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what things can happen due to vit. D deficiency

Posted In: Medical Stories 17 Replies
  • Posted By: lintek
  • October 31, 2007
  • 04:56 PM

I am writing this in hope that maybe I can help someone before they suffer unneedlsy like I did before I was diagnosed with a vit. D def.

I was having alot of pain in my back for a few years until I finally couldn't stand it anylonger and told my family dr who ordered an xray and they found out I have osteoarthritis in my spine, hip and neck. I then was ordered to have a bone density test, a baseline test, being I'm 47 yrs old and I'm in surgical menopause. the test came out that I already have osteoporosis ONTOP of the osteoarthritis. very well then I said, I'll take the bone medication called boniva or what ever else they have for it.
but as time was going on, I seemed to be getting worst with bone pain all over my entire body. even my skull hurt! I thought maybe it was all in my head. I was suffering with numb arms at night where I couldnt' even put my arms on my belly to watch t.v. in bed. I had to have them straight at my side at a low level. fingers, hands too were going numb at night and the sever lower back pain while while I slept at night was making my sleep miserable. I'm only 115 lb at 5'7" tall, so it's not a matter of being over weight where i couldnt' even turn over on my side it hurt so much.

I then was referred to a rheumatologist because now the bone pain was spreading to my 3 finger joint on both hands plus wrists.
he told me I have fibromyalgia which didn't surprist me because people from the health boards for two yrs now said It sounded like I had it.
he put pressure on all the spots and I thought i"d hit the ceiling it hurt so much.
I told him I was suffering with flu like symtoms and had low grade fevers and felt exhausted so much that it was effecting my job. I could barely get ot work on time or even make it thru an 8 hour day.
I was too wiped out to even bother cooking full course meals anymore after work. I turned to pre made food which I felt so guilty doing. not to mention unhealthy and expensive.
I lost my job at the beginning of oct. I was there only four months but I missed so many days due to my strange illness.
I was getting worst and no one was listening to me.
so when I went to my follow up visit with the rheumy dr after her found out I had the fibromyalgia and he wanted to see if my medicine was working and i told him no, he decided right before I left the office to run a test for Vitamin D levels.
I returned the next week and boy did I get a surprise.
he told me my levels were so dangerously low and that's why I'd been suffering with so much bone pain all over. which now I know is the cause for my osteoarthritis and my osteoporosis. My level was 20. he said the lowest possible is 19 and that he prefers to see perfect levels at 100.

no wonder i"ve been so sick and now I KNOW it wasn't all in my head like I was beginning to feel.
I am now having to take a calcium vitamin with D in it, PLUS another Vit D tablet, 400 IU's and a new non steroidal anti inflammatory.
low levels can cause havoc on the body and it's really considered to be a miracle vitamin.
we can't live healthy without vitamin D in our bodies. it can cause a host of problems as I'm learning.
I've always eatten healthy choice foods and I'm not on a diet. I have calcium daily and eat fish, poultry, eggs and calcium products.

I am flaborgasted and floored that my primary dr did not even THINK of runnning a simple little blood test to find out WHY I've been suffering with so much bone pain and bone loss at the age of 47.
now I know why and I want others to know that they should think of vit.D deficiency if they suffer with bone pains and other symtoms and dont' know why.
I hope this post was of some help to someone.

