Discussions By Condition: Mental conditions

Misdiagnosed with Bipolar Disorder, sorry it's long...

Posted In: Mental conditions 13 Replies
  • Posted By: Anonymous
  • April 23, 2008
  • 10:28 PM

Hello everyone, I am new here and need some advice.
9 years ago I was suffering from some depression due to a nightmare of a marriage and a past rape I never really dealt with. I went to a Psychiatrist to seek some advice and help with dealing with these issues. In a matter of two visits I was given the diagnosis of Bipolar Disorder, needless to say I was shocked. But hey, this is a psychiatrist right, he knows. So I was put on Depakote and Prozac, but I hated the side effects. I put on a ton of weight and had less energy than when I was depressed. At a visit to my family doctor for a routine/annual physical he was shocked at my sudden and increasing weight gain (I'm 5'2" and typically weigh about 115 pounds. I shot up to 150 pounds in a little over a month) so he suggested that I try Zyprexa with my psychiatrists approval. My psych said it would be fine, so that was what I took for 4 years. During that 4 years I divorced my abusive husband, moved to another state and went back to school. Sounds like the meds are working right? Well, in 2003 I made a decision to wean myself off of the meds. I had been wondering for some time if the diagnosis had been correct, but never confronted my psych with it. The entire time I was seeing the psych we never discussed my rape or the difficult marriage I was having... we discussed bipolar disorder.
Fast foward to 2008... it has been 5 years since I weaned myself off of those meds and I have had no depression, no mania, no nothing. I have never been so happy and full of life... I absolutely love life! I am a sophmore in college, I am active in several associations at my university, I am the clerk of my church... I am living. I could produce so many friends and associates/professionals that if you told them I had bipolar disorder; explained to them what it was, and stated that I have not taken medication for 5 years... they would die laughing! Has anyone else experienced this? I guess what really bothers me is that as many of you probably know there is a stigmatism to this day about mental illness. So it bothers me that I have this misdiagnosis on my medical records... how do I get it removed? Please understand that my thread is not a knock on the psych professionals, nor is it intended to offend anyone. Believe me, if anyone knows what you are going through when it comes to depression and the stigmatisms associated with mental illness... I do. I have nothing but respect for those suffering with mental illness. I am a psychology major... I know.
Any advice would be appreciated.

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13 Replies:

