Discussions By Condition: Multiple Sclerosis

So tired

Posted In: Multiple Sclerosis 28 Replies
  • Posted By: Anonymous
  • August 1, 2006
  • 06:16 PM

After years of having werid symptoms and doctors saying its in my head, I found out it really was! I had an MRI and found out I have lessions on my brain. Now I have two problems, there is not enogh evidence to prove what it is and I keep being told Im to young to have these problems. I am 24 and female so over course it's hormones or depression:mad: . I was told its MS but there isn't enough evidence to prove it and start treatment. Now I'm trying to get disability and its hard, I'm so sick of trying to prove and fight that I am truely sick! Is it possible that the disease will get worse and make more lessions to finally prove whats wrong? :confused:

Reply Flag this Discussion

28 Replies:

  • After years of having werid symptoms and doctors saying its in my head, I found out it really was! I had an MRI and found out I have lessions on my brain. Now I have two problems, there is not enogh evidence to prove what it is and I keep being told Im to young to have these problems. I am 24 and female so over course it's hormones or depression:mad: . I was told its MS but there isn't enough evidence to prove it and start treatment. Now I'm trying to get disability and its hard, I'm so sick of trying to prove and fight that I am truely sick! Is it possible that the disease will get worse and make more lessions to finally prove whats wrong? :confused:
    Anonymous 42789 Replies Flag this Response
  • Hi.I don't know if you will get this as I just registered and this info deals with ms.,which is a big money makers for many and so there is quite a bit of hate out there with any contrary info .I hope you will read this. Go to http://www.davidwheldon.co.uk/ms-treatment.html and good luck.Just ctrl the site and read.I know it has gotten me back on my feet.I am not out of the woods but I can see the fields beyound and feel the sun.I know you are pretty young to get the lesions but there is a good chance yours will clear up completely. Us oldsters(55) will have to be glad to get rid of the new ones.
    Anonymous 42789 Replies
    • August 27, 2006
    • 04:16 PM
    • 0
    Flag this Response
  • I'm 36 years old my first MRI was done 6 months ago when the radiologists impression was that I had MS plaque 3 or 4 spots in the white matter of the brain but my doctor just told me that it came from years of smoking and that I should quit, so I did. He said that I should have a follow up MRI in six months . Last month was six month so I went for it. I go see my doctor for the result this coming Thursday, I really couldn't wait so I picked up a copy of the MRI and the radiologists impression this time is that I have active and progressive MS. In a six month time period I no longer have plaque but now I have about 9 or 10 lession through out my white matter of the brain all ranging in different sizes. I really am scared to go to the doctors now but I really need to ask him some questions.
    Anonymous 42789 Replies
    • September 13, 2006
    • 00:20 AM
    • 0
    Flag this Response
  • After years of having werid symptoms and doctors saying its in my head, I found out it really was! I had an MRI and found out I have lessions on my brain. Now I have two problems, there is not enogh evidence to prove what it is and I keep being told Im to young to have these problems. I am 24 and female so over course it's hormones or depression:mad: . I was told its MS but there isn't enough evidence to prove it and start treatment. Now I'm trying to get disability and its hard, I'm so sick of trying to prove and fight that I am truely sick! Is it possible that the disease will get worse and make more lessions to finally prove whats wrong? :confused:I feel your pain..literally. I am 32 years old and have had leg "tremors" for about 2 years now. I never really thought much of it until here recently when it started on my left inner groin area and I completely lost feeling in both my legs. When the feeling submerged, I still had leg cramps like charlie horses, needle sinsation, burning and ultimately came falling. This all has gone on since September 3rd, my daughter's birthday. After going to the ER, I was sent to a neurologist where I have had one MRI , and an EMG. I am going back Monday for another MRI on brain, neck, spine and cervic, and also going for a spinal tap. All the tests are pretty scary, especially when they dont find something. I mean, yes its a relief, but its not. I think not knowing what is wrong is almost as bad as telling you the worst. Good luck to you, because I feel your pain and confusion. All I know is I might have MS is what they are telling me.