sincerely,
Linda ;)

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  • Important information about vitamin D:Some patients may develop secondary hyperparathyroidism due to low levels of vitamin D. The initial treatment for this type of hyperparathyroidism is vitamin D. Low vitamin D is also found in patients with primary or refractory hyperparathyroidism. Blood tests for PTH and Calcium are recommended before starting treatment of vitamin D.In Primary hyperparathyroidism surgical removal of the parathyroid glands is commonly recommended. Kiera
    Anonymous 42789 Replies
    • October 31, 2007
    • 10:07 PM
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  • Linda,Thanks for posting this!!! I am an ER doc and Vitamin D is not really discussed in med schools other than the risk of Overdose and the need for building strong bones. I had the same symptoms that you had for almost 10 years, saw multiple doctors including specializing neurologists and none thought to do a vitamin D level. I had osteopenia at the age of 48 and still no level was ordered by an internist. I got cancer and still not order by my oncologist.... then I started reading about cancer and found out about vit D deficiency causing increase of cancers, nerve problems and a lot of other issues I am sure I have seen in patients and missed through the years. I ordered it on myself and found I was not measurable (less than 7)! I consider it God's grace to direct me to the sources of info that led me to this diagnosis. I feel I am on a path now to being healthier and am committed to getting the word out to other docs and patients.The Lord is our Great Physician!ER doc in Washington
    sherrie1 2 Replies Flag this Response
  • What a beautiful and touching post ER Doc.I think mine went on for years too but not as long as yours. I didn't realize how sick I really was until they found out what it was and I recieved treatment for it. I think I read that it can even kill you if not diagnosed. I think this is what was causing my osteoporosis at such an early age and what was causing me to be in such pain after doing such small excersions. (spelling)? which was diagnosed as fibromyalgia and osteoarthritis. it seems like it damaged a lot in the body but can be cured in such a short amount of time.I too have been spreading the word to others out there in the world by posting in all the health boards for people who weren't able to get a diagnosis of their symptoms.I was very fortunate to have such a skilled rheumatologist who thought about ordering the levels to be tested seconds before I was almost opening the door and walking out the door. visit. talk about meant to be?I am so happy to hear that you too learned about this horrible deficiency so you can help others learn more about it and to help others get a diagnosis right away instead of years later when most of the damage is already done.you said that if left untreated that it can cause cancer?do you know this for sure? or are you assuming this?what type of cancer, if I may ask, that you have?I'm absolutely shocked that it can cause cancer if left untreated for years.I can't thank you enough for being the messenger of this health related deficiency in helping others. I felt it was my responsibility too to help others more aware. especially doctors.Once again, I'm happy for you that they found out what was wrong with you. How did they find your cancer? was it just by chance because they were doing testing on your? or were you having any symptoms of a possible dx of cancer?I hope I am not being too bold to ask you all these questions, but it's human behavior to be curious.best wishes,Linda Linda
    lintek 26 Replies Flag this Response
  • Turns out my stores of vitamin D were negligible as well. I have been suffering from flu like symptoms and an itchy rash in the arch of one foot that occurs when I eat any kind of additive or preservative. I can't even eat jam with citric acid added. It took me years of trial and error to figure out what was causing this illness. I ate packaged oatmeal one morning and it tasted so good I had it again for lunch and by 2:00 I had to leave work, go home and go to bed. I also have fibro myalgia, extreme fatigue, bone and skin pain like my body is bruised any where you touch it, only not bruised. Brain fog gets severe and sometimes I cry even when I am not thinking of anything sad. It seems different chemicals affect me differently. My doctor that I just started seeing prescibed nortriptaline for sleep and to help with pain. My foot broke out again only this time it lumped up like spider bites and the itch was so intense I had to quit taking it. It seems to me that something must be out of whack if I can't process ANY trace amounts of additives. It is very difficult to find a doctor to believe that I could be that sensitive. The vitamin D she prescribed was 50,000 units once a week to get my stores back up but I haven't seen any difference in how the chemicals are affecting me. I need help!
    Anonymous 42789 Replies Flag this Response
  • Linda,You can google vitamin D deficiency and Cancer and will find many links."For all things work together for the good for those who love God and are called according to His purposes" Romans 8:28
    sherrie1 2 Replies Flag this Response
  • Linda,Thanks for posting this!!! I am an ER doc and Vitamin D is not really discussed in med schools other than the risk of Overdose and the need for building strong bones. I had the same symptoms that you had for almost 10 years, saw multiple doctors including specializing neurologists and none thought to do a vitamin D level. I had osteopenia at the age of 48 and still no level was ordered by an internist. I got cancer and still not order by my oncologist.... then I started reading about cancer and found out about vit D deficiency causing increase of cancers, nerve problems and a lot of other issues I am sure I have seen in patients and missed through the years. I ordered it on myself and found I was not measurable (less than 7)! I consider it God's grace to direct me to the sources of info that led me to this diagnosis. I feel I am on a path now to being healthier and am committed to getting the word out to other docs and patients.The Lord is our Great Physician!ER doc in WashingtonGlad you're learning about these things and practicing them as an ER doc. So many doctors I've come across, 11 visits to the ER to receive one diagnosis (not vit D deficiency), don't have a clue about certain conditions because they weren't taught them in medical school. Another condition took five doctors to diagnose me and one who thought it was all psychological! I'm glad I trusted my gut feeling or I would be blind in my right eye.Good for you on trusting your gut feeling. More doctors ought to do that and we'd have a better health care system!Yes the Lord is our healer! Now if I could only find a doctor who doesn't believe every disease has a cookie cutter treatment. No two people are alike.