  • His sorry i know this is of the subject but i was wondering if it were possbile for you to tell me whats it like being diagnozed with bipolar as in (what test you have to take, how long it takes). As i said before sorry if this bothers you but it seems like i might be bipolar and im kind of embarrsed and i want to goto the doctors before i do something worse then what ive already done to my self :(
    Solidess 40 Replies Flag this Response
  • well you did well with zyprexa that drug was a nightmare for me i lost days out of my life severe memory loss parkinson like symptoms bi polar dosnt just go away if you are now oiff meds you possiblt didnt have bipolar to start with oh how they get things wrong this medication should never have been given to me as i had a seizure which they would not believe half the drs dont know how to get you offthis stuff were you weaned slowlyyou are one of the lucky ones and i wish you well bipolar cannot be diagnosed by one visit
    angelene 13 Replies Flag this Response
  • bipolar disorder is a very common misdaignosis of a person that has suffered abuse. I went through the same thing. the following is a quote from an article published in the american psychitaric associatons journal. However, symptoms of severe childhood trauma including flashbacks, dissociation, mood fluctuations, and impulsive behavior are often misdiagnosed as hallucinations, psychosis, and bipolar disorder, leading to treatment that doesn’t address the underlying issues, she said. The entire article can be found at http://pn.psychiatryonline.org/cgi/content/full/37/14/8
    sherylselena 1 Replies Flag this Response
  • Hey you trust the "experts" and take the drugs you're gambling in a rigged game. People really need to do some research on the history of the type of people and companies that make these drugs. Read about the modern history of psychiatry and then decide if its the kind of people you want to trust with your brain!
    Non Servium 85 Replies
    • September 19, 2008
    • 00:25 AM
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  • I was diagnosed bipolar I with severe psychotic features in 2006, and in 2007 in a psychotic state I stopped taking my medication and tried to kill myself. I have been hospitalized twice, and since June of 2007 I have lived medication free and bipolar free.It has been almost a year and a half and I have never felt better. My story can be found on my website:www.medication-nation.com under Stories, second to last. I run this website in response to the heinous mis-diagnosis I received and the abuse I suffered in the hospital.Feel free to email me. :)
    wildhare 7 Replies
    • October 19, 2008
    • 03:22 AM
    • 0
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  • hi dear.I myself have bipolar disorder with such special symptoms.Of courseit has been ten years and now I am completely fine and I have never stopped my medications.At that time which you were diagnosed with BPD,were there some periods that you were really sad and some periods very well?if its was so,it is likely that you had bipolar disorder.But is also likely that you are kind of patient who is cured compeletly .You see 20 percent of BPD patients wil:)l be cure for ever,10 percent are never treated and 70 percent will be good with medications and can have a normal life.GoodLUCk:)
    Anonymous 42789 Replies
    • October 19, 2008
    • 06:15 AM
    • 0
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  • Personally I was never bipolar, I was taking an anti-depressant for over a year before my first "episode" and at the time I was abusing marijuana. The anti-depressant effect (which was a moderate dose, 10mg of lexapro) made it almost as if I was ADHD while being a heavy smoker. I continued to use marijuana and lexapro for another year while also taking anti-psychotics because I figured, well, if I am bipolar for life what does it matter? It took another "episode" to completely scare myself off of drugs, and also since I was being honest I also stopped the meds. I went into treatment, and have been sober/med free ever since.Personally I still experience highs and lows, but nother equalling "mania" or outright depression. And I often resent people who say that emotional swings are a sign of bipolar exclusively because there is evidence that female hormone changes (I'm a girl, heh, duh) cause a subsequent shift in serotonin and other brain chemicals that often account for an increase or decrease in mood. But honestly it has never been anywhere near the top or bottom of the scale. Between 1 and 10 the highest I get now is about a 7 and the lowest about a 3, and often it only lasts a few days. :rolleyes:
    wildhare 7 Replies
    • October 19, 2008
    • 07:12 AM
    • 0
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  • Ugh, I also was misdiagnosed with bi-polar cus I suffer from seasonal affective disorder, the Dr assumed I was depressed all the time and continued to medicate me to the point where I was having manic episodes caused from stressful situations causing depression etc. I had these problems with Paxil not only causing me not to care about life anymore, but a few years ago also had thoughts of suicide and toss in tremours along with that I was a mess. My family Dr instead of addressing the problems...assumed that the Paxil was working the same over the years and altho I asked him to change it he wouldn't. He also assumed cus over the 2 yrs I wasn't having manic episodes that the Paxil was working. I also weaned myself off of this type of medication and man oh man, what a change in my life there was. I also stopped seeing this particular Dr cus what it boiled down to was...he assumed, was trying to humor himself, not me or caring about my depression or anxiety and sending me on my way, with another prescription of this dreaded medication. Its been 7mths since I stopped taking the paxil and I am happier than ever, In a brand new job I love and I've taken my life back! As EvErCat
    kitcat48 80 Replies
    • October 19, 2008
    • 05:19 PM
    • 0
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  • I know people probably don't want to hear this but with bipolar disorder or any mood disorder you can go long periods of time feeling just fine and then another episode hits.Now in your case I doubt it was bipolar. I'm surprised you didn't gain more weight on zyprexa! Did you even have a manic episode? Or was he just following the fad of diagnosing everyone as bipolar? I personally believe counseling first and then meds if necessary. I hate hearing that a GP prescribed someone antidepressants. They have no clue when to use them correctly! Not the psychiatrists are any better... Though if you find a good one you should stick with them.I am off meds and feel better than I did on meds but I changed how I was doing things as well. First off I think my psych doc is wrong and my diagnoses should be schizoaffective because the voices don't come and go with episodes, they are there all the time! Whatever he thinks he knows everything so I don't even listen to him anymore. He's upset that I stopped my meds on my own but honestly this is the longest period of time I have gone without an episode (I'm rapid cycling). Also I have tried just about every medication out there for my problems. None have helped. Most times they made it worse because the side effects were depressing.Though I have something (rather someone) else to also attribute to my doing so well. I have a psychiatric service dog. He's simply amazing! He alerts me to my moodswings and panic attacks. He also interrupts disassociation spells and obsessive behaviors. So I have found my own way to cope with my illness.
