Discussions By Condition: Medical Stories

What could this be??? HELP!

Posted In: Medical Stories 9 Replies
  • Posted By: Shayness
  • May 28, 2009
  • 10:52 PM

Here Are the symptoms:

Severe Fatigue that has been going on for 2 years

A lot Muscle pain almost everywhere.

Discoloration in Hands and Feet.

Random Muscle spasms in carious places.

Memory and Concentration difficulties.

Hypersensitivity to cold.

Hands,Feet, and sometimes other body parts cold to the touch.

If anyone has any ideas please share them with us! We have been to so many doctors and still do not feel that we have gotten the right diagnosis.

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9 Replies:

  • Have you talked to your dr about CFS?
    Anonymous 42789 Replies Flag this Response
  • Yes and apparantly thats not it...
    Shayness 3 Replies Flag this Response
  • Have you been checked for Fibromyalgia or Mixed Connective Tissue Disease?
    msnova74 20 Replies Flag this Response
  • they say its fibromyalgia but my sister(whom I am posting this for) is too young for that she is only 16 and I am just not buying itmixed connective tissue I am not sure if they tested for that...
    Shayness 3 Replies Flag this Response
  • Hi this sounds alot like renauds phenomenon check out this link: renauds phenomenon Hope this helps!Stephanie:)
    Northern Angel 2 Replies Flag this Response
  • Try looking into RSD, refex sympathetic dystrophy, many of the symptoms you suggested sound a lot like it. When it come to RSD you dont have to have all the syptoms just 2-3 and it could be it. I have many of the symptoms you described, with the addition of others, and I know how hard it is to deal with it. What doctors have you seen? I would look into seeing a Anesthesiologist or a pain specialist. Niki
    Anonymous 42789 Replies Flag this Response
  • Here Are the symptoms: Severe Fatigue that has been going on for 2 years A lot Muscle pain almost everywhere. Discoloration in Hands and Feet. Random Muscle spasms in carious places. Memory and Concentration difficulties. Hypersensitivity to cold. Hands,Feet, and sometimes other body parts cold to the touch. If anyone has any ideas please share them with us! We have been to so many doctors and still do not feel that we have gotten the right diagnosis. http://forums.wrongdiagnosis.com/showthread.php?p=182282#post182282 It could be b12 deficiencies, among other things.
    Freddd 3576 Replies Flag this Response
  • Perhaps it could be Pernicious Anemia. All of the symptoms you listed are on http://www.wrongdiagnosis.com/p/pernicious_anemia/symptoms.htm
    gr8tful 175 Replies Flag this Response
  • Something I would like to clarify. Pernicious Anemia is b12 deficiency caused by an intrinsic factor insufficiency. People say it looks like fibromyalgia becasue fibro is also a form of b12 deficiency. CFS, chronic fatigue syndrom is another variation on b12 deficiency. There are two separate active b12s causeing 4 separate deficiencies, brain/cord deficiency for each kind and body deficiency for each kind. Then half the people are also deficient of methylfolate making for 8 types of deficiency syndromes. Then there are about another dozen or more additional vitamins and amino acids and minerals deficiencies that cause thousands of additional variations. It is misdiagnosed as over 100 separate things from the 300 or more symptoms it causes. One of the key identifying characteristics to b12 deficiency is the one my doctors asked me for years. "What makes you different. Why don't you get better?" None of rhe treatments work if it is b12 deficiency because only the right kinds of b12 will work and then only if the other missing ingrediants are supplied. Also there are half a dozen genetic causes of b12 problems that run in families so it's not unusual to see grandparent, parent child and grandchildren all with these problems. Mine started in infancy. I left more than 100 puzzled doctors in my wake. Very normal for this.
    Freddd 3576 Replies Flag this Response
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