Discussions By Condition: Medical Stories

wrong diagnosis

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • November 29, 2006
  • 09:22 AM

when i was 11 i started having pain in my knee. i went to the doctors and he just said it was growing pains. then i kept having problems with my walkin but everytime i went to the hospital they just put me on crutches and said that i will be ok in a couple of weeks. 2 days later i couldnt walk and was in so much pain. after 30 odd x-rays and seeing 5 doctors they discovered my epiphysis had slipped. they admitted me and had the operation 2 days later. i was unable to walk for 3 month by that time i was ready to have my other hip pinned. so i was unable to put weight on either of my legs. so i had to have intensive therepy on my hips to allow me to walk again. it took a while to get me steady on my feet and now 6 years later im still in pain. i wanted to publish this story because i want to hear from anyone else who has experienced this or are going through the same symptoms. if you would like to get intouch with me my email is cali69@hotmail.co.uk

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2 Replies:

  • I know I might be totally off track, but you sound similar to some EDS Type III sufferers. Ehlers-Danlos syndrome is very undiagnosed by the medical profession and there are about six types of the syndrome. Did the doctor give you any explaination to your joint problems? You might be interested in visiting this site www.ehlers-danlos.org for a read. Your story sounds so familiar. I suffer EDS, I have very flexible joints and I am in pain. I had to cop the "growing pains" rubbish and the accusations of being a hyperchondriac and I am now 37 and it is only this past month I have had any success getting a couple of doctors to believe me and that was with a lot of work on my part and careful wording of why I needed a couple of tests that might show this and that. What would we do without doctors? A lot more than we are doing now.All the best.Agape, searchingsam
    Anonymous 42,789 Replies
    • November 29, 2006
    • 09:47 AM
    • 0
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  • cheers for replying. i just give up with the doctors all theyve done is give me the wrong information for the past 6 years. they said ive got scfe syndrome but i should be pain free by now. and also when they pinned my hip they put it in the wrong position so ive got no internal rotation which has limited me to do certain things. ive just come off crutches as the pain was unbarable but the doctors didnt want to know. i just dont know who to go and talk to anymore.anyway thanx again for replyingcali
    Anonymous 42,789 Replies
    • November 29, 2006
    • 09:57 AM
    • 0
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