Discussions By Condition: Multiple Sclerosis

Could This Be Ms (hospital Are Trying To Find Out Whats Wrong)

Posted In: Multiple Sclerosis 12 Replies
  • Posted By: Anonymous
  • April 17, 2007
  • 02:00 PM

Hi This Is My First Time On Here,
I Need Help & Advice On What Is Going On With Me & If This Could Be The Signs Of Ms.
1 1/2 Yrs Ago I Fell Really Ill With Flue & Breathing Problems, About 2 Mnths After That I Started To Experience Alot Of Shooting Pain In My Back/legs/neck & Hands. I Lost Alot Of Strength In My Legs & Arms & Started Experencing Cramp With Pins/needles. I Noticed My Strength In My Arms Had Gone Too Even At Times Just Carrying A Small Bag Was Hard Work Or Gripping,
I Was Freaked Out On One Occasion As Whilst I Was Relaxing In Bed Part Of My Hand Shook Like Mad, Since Then I Feel So Exhausted, Its As If I Have Done A Marathon & My Legs Feel Like Lead At Times.
Latley I Have Been Experencing A Sharp Pain In My Neck Going Across The Top Of My Head, & In My Wrists (feels Sprained) My Eyes Are Hurting & My Right Eye Keeps Going Blurred (watery Effect).
I Keep Going Really Hot In My Face, Its As If It's Burning, 7 Going Hot In Body At Times, But I Am Now Having Alot More Pins/needles With Itching On My Face & Various Parts Of My Body, Feels Like Insects Crawling Over Me. My Toes & Various Parts Mainly Arms/hands Keep Going Numb,& Cold.
There Are Days, Where My Hearing Goes Funny For A Just For Few Seconds.
I Do Suffer With Memory Loss Hubby Laughs As He Says I Always Forget Things, But I Have Noticed Myself One Minute I Can Spell The Next I Cant Remember, I Used To Be Brilliant At It.this Also Happens When I Am Speaking To People Words That Don't Make Sense Come Out At Times, I Feel Stupid Then!!!!!!
The Hospital Are Looking Into What Is Going On, Been To The Doctors Once Again Feels Like My Second Home Now. I Have Got To Have Blood Test Once Again To See What Is Going On.
Could Anyone Advice Me If This Could Be Ms Or If Not What Is Happening To Me, Feels So Frustrating As I Know Something Is Not Right, It's Starting To Get Me Down A Bit, Its The Not Knowing That Gets To Me!!!!
With Just Me Typing This My Arms Have Gone Numb Pins/needle Effect & Finger Tips Cold.
Louisexxxx

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12 Replies:

  • I am no expert on MS, so I have no idea. I too have had many of the symptoms you've had and I still don't have clear answers, but I did recently test positive (or high) for rheumatoid arthritis which is an auto-immune disease somewhat like MS. My best advice to you as I've been trying to figure out whats wrong for 6+ years, and I'm only 21!, is to first make sure you dont contribute to your symptoms with stress. I'm not saying what your experiencing is caused by stress, but if you let stress contribute you'll only make it worse. And also, it will alow for doctors to discount it all to stress if you dont keep it in check. Keep looking, the answers will come. The important thing is not to let it take over your life.Aubrey : )
    Anonymous 42789 Replies Flag this Response
  • Hi. I hope you find out what is wrong. I have some similar symptoms as you and have desperaly been seeking a cure for 2 years. I too have pins and needles feelings in my fingertips and face, I am extremly tired 24/7, my legs cramp really bad at times, and I see spots and flashes in my vision. The doctors have done all kinds of tests on me and can come up with nothing.All I know is by B12 is signifigantly low and a nurse on here told me I need B12 shots right away. A low B12 can cause tiredness, muscle cramps, pins and needles, cold hands, etc.. Basically if left untreated can cause permanet nerve damage.So it is worth checking out. My doctor is uneducated on B12 apparently because mine is a 206 and she did not treat it, only said to take a multi vitamin and eat more red meat. I have been told that will not help that I need treatment for this. Anything below 550 is dangerous. Thank God for the internet is all I can say. We can't rely on doctors anymore. My best advice is not to give up when the doctors do. Keep researching things on here, demand new tests, see a new doctor if need be. Best wishes to you!!!! Hang in there!!!
