Discussions By Condition: Mental conditions

Misdiagnosed with Schizoaffective disorder as teen. Trying to get diagnosis reversed.

Posted In: Mental conditions 4 Replies
  • Posted By: outofthedarkness
  • August 30, 2009
  • 06:48 AM

I was diagnosed with Schizoaffective disorder as a teenager. I was diagnosed my doctors in the Tricare system, which is the military's sorry excuse for a medical system. I'm fairly certain my mother has Munchausen syndrome by proxy. The doctors didn't really listen to me (or my brother) at all. They simply drugged us up and took my parents' word about our symptoms. The bottom line is simple. I stopped taking my medication 4 years ago. I was super physically sick and in perpetual "zombie" mode. I am now seeking to have the diagnosis reversed. I have made some contact with a therapist, but I really need to find a psychologist who can (and will) work with me. I am so frustrated and confused about who to talk to and where to go. I live in Illinios. Does anyone have any advice for me?:confused:

Reply Flag this Discussion

4 Replies:

  • I was diagnosed with Schizoaffective disorder as a teenager. I was diagnosed my doctors in the Tricare system, which is the military's sorry excuse for a medical system. I'm fairly certain my mother has Munchausen syndrome by proxy. The doctors didn't really listen to me (or my brother) at all. They simply drugged us up and took my parents' word about our symptoms. The bottom line is simple. I stopped taking my medication 4 years ago. I was super physically sick and in perpetual "zombie" mode. I am now seeking to have the diagnosis reversed. I have made some contact with a therapist, but I really need to find a psychologist who can (and will) work with me. I am so frustrated and confused about who to talk to and where to go. I live in Illinios. Does anyone have any advice for me?:confused:I am curious to know if you are currenlty having any difficulties (depression, anxiety, mood swings, psychosis?) This is what a therapist or psychologist will want to know. What are you currrently expieriencing. Is the primary reason you are going to a psychologist is for a diagnosis? If you are still currently struggling with mental health issues then you might want to see a psychiatrist also who can prescribes medications for you. Psychologist or LCSW are excellent choices for people to talk with however cant prescribe meds.
    Anonymous 42789 Replies
    • August 30, 2009
    • 02:18 PM
    • 0
    Flag this Response
  • I am curious to know if you are currenlty having any difficulties (depression, anxiety, mood swings, psychosis?) This is what a therapist or psychologist will want to know. What are you currrently expieriencing. Is the primary reason you are going to a psychologist is for a diagnosis? If you are still currently struggling with mental health issues then you might want to see a psychiatrist also who can prescribes medications for you. Psychologist or LCSW are excellent choices for people to talk with however cant prescribe meds.I'm not currently having any depression, mania, psychosis, mood swings, or ANY psychiatric problem at all. I have lived through 4 of the most stressful years of my life medication-free. I don't need medication. I'm seeing a therapist and trying to find a psychologist because I was MISDIAGNOSED. I can't join the military, among other jobs that I can't do because of this diagnosis. I am worried about what that label might mean for my children if I ever have any. Certain of my rights are restricted or completely unavailable to me because a doctor (or rather a group of them) decided to slap a label on me based on what my parents (who used psychiatric medication and threats of long-term hospitalization as a way to control me and knew the DSM-IV better than they knew the Bible) told them my symptoms were rather than doing their jobs and listening to me. I am trying to go about getting the diagnose reversed, a course of action I could hardly expect to pursue if I were currently experiencing symptoms. I am looking for advice on how I might go about getting that goal accomplished. I am sorry if this sounds like an angry tirade, but I am so sick of everyone assuming that because someone, somewhere along the line didn't want to do their job and took the easy way out by giving a very serious, very stigmatizing, diagnosis to what amounts to a child, there MUST be something wrong with me. This serious lack of care and attention in the Tricare system cost me my ability to have children (I was forced into having my tubes tied by my parents and was too medicated and too scared to fight it. That diagnosis was the excuse to sterilize a healthy 18 year old girl.) I just want that horrible stigma off of me so that I can stop paying for someone else's mistake. Do you have any advice that can help me do that?
    outofthedarkness 6 Replies
    • August 31, 2009
    • 00:15 AM
    • 0
    Flag this Response
  • I am curious to know if you are currenlty having any difficulties (depression, anxiety, mood swings, psychosis?) This is what a therapist or psychologist will want to know. What are you currrently expieriencing. Is the primary reason you are going to a psychologist is for a diagnosis? If you are still currently struggling with mental health issues then you might want to see a psychiatrist also who can prescribes medications for you. Psychologist or LCSW are excellent choices for people to talk with however cant prescribe meds.I, too was misdiagnosed many, many years ago with schizoaffective disorder. After my diagnosis I went on to get a PhD in Psychology and it was then that I realized that I did NOT meet the criteria for Schizoaffective Disorder. I am in the process of trying to have the diagnosis reversed as well. Schizoaffective disorder is very difficult to diagnose and if the information about the patient history is coming from a secondary source (like a parent). It can lead to an even higher rate of misdiagnosis. You need to go to a Psychiatrist and ask for a complete psychological evaluation. If you do not meet the criteria for Schizoaffective disorder then they cannot diagnose you with the disorder. Once that is done you can request to have your medical records updated. Hope this info helps, good luck!
    Anonymous 42789 Replies
    • November 9, 2009
    • 10:41 PM
    • 0
    Flag this Response
  • I, too was misdiagnosed many, many years ago with schizoaffective disorder. After my diagnosis I went on to get a PhD in Psychology and it was then that I realized that I did NOT meet the criteria for Schizoaffective Disorder. I am in the process of trying to have the diagnosis reversed as well. Schizoaffective disorder is very difficult to diagnose and if the information about the patient history is coming from a secondary source (like a parent). It can lead to an even higher rate of misdiagnosis. You need to go to a Psychiatrist and ask for a complete psychological evaluation. If you do not meet the criteria for Schizoaffective disorder then they cannot diagnose you with the disorder. Once that is done you can request to have your medical records updated. Hope this info helps, good luck!I have already done just that, and it was so liberating to get confirmation from a professional that says, "Hey, there's nothing wrong with you!" I am considering getting my records moved up here so that I can get them updated currently. I highly recommend Dr. Nelson Borelli to anyone in my shoes. He subscribes to Dr. Szasz's movement of anti-psychiatry. He hails out of Chicago.
    outofthedarkness 6 Replies
    • November 10, 2009
    • 08:00 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.