 old woman who was diagnosed with Perthes aged 3. My Father was also
a sufferer which made my mother extra vigilant as it is supposed to be a hereditery condition. When I was 4 years old I was put in traction for 5 weeks and then had to re-learn how to walk. After which I still had limited movement in my right hip and just stiffness in the left hip. Was advise to swim, cycle and do very light gymnastics. Right hip gradually just kept gettin worse and by the time I was 14 I was advised to avoid all contact sports, no running, light cycling and to keep swimming.
At age 37 condition of right hip was so bad it was decided (on the NHS) that for me to have any sort of life my hip needed replaced. It's now been 14 weeks since my Op and very gradually I'm finding my feet. The first six weeks were ***l - light exercise as shown by a physio and at night I could only lie on my back, so there were weeks of sleepless nights. My right leg was almost two inches shorter then my left and I had been using a walking cane as an aid as well as working 8hr shifts in catering. Now my legs are the same length - which is very strange; only a perthes sufferer will understand this. My right leg has movement which I never dreamed imaginable. I still have pain, but it's not bone pain; it's muscular pain as I'm using muscles which the disease had deteriorated. So I've slowly to build up these once never used muscles. It's s slow, hard progress, but with hard work and determination I'm sure I'll be walking near enough normally soon. Don't ever give in to this disease. Keep gently exercising and if you get the offer of a replacemanet - go for it.
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