    foreveryoung 6 Replies Flag this Response
  • I am no expert on MS, so I have no idea. I too have had many of the symptoms you've had and I still don't have clear answers, but I did recently test positive (or high) for rheumatoid arthritis which is an auto-immune disease somewhat like MS. My best advice to you as I've been trying to figure out whats wrong for 6+ years, and I'm only 21!, is to first make sure you dont contribute to your symptoms with stress. I'm not saying what your experiencing is caused by stress, but if you let stress contribute you'll only make it worse. And also, it will alow for doctors to discount it all to stress if you dont keep it in check. Keep looking, the answers will come. The important thing is not to let it take over your life.Aubrey : )HI THERE AUBREYTHANKS FOR REPLYING BACK TO ME, ITS NICE TO BEABLE TO SPEAK TO SOMEONE LIKE YOU WHO TO FEELS IN A LIMBO ABOUT WHAT IS HAPPENING TO OUR BODIES. I HAVE HAD TEST TO SEE IF I HAVE RHEUMATOID ARTHRITIS & VARIOUS OTHER TESTS. BUT THEY ALL CAME BACK NEGATIVE, BUT I DID NOT HAVE THE BURNING HOT IN FACE/BODY & THE ITCHING THEN.THE ONLY THING I HAVE NOTICED MY ITCHING IS GETTING WORSE & AM STARTING TO MAKE MYSELF SORE & MY MUSCLE IN BACK IS CAUSING SO MUCH PAIN. PLUS I AM GETTING ALOT MORE SHOOTING PAIN ON MY FOREHEAD DID THIS HAPPEN TO YOU???I AGREE THAT STRESS WILL NOT HELP, IT'S HARD AT TIMES. JUST LIKE YOU WANT TO KNOW WHAT'S HAPPPENING & YOUR ALOT YOUNGER THAN ME. I USE TO BE SUCH A BUSY PERSON COULD NOT STOP ME, I AM WORRIED AS I HAVE 5 KIDDIES TO LOOK AFTER BUT THIS IS EFFECTING ME AS A MOTHER TO THEM TOO.I WILL TAKE YOUR ADVICE & TRY & NOT STRESS & TO GET ANSWERS.LOUISEXX
    Anonymous 42789 Replies Flag this Response
  • Hi. I hope you find out what is wrong. I have some similar symptoms as you and have desperaly been seeking a cure for 2 years. I too have pins and needles feelings in my fingertips and face, I am extremly tired 24/7, my legs cramp really bad at times, and I see spots and flashes in my vision. The doctors have done all kinds of tests on me and can come up with nothing.All I know is by B12 is signifigantly low and a nurse on here told me I need B12 shots right away. A low B12 can cause tiredness, muscle cramps, pins and needles, cold hands, etc.. Basically if left untreated can cause permanet nerve damage.So it is worth checking out. My doctor is uneducated on B12 apparently because mine is a 206 and she did not treat it, only said to take a multi vitamin and eat more red meat. I have been told that will not help that I need treatment for this. Anything below 550 is dangerous. Thank God for the internet is all I can say. We can't rely on doctors anymore. My best advice is not to give up when the doctors do. Keep researching things on here, demand new tests, see a new doctor if need be. Best wishes to you!!!! Hang in there!!!HI THERE FOREVER YOUNG.THANKS FOR REPLYING TO ME.HOW INTERESTING WHAT YOU SAID ABOUT B12. WHAT IS THIS? DO NOT THINK I HAVE HEARD OF IT. DID YOU SUFFER WITH BURNING/HOT SENSATION/ITCHING TOO? I WILL EVEN THOUGH I HAVE NOT BEEN TESTED FOR THIS, WELL I THINK I HAVE'NT START TAKING VITIMINS & EATING MORE RED MEAT. GOT TO GIVE A SHOT PLUS ASK MY NURSE ON THURSDAY ABOUT THIS.I HAVE HAD A MRI SCAN ON MY LOWER BACK WHICH CAME UP WITH NOTHING, BUT THE CONSULTANT KEPT SAYING TO ME WE CAN AT TIMES MISS THINGS, I DID NOT QUESTION HIM ABOUT THAT REMARK LIKE A FOOL.BUT IF I DON'T GET ANY SORT OF ANSWERS I WILL ASK FOR ANOTHER CONSULTANT.ITS NICE TO KNOW I AM NOT ALONE IN THIS, MY FAMILY ARE FINDING THIS HARD TO UNDERSTAND WITH WHATS HAPPENING, NOT THEIR FAULT. JUST WILL BE GLAD TO FIND THE ANSWER.THANK-YOU FOR YOUR SUPPORT.LOUISEXX
    Anonymous 42789 Replies Flag this Response
  • Hi.. I was told since Jr high nothing was wrong. I ignored my pain for years and the face bloating sudden weight gain sudden weight loss. After I had my son I had a bad flare.As far as my primary was concerned it was stress.and that was the answer for years.Yes sudden red face tingling hands and feet,swollen face people always asking me if I was out partying....sleeping 12 hrs getting up feeling like a truck hit me..Oh then the mouth ulcers. I was told I was stressed and depressed. I finally met a very well known and bright neroligsts that didn't treat me like I was wacky!!! he took all my symptoms down and diagnosed me with lupus,,The only problem is you need posative blood work to see a rhumatoligist...3 years later I could not move,my primary couldn't see me for 3 months!!! I called my nouro guy,,Took me in .my ana and ra were sky high!!! He called me within 2 days and said yep now it is official you have lupus and now you can get treated...Well my primary's office called me within hours and said I had to be seen right away!! Yea no kidding. I switched primary DR's and have a Lupus DR on the side..My lupus Dr also took my comlaint of Dry eyes and mouth and tested me for Sjogres..anti Rho and ant-la both came back posative. I take plaquinal.But now I have run into vision changes and my legs feel like lead and a few other things.I see my dr monday. Do not give up! I hope you finally get the answers you need! it took me from JR high till mid 30 to finally get were I needed to be.