    Anonymous 42789 Replies Flag this Response
  • I have been suffering for years with severe pain in my lower back and no doctor could tell me why. I finally had my vitamin d levels checked last month and found out that my level was a 9 and i almost hit the floor! The nurse told me this is also why i am so tired all the time and why my muscle feel so sore and weak. some days i can't even get out of bed or pick up my 2 year old daughter...much less do anything else in my house or with my other 3 daughters. thank goodness i have a very understanding and caring husband. my doctor started me on a vitamin d prescription 1.25mg 1 pill once a week for 12 weeks then he will check my bloodwork again at 14 weeks. i've been on the medicine for a month now and i feel i'm getting worse so i think i'm going to make another appointment to see my doc soon. i knew nothing about vitamin d deficiency until my yearly physical when my doc ordered the test as part of my routine bloodwork....boy am i glad he did! i'm now learning as much as i can about it and hope to feel better soon. good luck to everyone! michelle:)
    mlee197231 1 Replies
    • January 14, 2009
    • 03:05 AM
    • 0
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  • i have just been diagnosed with vitamin d deficiency and had wondered what its effects are but now i know after reading through the posts. the only reason this defiency and other deficiencies that i have got were diagnosed is because i had blood tests to try find out what im allergic to and it showed up in the bloodwork. i have been put on 50,000units once a month, my levels were only just below the what is considered the normal range but id rather fix the problem now than before it gets anymore serious. thanks for sharing your story
    porcelain 36 Replies
    • January 14, 2009
    • 06:18 AM
    • 0
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  • I too wondered why there's such an epidemic of vitamin D deficiency.It's probably a combination of things and you're point being number one of course, but I assumed it may be because doctors weren't testing people with this simple blood test. Now when ever I hear people say their joints and body hurt all over like mine used to, I now recommend they get their vit. D level tested.I feel almost 100% sure that the deficiency was the cause of my health going down hill so slowly. I thought I was turning into a hypochondriac from all the different aches and pains that was happening every other day.it hurt just to drive my car! To turn my neck! The public needs to be made more aware of this.If I had known that all I had to do was to take vitamin D3 for the cure, it would have saved so much time and suffering.which I just was retested again last week and my level has finally reached 30. The lab result sheet gives a break down of both the D's, D2 and D3 and then the total amount of D together which I never knew that's how they tested it?The dr said to continue taking the vitamin D3 and come back in 3 months for a follow up. I also have arthritis and fibro so it's not just the deficiency that I'm seeing this rheumy doctor for. I dont' want people thinking you have to go to a rheumy dr. to be treated or tested for D deficiency.That was a great article you posted Blaze. very informative.technology doesn't give a hoot about what happens to our earth as long as they're making money, money, money.The greed for money will be the very thing that destroys this earth and our lives. I don't want to be part of it if I can help it. keep up your good posts.sincerely,Linda
    lintek 26 Replies
    • February 1, 2009
    • 02:18 PM
    • 0
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  • I was sick sick sick for YEARS. 10 years, and for two years, I've been going to the doctor to find out what is that matter with me. Just when I was being told it was all in my head and started to believe I was just crazy, I found out I have a level 15 vitamin D... a vitamin D deficiency. And it caused a long long long list of problems. I think it could be causing most of my problems. When I started having bone pain, I had my blood tested and that was found. I've had headaches (BAD KILLER KIND), ibs, tingling, muscle weakness, bone pain, joint pain, itchy skin, trouble thinking, trouble talking (slurring and cant talk when I have a headache), trouble understanding when I have a headache, anxiety, depression, chronic fatigue, Pms, PMDD (emotional pms), chronic inflammation, muscle contractions and spasms, asthma, circulatory problems, Raynauds, and can't lose weight and my back goes out and I ended up getting hyperhydration, and found I am chemical sensitive and cannot drink energy drinks or gatorade or eat health bars, etc. It all started when I was pregnant with my last child 11 years ago and following that birth became VERY sick. I take life one day at a time, and I take every day one step at a time. Finally I see where vitamin D deficiency could be a HUGE factor. Glad for the diagnosis, better late than never. What causes vitamin D deficiency? I realize I don't get a lot of sunshine, but I have usually always taken a multivitamin supplement. My worry is that my symptoms won't go away with the supplements. Hopefully.