    soccerkwolf12 4 Replies
    • November 5, 2008
    • 02:09 PM
    • 0
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  • Annon, I can totally respect your problem of feeling you were misdiagnosed. I've read the replys to your post, there is lots of great support but no one has answered your question. You have a right to that file. It's YOUR information in that record. I don't think many people know that HIPAA says you have the right to see it, and to dispute what you believe to be incorrect. Google your privacy rights. Here are a couple of things I've pulled out for you ---- HIPAA requires health care providers, health plans, and health care clearinghouse to allow you access to your medical records. ---- You can ask for a correction of inaccurate information. You should make your request in writing. You should receive a written answer within 60 days. If your correction request is denied, you can note your disagreement in your file.Good luckLiz
    ejones7408 7 Replies
    • November 10, 2008
    • 01:44 AM
    • 0
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  • I, too, was misdiagnosed with Bipolar Disorder (it was actually Complex PTSD www.ptsdforums.com). I've spent the past three months detoxing off of Thorazine, Adderall and Wellbutrin, all nasty, especially the Adderall. In my case, it was a straight out case of misdiagnosis. Upon investigation, the original psychiatrist that gave me the diagnosis was in the pockets of a bunch of pharmaceutical companies. This was the head of a major medical center's psych unit, scary. In fact, doctors make more money off of BP diagnosis's than any other diagnosis. I lost three years of my life. I put over 30 different medications in my body, all which caused extreme illness. I had blackouts, hallucinations and fits of anger. Three years of not having myself. Of not being the mother and wife that I was.I now have my life back. No side effects or issues with symptoms. I am able to successfully participate in my exposure therapy without a fear of being triggered in an uncontrollable way.I don't have a death sentence any longer.It makes me wonder, how many of us are out there?How many are under psychotropic medications that aren't necessary?I want to change that. I want to keep this from happening to at least one person.If I can do that, my experience will not have been in vain.Never be afraid to get a second, third or fourth opinion!!!
    Anonymous 42789 Replies
    • November 29, 2010
    • 09:57 PM
    • 0
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  • I know exactly what you are talking about. I believe I was misdiagnosed with Bipolar at age 13. Usually it isn't diagnosed till late teens. I found out I had been abused at around the age of 3, when I was 13, and had significant flash backs etc etc. The only reason I found out was because I asked. Somehow I knew. (It wasn't till my 20's that I found a medical record with abuse evidence). Nothing was ever done to deal with the nightmares or ill feelings. Little practical help was given at all. Just medication and a diagnosis that told me I would be 'ill' for the rest of my life. I refused to take the medication after a month and have been without it up till now. There are serious flaws in the medical field (or rather individuals) given the power to diagnose the mind. Everyone makes mistakes. Bipolar is said to be a chemical imbalance (not related to events). I know the trouble I suffered as a kid was certainly related to events.
    Anonymous 42789 Replies Flag this Response
  • As when I got my dignoses of BP , several issues were present. 1. just when best friends in world, murder/suiside. died. 2. I was very much in middle of change of life, and of course hubby being a bi/gay made it so much worse, no one to lean on accept for son Tom. He always knew just how to listen. 3. during the beginning of change, 48, the doc then only gave me hrt. couldn't take it. made me so much worse. Within the next several years, dr. at that time, moved to richmond area. I went on to a physic. within 10 minutes, and never askisng if i may be in change of life, labled me bipolar. change of life + so unhappy with marriage to someone i found with a man., but never to disclose this, 2sons. stayed and keptinside.As for bp. This is what I used to get SSDI! in 2006. It's been all i have had to keep inside. finally just after my heart attack in 2009, went and was dignosed with, because of the many days of emotional pain. I was told and included when at home little girl verbal, i had kept all of this in for much too long. Post Tramic Stress Disorder. Now and the past 5years, it's been yes., depression. I couldn't find a support group to or delt with spouse being bi-sexual. We tried to move to Florida from virgina in 2000. lasted 9mths His boyfriend would come and pick him up to go out! this trama and no one to at least talk to about it or share what i was going through. I tried so hard to not think about it. I used drink to excape thinking about it. All for my sons to never know. The bp part got all of us $ to get us out of a roach motel up here. To only get dignosed bp. gave us the money to get this house. Through all of this is when I found God! he has helped me believe in me again. Now my heart and strokes. Doc said if all the stress keeps on going get all my papers in order. it will kill me. $500. a month isn't enough to live on. As long as I still have Him on my side. I be ok. If all of it is called "tough love" I have given it all new meaning. Now the VETERANS Adm. is calling ALL that we have been through his AGENT ORANGE and he was in it everyday from '67-'69. Post Tramic Stress Disorder, along with his bad heart. I am 58, he is 63. This sure puts a crimp in My Bucket List! So the labels of mh! at my age, to ***l with all the shrinks! Most allshrinks need shrinks! lolol but so true. I hope that what i've shared here please helps anyone else. Be your own advocate. Knowledge is power no matter what age or period in life. Some of you may be lucky and younger to grab this messege. In God's name I so hope so. I think He puts us 'through' adversities so we can learn from & pass it on to ones so they may not go thru asmuch.
    Anonymous 42789 Replies Flag this Response
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