    Anonymous 42789 Replies Flag this Response
  • B-12 (pernicious anemia) defeciency can cause ALL the same symptoms as MS. So can maby other things.
    Anonymous 42789 Replies Flag this Response
  • Follow Up From My First Post.Thank-you For Those Helping Me With Advice Whats Going On With Me, It Really Does Help To Know I Am Not The Only Frustrated Person Going Through Similar Syptoms As Me! My Blood Tests Once Again Came Back Negative. I Asked The Doctor About B12 & Ms, She Said On My Nx Hosptial App To Raise My Concerns To Them, She Said She Cannot Understand Why It's Taking Them So Long To Find Out What's Wrong With Me.My Doctor Is Worried Though, The Past 3 Weeks Or So I Have Been Suffering Really Bad With Cramp In My Right Leg Night & Day. Put Me On Tablets Which I Can Only Take For 2 Weeks. Has Anyone Else Had The Same Problem With Bad Cramps??,will This Go Away?? Can This Also Be A Sign Of Ms Or B12. Feel So Frustrated Now Having To Use My Walking Stick On Bad Attacks.Kindest RegardsLouise
    Anonymous 42789 Replies Flag this Response
  • I have had many of the symptoms you have for years. I finally this year found a Doc. to really test me and was very aggressive with testing however reserved in diagnosing. With several MRI's I have MS. However, he has been treating me with B-12 shots and pills. Since then I feel much better. Last night I really felt the "crawling" and today I am feeling the tingling alot. Funny because I am 2 days over due for my B12 shot. Even if you are not diagnosed with MS - check into b12 shots. If not go to Sams or Walmart and get the B12 pills. I take those in between time, however I did not take them for the last two weeks to see what would happen. Now all my symptoms are coming back. Good luck. Find a really good neurologist!!!!
    Anonymous 42789 Replies Flag this Response
  • Hi There,To Keep You Up On Whats Going On.Had To Go Doctors Again As My Vision Has Really Started To Get Worse, I Explain I Have Blurring Vision Which Comes & Goes, Eyes Ache Alot, With Alot Of Pain On My Head/neck & Forhead. The Light Also Hurts My Eyes. She Said I Have Got (uveitis). I Need To Tell The Hospital Nx Week, She Said This Should Now Make Them Do Alot More Tests On Me & Put Me On Medication For The Above, As Needs Dealing With Quickly.The Last Few Days Though I Have Also Been Suffering With Cold Itching Feeling/numbness On My Right Side Of My Face/around My Eye.I Did Forget To Mention One Thing, I Did Have One Test That Came Out Positive (hla-b27) Which Is A Test For (ankylosing Spondylitis) The Hospital Have Said I Have Not Got This & A Positive Result Does Not Mean You Have It Too, Which Did Baffle Me A Bit.Does This Still Sound Like (ms Or B12) Even With A (hla-b27) Positve.To Be Honest It Is Starting To Get Me Down, I Just Want To Know Why I Have This Pain & All My Energy Has Gone. I Use To Be One Of These People Who Was Always On The Go, Now Takes Me Alot Of Time To Do Things.Louisexxx
    Anonymous 42789 Replies Flag this Response
  • This sounds like Aspartame poisoning. Please let me know if you are having any Diet Sodas? Nutrasweet? Sugar Free gum? These products are highly toxic and there was a case in NEw Zealand where a young woman was poisoned by excessive amounts of chewing gum, she has now been diagnosed with Aspartame poisoning. This is serioushttp://en.epochtimes.com/news/7-7-23/57897.html http://www.tv3.co.nz/VideoBrowseAll/VideoAll/tabid/303/articleID/30896/Default.aspx?articleID=30896http://tvnz.co.nz/view/video_popup_windows_skin/1193703?bandwidth=128k
    Anonymous 42789 Replies Flag this Response