    Anonymous 42789 Replies
    • September 16, 2006
    • 00:31 PM
    • 0
    Flag this Response
  • Life can be soooo frustrating.....:confused: I have been having some new symptoms these past two weeks that have caused me to go to the Drs. They are: tingling in face, mouth, eyes, legs, toes, hand. Also weird eye movements and focusing. Limbs going heavy. General tiredness. Cold sensation on toes with numbness. cold sensation back of tongue. My mum had MS - a very aggressive form.I have expressed to the Dr that I would like to have an MRI done but they are so unwilling to do them. I understand too that even having one done it could show up something or might not and even then you still don't know what it is. It's not until the disease really progresses that they can tell what it is - usually by then it has done permanent damage. The best we can do is educate ourselves to help our bodies heal themselves. Natural therapies are the best way - get back to nature as best as you can. Exercise, sunshine, lots of fruit and veges and a good food supplement. this is what I am going to do for myself because past experience has left me with little faith in the Drs.I think they should be called Symptomologists!!!!! not PhysiciansI am going to try and get an MRI done soon especially if any new sypmtoms show up.Could anyone who has been definitely diagnosed please let me know what your early symptoms were. thanksAll the best to everyone
    Anonymous 42789 Replies
    • September 20, 2006
    • 04:46 AM
    • 0
    Flag this Response
  • Life can be soooo frustrating.....:confused: I have been having some new symptoms these past two weeks that have caused me to go to the Drs. They are: tingling in face, mouth, eyes, legs, toes, hand. Also weird eye movements and focusing. Limbs going heavy. General tiredness. Cold sensation on toes with numbness. cold sensation back of tongue. My mum had MS - a very aggressive form. I have expressed to the Dr that I would like to have an MRI done but they are so unwilling to do them. I understand too that even having one done it could show up something or might not and even then you still don't know what it is. It's not until the disease really progresses that they can tell what it is - usually by then it has done permanent damage. The best we can do is educate ourselves to help our bodies heal themselves. Natural therapies are the best way - get back to nature as best as you can. Exercise, sunshine, lots of fruit and veges and a good food supplement. this is what I am going to do for myself because past experience has left me with little faith in the Drs.I think they should be called Symptomologists!!!!! not Physicians I am going to try and get an MRI done soon especially if any new sypmtoms show up. Could anyone who has been definitely diagnosed please let me know what your early symptoms were. thanks All the best to everyone I know how you feel. I do have MS. Diagnosed 2 1/2 years ago. I first went in the hospital for menegitis. I was there for 17 days. They said if I had waited one more day I would have been in a coma. Once I got out of the hospital I felt great. On the fourth day I couldn't walk. My mom called by doctor and had to go in for more tests. 5 weeks later my doctor called and I had to go to another hospital. 2 complete days of nothing but tests, x-rays and tons of questions. On the 8th day I had to have brain surgery because of the lesions on the brain. Every thing they did came back negative for anything. So I had to have a 3rd spinal tap done. That came back positive for MS. My question is could having menengitis have caused the MS?
    mombowl 1 Replies
    • October 11, 2006
    • 06:22 AM
    • 0
    Flag this Response
  • Hi - I am also "KatieLou"!! I forgot that I had signed in under that name and have reregistered under the name I usually use...MS brain fog?? Well since my last post I have had an MRI done and they have found a 2cm lesion in the brain stem - in the pons left side. They still aren't saying a definite dx of MS but that is high on the list.I go back in 2 weeks for another MRI and other test. My fatigue is worse and having lots of sensory symptoms and cognitive symptoms going on. Will keep you posted. All the bestLouise
    kimberleydust 15 Replies
    • November 8, 2006
    • 11:39 AM
    • 0
    Flag this Response
  • I was just diagnosed with MS also. I am 57, soon. Told I am generally to old to contract the disease statistically. Normally the age group is from 20-35, your group which leads me to the conclusion you are getting bad advice. There is a protien ration that they do an Electrophorisis on, kind of like an DNA imprint through gel, except I think this is by electrical separation.Not sure because my file in in the car but it is something like Img. The ratio should be within limits. If your doctor has not done a spinal tap and diagnoised you just off of MRI lesions, he may not know what he is doing. If you want to chat further, I am jgageokc@hotmail.com. Good luck and God be with both of us. :) :confused: :cool: :D
    jgageokc 1 Replies
    • November 8, 2006
    • 07:18 PM
    • 0
    Flag this Response
  • When I go down to Perth on the 20th november for another MRI and evoked potentials I will be asking to have any other tests that will determine for sure what is going on. I can't stand not knowing any longer. I know for sure there is the lesion that is causing some of the symptoms but just need to know what is coused the lesion. I don't think they can go on statistics any more as to whether you can have a disease or not because people are getting things at all ages now so the statistics will change eventually. Just because you are in your 50's before dx doesn't mean you didn't get it heaps younger which is often the case with MS. Kind regardsLouise
    kimberleydust 15 Replies
    • November 8, 2006
    • 11:13 PM
    • 0
    Flag this Response
  • i to have strange symptoms ie stinging and numbness top half of body noby knows wot it is but im not giving up yet,keep nagging them and im sure ull get somewher in the end,goodluck and let me know the outcome.