    idrinkgreentea 1 Replies Flag this Response
  • HI I drinkgreentea,we need more people like us who've been diagnosed with vit. D deficiency share our stories to make others aware of this curable problem.I believe with my whole heart that my deficiency caused my osteoporosis and arthritis because I don't even know HOW long I went with it being so low. If more doctors were made aware of this problem, they'd be testing patients for it. Mine keeps going back down when I stop taking the supplement.My doctor only gives me a month supply of the high dosage "D" in pill form only through prescription. you take it once a week for a month to bring it back up. Then I'm supposed to take the vitamin form that you purchase from a pharmacy or health food store. it's lower in dosage and safer. we have to be careful not to take an over load of it. that's why they only prescribe the high dosage of it.I found out it's back down again, which should have clued me in to this when I started feeling horrible pains again.there were nights that the deep,gnawing bone pain in my hip would wake me up and had to switch myself to the other hip or on my back to stop the pain. plus the shoulder too. don't put on any sun blocker for the first 15 minutes while laying in the sun. that's the only way to get the UV rays that's needed to produce the vitamin D in our body. otherwise we're just wasting our time. Vitamin D, also called (Calciterol) is a fat soluble vitamin. This means that in order for it to be absorbed by the intestinal tract, fat must be present.people who have disordercystic fibrosis for example- that prevent their bodies from absorbing fat, may become deficient in vit. D even if you're eating the foods rich in vit. D, like milk, butter, eggs, yogurt, sourcream, cheeses and fatty fishes. like mackrel and salmon,, etc.There are a number of conditions that can cause a person to become deficient in vit. D, which can be: Cystic FibrosisChrones diseaseColitisLupusWithout the two types of vit. D. , D2 the source of which is primarily plants, and D3 which is the vit. D that the body is able to produce or create on it's own when the skin gets direct sunlight and exposure to the UV rays.Without vit. D, of either form, the body cannot absorb calcium and without adequate amounts of calcium, the body becomes prone to conditions like osteoporosis, osteomalacia, rickets convulsions and muslce twtiching.I can't begin to tell you how bad my mind has become. my cognitive ability is faltering, my short term memory, my spelling ability and forget what I just read a minute ago. It's horrible and frightening.this can't just be from being in menopause state which I became full blown surgical menopausal back in 2005 when I had a total hysterectomy. but I was put on hormone replacement therapy to make up for the loss of it.estrogen is such an important hormone to us females. when I was told I had osteoporosis and a bad case of it, at such a young age, I knew something caused it but we hadn't known then to test my D level. more woman need to be made aware of this so they dont' get these bone disorders.My rheumy dr. never tested my calcium level when she tested me again for the D level. I only knew this because of reading the lab report that I always request when I get any test performed. it had a spot that read calcium level wasn't tested. how could she miss such an important factor?if we aren't absorbing calcium, the level would be high because it would be spilling out into the blood. or the other way around, I can't recall which one right now. ( this is what I mean about not being able remember things I read) IF the calcium test came out bad, that meant I'd have a certain illness which would be the cause of the vit. D deficiency. So I called the dr and asked her if we should have it tested and she told me yes and I made an appt with her to be tested. My test came out fine.so I question whether my dr. now is really reliable or not?I don't know how long she's been in practice? she never really does anything else except suggest pyshical therapy, shots for bursisits, write out scripts for pain medication or anti inflammatories, that's it!I feel like no one is really giving a darn about my failing health!I'm losing weight again and without even trying!this happened to me before the hysterectomy too. but it was much worst weight wise. I went down to 99 pounds, which I'd never been at this weight since adolescence. yet no dr. did anything about it.I started to put back weight on slowly since 2005 but now I'm sick again with on and off swollen joints, chronic