  • Hi This Is My First Time On Here, I Need Help & Advice On What Is Going On With Me & If This Could Be The Signs Of Ms.1 1/2 Yrs Ago I Fell Really Ill With Flue & Breathing Problems, About 2 Mnths After That I Started To Experience Alot Of Shooting Pain In My Back/legs/neck & Hands. I Lost Alot Of Strength In My Legs & Arms & Started Experencing Cramp With Pins/needles. I Noticed My Strength In My Arms Had Gone Too Even At Times Just Carrying A Small Bag Was Hard Work Or Gripping, I Was Freaked Out On One Occasion As Whilst I Was Relaxing In Bed Part Of My Hand Shook Like Mad, Since Then I Feel So Exhausted, Its As If I Have Done A Marathon & My Legs Feel Like Lead At Times.Latley I Have Been Experencing A Sharp Pain In My Neck Going Across The Top Of My Head, & In My Wrists (feels Sprained) My Eyes Are Hurting & My Right Eye Keeps Going Blurred (watery Effect).I Keep Going Really Hot In My Face, Its As If It's Burning, 7 Going Hot In Body At Times, But I Am Now Having Alot More Pins/needles With Itching On My Face & Various Parts Of My Body, Feels Like Insects Crawling Over Me. My Toes & Various Parts Mainly Arms/hands Keep Going Numb,& Cold.There Are Days, Where My Hearing Goes Funny For A Just For Few Seconds.I Do Suffer With Memory Loss Hubby Laughs As He Says I Always Forget Things, But I Have Noticed Myself One Minute I Can Spell The Next I Cant Remember, I Used To Be Brilliant At It.this Also Happens When I Am Speaking To People Words That Don't Make Sense Come Out At Times, I Feel Stupid Then!!!!!!The Hospital Are Looking Into What Is Going On, Been To The Doctors Once Again Feels Like My Second Home Now. I Have Got To Have Blood Test Once Again To See What Is Going On.Could Anyone Advice Me If This Could Be Ms Or If Not What Is Happening To Me, Feels So Frustrating As I Know Something Is Not Right, It's Starting To Get Me Down A Bit, Its The Not Knowing That Gets To Me!!!!With Just Me Typing This My Arms Have Gone Numb Pins/needle Effect & Finger Tips Cold. LouisexxxxI have had too many weird symptoms and too many wrong diagnoses including MS over the past 20 years. I have been to too many doctors who really have no idea whats wrong. Each doctor passes me off to a different doctor who does the same. Just spent 5 days in the hospital for testing of a variety of different diseases...all tests came back negative...good thing. Bad thing is i have really bad coordination in my legs (have to use a walker or forearm crutches at age 39 and "nothing is wrong with me") and some minor in my hands. I cant think half the time and have had vision and other problems...like is said too many to list. At this point I dont know what to do either and its been 20 years so I just take each day as it comes and try not to let it get to me. I will not let a doctor tell me there is nothing wrong....I make them do their job. Yes, they get tired of me and pass me on to someone else but eventually someone somewhere will figure me out. Im not trying to scare you but it is possible you may never get a straight answer because it hasnt been discovered by a "doctor" yet and given a name and a "test" or list of "tests" that can confirm it. Be persistant and never take "there is nothing wrong with you" as an answer. YOu have lived with your body and know it better than anyone. Use your instincts and dont let the high and mighty doctor bully you. Good luck with your problem and remember everyday presents a new challange or a break from your symptoms. You would not be given a challange you cannot handle.
    Anonymous 42789 Replies
    • October 22, 2007
    • 00:20 PM
    • 0
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  • Have you been checked for peripheral poly neuropathy? There can be several underlying causes for this but if you have not already been to a neurologist and had EMG type testing I would suggest you do so. Also, have they done an MRI or CAT scan of your brain for any abnormalities which would explain your symptoms? Let us know how your are doing. Blessings.
    Harvard 20 Replies
    • October 29, 2007
    • 02:58 PM
    • 0
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