Hi, I'm a 22-year-old female who has suffered with an eating disorder for 14 years. Well, I've been in and out of treatment, therapy, and hospitals for the last three years (as the ED has gotten medically worse), and yet, I'm still struggling. I had an NG tube placed for weight restoration while at Remuda Ranch- I had it for two months. When I was admitted I was considered "medically emaciated" and had nearly died according to doctors in the hospital I was at before Remuda. I gained 30 pounds at the Ranch with the tube, then another six while at Remuda Life (despite frequently refusing the oral supplements Ensure/Boost).
Now, eight months later, I have lost twenty of the thirty-six pounds I had to gain to reach the low end of my "ideal weight range" that RR calculated for me, and I'm struggling deeply to maintain my weight. I really want recovery, as I can see how much I have in life (loving family, husband, friends, many possibilities, etc). I am not at the emaciated weight that I was before I went to Remuda, though.
I went into the doctor, embarrassed and disappointed in myself, and got up the courage to ask for the option of an NG tube in order to maintain/restore weight. My main doctor seemed like he would consider it, but then he went to talk to the head GP in the clinic, who told him that the NG tube is not an option for me because I'm not "emaciated." All I want is to be able to get my brain back, along with my physical health, and I really do want recovery. The head GP even asked my doctor if I could "drink Ensures" to get my weight up. I mean, what makes him think that I could drink supplements like Ensure and Boost if I can hardly eat/keep down food? For me the NG tube = medicine, and purging is not an option due to the fear of aspirating the tube into my lungs (which can be fatal).
I guess my question is: How do I get doctors to take me seriously? I already feel like such a huge disappointment, and like a complete let-down to my family and husband and friends. I know I'm not severely underweight, but I don't want to get to that point again! What if this time, I were to die?! I don't want that at all, but I feel helpless at the hands of ignorant doctors! Is there some sort of specialist that you believe I could talk to that would actually listen to my concerns (besides ED specialists, as there are none in my city)? What sort of things should I talk to my doctor about so that he may consider this option before it's too late?!
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