pain, numbness and tingling in my hands and arms and legs, numbness in another area which I can't speak freely about in public, if you know what I mean, woman wise.which effects my love life with my life long partner. he's very very patient and understanding thank God!so there are a number of things going on which I should have written down in a health journal. but who would've known this would continue going on for so long?if I had known this, I would have started a journal when it all began till now in the present.so much to say, I apologize for such a lengthy reply.but I find this so important and I'm so frazzled and dismayed by all that's happened and continues to happen with no answers.did you also know that lack of vit. D can cause a few cancers? like breast cancer, colon cancer and prostrate cancer?yes indeed. they're doing studies on it while i write this.and guess what?I have to go for a bilateral breast biopsy this coming Thursday due to abnormalities found on an MRI and ultra sound. this is my very first time going through this. so maybe the D deficiency does have something to do with the breast and other things i mentioned?I want to know why mine keeps going back down too after stopping the supplements. I used to have a problem about five years ago with not being able to absorb fat. I had to give a stool sample for the lab to test for fat in the stool and they found it in it. so I was put on some enzymes that I eventually stopped taking because I stopped seeing the gastro dr.he was trying to find out why I was losing so much weight then.first he said the I had the malabsorption problem, then diagnosed me in the end after having chronic constipation problems, which I still do by the way realting it to IBS. (irritalbe bowel syndrome)which I just read on the boards recently that they diagnose patients with this when they dont' know what else the patient has. well THAT made me feel great! that meant that the dr. really didn't KNOW what I have. I lost my trust in him after that and never went back to him.well, hope i was able to help you with the why you might have a vit. D deficiency and why it may keep going back down.you may have a malabsorption problem.keep in touch, I'm here for you.sincerely,Linda
    lintek 26 Replies Flag this Response
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  • Hi Linda, I appreciate your zeal to help others with what you learnd in your life. Where much is given by Heavenly Father, much is expected by Him. You are just doing that. I did post a few replies to a few threads. Please go through them. While we claim we found the answer to a problem, surprises occur that it was not the total answer. It is our belief that we know the whole truth. Absolute truth, truth-in-fact, Universal Truth is only known to Heavenly Father. Please observe the following statements.1. Positive builds Positive.2. Negative hurts Positive.3. Positve crushes Negative.4. Negative destroys Negative.Now let us discuss the staements.1. Body is highly positive because ****s lives in it. Anything you do positive promotes body's health. i.e., when a person is asked 'how come you are so healthy?' the person replies..I jog everyday, or swim, or do yoga, or aerobics, or pilaties etc. Noone says I take pills everyday.2. It is anlogous to snake hurting ****s' heel. Man made chemicals (drugs, whether illicit or prescription) are negatives and they hurt or cause side effects to the Body.3. Doing positive things such as swimming, jogging, yoga can crush most ailments. Analogous to '****s can crush Devil's head'.4. Man made chemicals sometimes make you better because it destroys other negativities or ailments in the body. But at the expense of side effects as explained in statement#2. I became a healer and learnt Bioneuroenergenology healing arts postulated by Late Dr. Robert C. Bright, D.C. These healing arts are highly positive and give more effective and longer lasting results. Using man-made chemicals is not an effective way to get better results. You can communicate with me PArjuna85210@yahoo.com where I can supply you photographs and testimonials from my patients.Gad bless you and good luck to you all...Garla Arjuna.
    PArjuna 43 Replies Flag this Response
  • Hi Linda, Check this link and watch all the photographs...Please check this link and watch the slide show... Check this link..... http://s710.photobucket.com/albums/ww110/PArjuna/LTM%20in%20Chennai/This is my presentation to employees and healing through Bioneuroenergetics of employees of LTM company in Chennai, India.Garla Arjuna.