    dyer1969 1 Replies
    • November 21, 2006
    • 10:46 AM
    • 0
    Flag this Response
  • I have been dealing with symptoms for almost a year now. I have dizzyness, lethargy, hand tremors and weakness in my legs off and on. My symptoms seem to come and go. I have had 3 mri's. The first was after a car accident in 1999. I had small punctate areas of deep white matter changes on my brain which they attributed to the accident at the time. (I was ejected from a car window 15 feet). I didn't start having these symptoms until I started a stressful job. I had a repeat MRI in which they said these lesions are more stable than before so I tend to think It may be from the accident. My cervical spine in clear. I am 25 and scared out of my mind. I keep reading about how MS can not show up but people still have it, and I am afraid I am one of those people. I feel like I can't move on with my life because I don't know whats wrong with me. I just got married 2 years ago and we bought a house, i thought kids where next, but I am so scared because of the way I feel that I could not tolerate a pregnancy right now. Please help. I just want to hear that I am ok.
    Anonymous 42789 Replies
    • November 26, 2006
    • 07:00 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • You didn't mention your dietary habits. A lack of vitamin B12 can mimic MS and other nerve related conditions. B12 helps our body to maintain the insulation around our nerves and with too little B12 we develop holes in this covering which allows nerve impulses to affect the surrounding tissues leading to muscle spasms. Also most people are too low on magnesium. Tablets of magnesium are not well absorbed by the body. The best form to take is powdered and the cheapest place to find this is vitacost.com. They carry the Peter Gillham brand and their own brand. If you research the Peter Gillham information you will find that a lot of your symptoms are suggestive of too little magnesium. Stress can amplify our pain and other muscle symptoms. Make sure you are giving yourself some time to relax and do something you really enjoy.
    Anonymous 42789 Replies
    • November 29, 2006
    • 09:29 PM
    • 0
    Flag this Response
  • there is a drug normally used for narcolepsy recently reported as very effective against fatigue symptoms in m.s.sorry cant remember the name but it shouldnt be difficult to find.google the terms.ask the doc.refer to b.n.f.
    Anonymous 42789 Replies
    • December 27, 2006
    • 02:26 PM
    • 0
    Flag this Response
  • this message is for graceland.i can see how the uncertainty is getting to you.but isnt it more likely that you are suffering from the results of the accident than that you just happen ,coincidentally to be the one in two thousand who will get m.s.?if it is the brain injury,and the lack of spinal cord involvementwould seem to support this view,then continued albeit slow improvement may still be in progress.it does sound as if you need more help with symptoms though.if it is m.s.,then you are lucky in a number of ways.1.you are under thirty.2.you are female.3.you do not seem to have an escalating m.r.i. pattern of indications.4.the rate of progress would seem to suggest the relapsing /remitting form.all these criteria put you in the group that experiences a "relatively benign progress" of the disease,with serious disability very long delayed.since the average survival is 25 years from diagnosis,you may get a lot more,perhaps enough to benefit from some of the many exciting research projects now in hand.i think you need help with the anxiety you are experiencing,in any case.ask about this.
