Discussions By Condition: Medical Stories

Why can't my doctor decide?

Posted In: Medical Stories 2 Replies
  • Posted By: krisztina
  • August 17, 2007
  • 01:42 AM

:mad: ALS,possitive auto immune desease, but which one? as i wait, i am wasting away :(
I've been seeking and answers for many many many months, and thus far away and getting Our bits and fragments, it could be this it could be that, I even went as far is seeking out a psychiatric evaluation.
Here the facts:
Significant vitamin B12 deficiency
Elevated sed rate
ADA (not sure if this is what it is called, it is the one that shows inflammation is happening)
Enzymes that say my muscle tissue are degenerating

I have been screened for MS and lupus, both are negative
I was screened for MG that too was negative

I have muscle weakness in both legs and both arms, a tilt to my pelvis, loss of dexterity my fingers and toes. Skin sensations are intact with only some numbness in my pelvic region. Severe muscle spasms(I call them muscle cramps) and muscle twitches in various parts of my body.

I'm tired of it is this being told is this this one or that one or perhaps might be two or three different autoimmune diseases but we're certain is that it is an autoimmune disease.
I've researched the Internet to no avail. I really would appreciate some closure or some way to slow the progression. Please I am begging you to help because I have nowhere else to go.

Your immediate attention to this matter is greatly appreciated.

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2 Replies:

  • Kris....one more time, NAET/Bioset...please go, after all, what have you got to lose? best,mommy cat:)
    mommy cat 1654 Replies
    • August 17, 2007
    • 02:54 PM
    • 0
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  • My guess is you once were a gardener or heavy outdoors person, or have dogs or animals? ...somehow through the environment, you contracted larvae from parasites (even micro-organisms) and it spread throughout your system and your immune system couldn't battle it anymore, too much. Now you have a problem you need to rid with help from another source other than the immune system, like Mebendazole. Since this problem has been with you (for some time now?) you may need to get on a "high dose" like 8 pills a day (suggest this to your doc.) You'd be surprised how sound your mussles will be and calm once you experience what this medication can do for you! Then a good colon cleanse and you should feel on cloud nine! Tha's where I'd start ;-) Deb S
    Anonymous 42789 Replies
    • August 18, 2007
    • 05:20 AM
    • 0
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