    PArjuna 43 Replies Flag this Response
  • I was just diagnosed with vit.D deficiency and I was put on 50,000 iu of vit. d twice a week for 10 weeks. I have been extremely tired and having alot of bone pain. These pains have bothered me for years especially in my back and no one could tell me why I hurt so bad for so long. My new doctor had the knowledge enough to test me for the vit. d deficiency and found that I was severly deficient. Has any one had any turn around from the vit. d treatment?
    Anonymous 42789 Replies Flag this Response
  • I was just diagnosed with vit.D deficiency and I was put on 50,000 iu of vit. d twice a week for 10 weeks. I have been extremely tired and having alot of bone pain. These pains have bothered me for years especially in my back and no one could tell me why I hurt so bad for so long. My new doctor had the knowledge enough to test me for the vit. d deficiency and found that I was severly deficient. Has any one had any turn around from the vit. d treatment?Mr. Green04, Your vit.D deficiency is a symptom, not the root cause. You and your doctor are barking at the wrong tree. Fix the root cause, your vit,D level go up. Read my other posts.Good luck in regaining normal health,Garla Arjuna.
    PArjuna 43 Replies Flag this Response
  • Turns out my stores of vitamin D were negligible as well. I have been suffering from flu like symptoms and an itchy rash in the arch of one foot that occurs when I eat any kind of additive or preservative. I can't even eat jam with citric acid added. It took me years of trial and error to figure out what was causing this illness. I ate packaged oatmeal one morning and it tasted so good I had it again for lunch and by 2:00 I had to leave work, go home and go to bed. I also have fibro myalgia, extreme fatigue, bone and skin pain like my body is bruised any where you touch it, only not bruised. Brain fog gets severe and sometimes I cry even when I am not thinking of anything sad. It seems different chemicals affect me differently. My doctor that I just started seeing prescibed nortriptaline for sleep and to help with pain. My foot broke out again only this time it lumped up like spider bites and the itch was so intense I had to quit taking it. It seems to me that something must be out of whack if I can't process ANY trace amounts of additives. It is very difficult to find a doctor to believe that I could be that sensitive. The vitamin D she prescribed was 50,000 units once a week to get my stores back up but I haven't seen any difference in how the chemicals are affecting me. I need help! wow ur me only ur not i to have your same problems i cant take any medications without something horrible happening i have been suffering 25 years believe me i cant take hydrocodone generic form but i can take vicoprofen and hear this im allergic severely to any type of anti inflammatory. but pro-fen is an inflammatory most medicine i cant take i know there's something out of whack i had a heart attach from a small dose of steroids. i hurt so bad i cant sit up. with vicoprofen and lyrica i can sit up and maybe a little house work with a lot of breaks.. but if i have laundry or allot of work like vacuuming. i need percocet i do have problems with it though as with all medications. but i can take it once a day. heres something else funny and sad at the same time i cant take norco or vicodine is that crazy or what so my guess is all in formulation not the drug itself right now im running more fever by and good luck its always going to be a journey. oh ps im fine with all food products. keep strong
    Anonymous 42789 Replies
    • January 11, 2010
    • 01:56 AM
    • 0
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  • The Viamin D Council has a lot of good info:http://www.vitamindcouncil.org/Most of my patients are either low or low normal, both of which can cause problems. This is despite the time of year and location. Even in South Carolina many are low. Our lab here lists 20-100 ng/mL as normal (for the 25-OH vit D, which is the only one that usually should be checked) & it really should be 30-100. Most people should shoot for around 50 ng/mL. The 50,000 IU (1.25mg) weekly is generally inadequate to replenish someone that is real low. If you are low, you can not stop the treatment. If you do, you will be low again in a short period of time. Most MD don't know that. Make sure they re-check in a month or two after replacement has stopped. Low vit D will cause low energy and problems with cognition-thinking, as well as many other things mentioned. It is not known to cause cancer, but is associated with many cancers.
    Anonymous 42789 Replies Flag this Response
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