    Anonymous 42789 Replies
    • December 27, 2006
    • 02:56 PM
    • 0
    Flag this Response
  • Graceland- I Have 2 Family Members With Ms... One Is My Mom, Who Wasn't Diagnosed Til She Was 58! We Can Trace Her Symptoms Back 18 Yrs! The First Years Were Only Fatigue, Lower Leg Numbness And Neck Pain, Dr's Attributed To A Minor Accident; Then Came Her Tear Ducts Not Working, Numbness In Arms/hands And Her Hands Turning Blue! For Years, Dr's Told Her "put Ointment In Your Eyes At Night" And "you're Weird" And Sent Her On Her Way. Mri's Showed Nothing! She Finally Went To See My Neurologist (200 Miles Away) Who Eventually Diagnosed Her After A Battery Of Tests- Emg's Were Done Several Times In Case Of Change. It Was A Long Process But Worth It. She Is Now Bad And Getting Progressively Worse Even On Medication, Mentally And Physically. Ms Has Its Good Days And Bad, So Don't Count It Out! It Wasn't Till 2yrs Ago That She Started Experiencing Brain Fog And Recently Started Severely Mentally Declining Because Of The Brain Lesions In Several Areas That Were Not Visible On Her First Mri's! Mental Deterioration Is Her Worst Sympton; She Is Irritable And Argumentative, Has Dizziness, Sight Changes, Almost Always Tired, Muscle/joint Weakness, Anosmia-no Sense Of Smell Or Taste, Trouble With Balance, Walking -walks With Legs Slightly Apart For Stability, Cold Intolerance, Cannot Tell When Her Skin Is Being Burned Till It's Too Late, Arthritis, And Circulation Problems (reynauds Ruled Out/several Tests Done)..... Hope This Helps!
    Anonymous 42789 Replies
    • January 7, 2007
    • 05:48 PM
    • 0
    Flag this Response
  • Hello. I was reading a little about your problems and thought that maqybe this would help. http://www.feelbetterforlife.net/arcanegroup/20610673BB.html It is a great formula that helps with fatigue. I myself am a vegetarian and I don't get all of the vitamins and minerals i need. This drink gives me all the energy that I know what to do with. This may help you along the way in waiting for the MS to get bad enough. Sounds pretty *****y that you are sick but they say not sick enough to be put on disability. I hope I was able to help. Bye
    MarshalHack 4 Replies
    • January 7, 2007
    • 08:36 PM
    • 0
    Flag this Response
  • Hi so sorry to hear about your illness. i am suffering something similar and have been looking for answers. no such luck as yet. Have you considered post polio syndrome? check it out
    Anonymous 42789 Replies
    • January 15, 2007
    • 00:12 PM
    • 0
    Flag this Response
  • what was your strange symptoms? I am just wondering i am 23 female and have issues and the dr. thinks i am depressed.i am not. what type of nuerologist did you see?
    lizzi9983 35 Replies
    • January 19, 2007
    • 09:15 PM
    • 0
    Flag this Response
  • Hi, I just joined this sight. I have not done much research on Multiple Sclerosis, but I do know about the tired part. I have Muscular Distrophy. I have had surgeries on my hips and have to go through more. I have to wear braces on my legs. There are many days I cant walk. I also feel so drained. I try to do exercise and just get so wore out. I take vitamins and then the meds they give me. I am a mom of three teens and a wife. I have to stay strong for them. It gets hard. They worry about me all the time. My husband really stresses out. I am very stubborn he tells me. My doctor already ordered an electric wheel chair for me. It just sits in there. I just feel guilty if I dont do the things a wife and mom do. I would love to here others stories.
    amy hoskins 17 Replies
    • January 27, 2007
    • 08:47 PM
    • 0
    Flag this Response
  • all m.s. people should google "multiple sclerosis and parasitic worms"without delay.my information is that they stop progression in about half of cases and slow it in others.if it was me i wouldnt hesitate.i would infect myself.i had pinworms(theyll do!) when i was twelve in a northern british city.i went to the library to find out what to do ,and self treated.unpleasant,but effective in one go!i mention this because my research revealed the fact that (at that time)the eggs were thought to be "ubiquitous"---everywhere!.....mostly in dustsin houses.it should still be possible to find some if you use your imagination! even in america it should be possible to identify the places frequented by people with poor self care. they are microscopic--the eggs i mean,not----well you know ---you will not see them.eat a very little dustthe tiniest amount is enough.as much as a child would gather on a damp finger from a promising place : the route of infection is oral.my guess is that the cchemical marker from the worms skin will be identified and synthesised----sometime in the future.have you got that long to wait?it is not as if we are knee deep in options.pinworns are known to cause occasional itching around the anus at night, (a local anaesthetic cream would stop that)but are otherwise harmless.but even if they caused significant problems elsewhere,i think i would still choose to live.my profound sympathy for everyone living with m.s.goodluck to you all!if anyone can be bothered to report back i would be delighted to hear of progress!
    Anonymous 42789 Replies
    • February 3, 2007
    • 07:03 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.