Discussions By Condition: Medical Stories

what to do

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • April 18, 2007
  • 03:39 AM

I was diagnosed with leukemia. I started experiencing severe ear pain after a week, but was told not to mind it and that it was probably a side effect of Vincristine, a chemo agent that causes jaw pain. However, after visiting an ENT and being told my sinus was being blocked by a blood clot, a portion of the blood clot was biopsied a week later and it turns out it was a fungal infection. I really had Mucormycosis. It soon spread to my eye orbit and cribiform plate. I was sent to NY city for surgery, but they thought it progressed to my brain and told be i was to go home on hospice and die. I got myself back in the hospital i came from where was treated with Ampho-B and a study drug for six months in a low-conciousness stupor from pain medication. I lost a year of my life to this and although I am recovering now I was told early diagnosis would have stopped it. what can i do?

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