Discussions By Condition: Medical Stories

What do I have besides the below?

Posted In: Medical Stories 0 Replies
  • Posted By: Kar-Kar
  • February 26, 2011
  • 10:32 PM

Hi, I know I have been diagnosed with stenosis of the spine, restless leg syndrome, migranes. I also have been mis-diagnosed with MS. When I was 13 I started to have leg pain charlie horses in my calfs both legs at the same time. Then I was falling down all of the time. They admitted me in the hospital and after becoming completely paralized and many of spinal taps. They came up with a diagnoses of Guillian Barre syndrome. I was very lucky that I did not have to be put on a ventalor. It took me over 10 months to be able to walk without support. I again the following year was hospitalize with similar symptoms, but not as severe. I continued to have problems with my legs becoming weak and tremors in my hands. I was hospitalized many times with problems with weakness, tremors, lightheadednss, vision problems, decreased sensations in different parts of my body, arms, face and legs. I also have very bad headaches and migraines. In the year 2000 I was again hospitalize because I went from walking holding on to a cane, to using a cane and the wall, to using a walker and then a wheelchair. I was hospitalized for 11 days and then went straight to a rehab. for another 20 days. I decided to get another opinion, because I feel I wasn't getting anywhere with my neurologist. When I did the new neurologist said I was mis-diagnosed and that he didn't really know what was wrong. I went to see another neurologist and I was told that it was just some left over things from the Gillian Barre. How many doctors do I need to go to before I can find out what is wrong? Or should I believe this doctor?

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