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webbed neck for no reason

Posted In: Medical Stories 12 Replies
  • Posted By: Anonymous
  • June 9, 2010
  • 04:14 PM

I have a webbed neck deformity, but there is no cause for it. I don not have mental retardation or anything wrong with me at all. Cant this be fixed ? Please help me i hate this so much. Is there a surgery that can fix this ? Thank you.

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  • Hi, I also have a webbed neck and there is plastic surgery you can have done to fix it although I have not yet had it. I hate it as well and would love to have surgery to correct it if at all possible. I thought I was all alone with this as I have never seen anyone else like me before, it makes me feel a lot better knowing I am not alone! If you go to the Wikipedia page for Turner Syndrome it shows before and after pictures of a girl who had surgery to correct her webbed neck.
    Anonymous 42789 Replies Flag this Response
  • I have a webbed neck also! But I don't have any problems the doctor checked me for noonan's and everything but found nothing wrong. I hate my neck! I never wear my hair up because it's so weird looking. I visited a plastic surgeon and they said they could do surgery but I would be left with two big Z shaped scars on either side of my neck. I think it would still be better then not doing anything though.
    Anonymous 42789 Replies Flag this Response
  • I have a webbed neck deformity, but there is no cause for it. I don not have mental retardation or anything wrong with me at all. Cant this be fixed ? Please help me i hate this so much. Is there a surgery that can fix this ? Thank you.You most likey have tuner syndome but they do not know. It will never be perfect even if you have surgey because you were born that way . Speaking from experience
    Anonymous 42789 Replies
    • February 4, 2011
    • 06:38 PM
    • 0
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  • I too have a webbed neck, but unlike anyone else i have heard of mine is a single tendon that goes from the bottom of my chin to my body though where my collar bones meet. It can barely be seen when my head is in a normal upright position but when i put my head back you can see the tendon. i cannot find any pictures of anyone that looks like they have the same thing i do. i do not have turner syndrome as i do not fit any of the other criteria for it. i have no idea what it is, the doctors are useless and so is Wikipedia. Where do i go to find out more about this?
    Anonymous 42789 Replies Flag this Response
  • Hello, I was also born with a webbed neck. I had the surgery when I was 19 years old. Pretty brutal. I am African American and scarred pretty badly so it really didn't help as far as neck lines and so forth. I'm now 57 years old and have never worn low neck lines, always wear collars except at the gym. People do stare a bit but get over it. I think if you are caucasian and have the surgery these days it would be much more successful. The surgery is painful but not the worst I've ever been through. Get checked, you could have Noonan's syndrome. Do your research if you decide to have the surgery. See a couple of different doctor's and check their background. Also, because it is a birth defect, should be covered by insurance. The surgery helped somewhat, because at least I no longer have the wide neck. They did the Z plastez so you can turn your head and the scars go into the folds a bit. Mine go in back of my ears down to my shoulders. I keloid because of my ethnicity and had to have some shots to reduce the keloids, that was more painful than the surgery. I've lived with it and would do it again if need be, didn't like the webbed thing. Good luck, if I can be of further help, send me an e-mail. Shelleyj
    shelleyj 2 Replies Flag this Response
  • Hello All!! I too was born with a webbed neck. I thought I was alone with this birth defect. I was diagnosed with Mossaic Turner's when I was born, and didn't realize what that was until age 14. I am 24 now and I have my first consultation to have the Z Surgery done and get the neck fixed. I'm just trying to a clue on how long recovery is?? I just started a new job and I don't have that much leave to take for recovery. I don't take pain very well ... so I know it will be painful. Any help at all will be great appriciated. Thank you!!Ashley
    ale04211988 3 Replies Flag this Response
  • Hello All!! Just curious about how much recovery time everyone had after surgery?? I was diagnosed with Mossaic Tuner's when I was born, but didn't fully understand it til at the age of 14. I am now 24, and have my first consultation for the Z Surgery. I am planning on getting it since I absolutely despise my neck and just want a normal one so I can wear my hair up without getting weird stares!! Plus, it is a birth deformality so insurance is covering most of it. Ashley
    ale04211988 3 Replies Flag this Response
  • Helly, it's me again...Shellyj with the webbed neck. see my previous post. Recovery is about 6-8 weeks, I had the entire summer at age 19, first summer out of college. Did one side, then the other 4 weeks later. Again be sure to get a couple of opinions and do your research on the doctor's reputation. I did not have the benefit of the computer 40 years ago, so just went by referral a wing and a prayer. :p
    shelleyj 2 Replies Flag this Response
  • I also have a webbed neck deformity with no underlying syndromes. I have hated it my entire life, or at least since I realized it was abnormal and ugly to me. I finally got the courage to talk about it and had a few consults. I had surgery June 15th- bilateral modified z-plasty and it was successful. I had it done by an ENT/plastics who specializes in head and neck reconstruction. He originally said bed rest for one week...it ended up being two weeks of nothing but reading and watching TV. It has been so extremely painful. I still have no feeling in my ears and most of my neck because of nerve damage during surgery. He assures me normal feeling with return. My ROM is limited, still cannot turn my head like normal or look up. I couldn't even open my mouth wide enough to put a bite of food in it for one week. I have had bowel resections and c-sections, and this is WAY more painful than that. I was out of work completely for 2 weeks, light duty for another week, and just went back this past week. The first week back I couldn't even make it more than 3-4 hours. I also have a low hairline that got relocated to the sides with this surgery, so I will have to get laser hair removal once my scars heal. But, it was successful and I am thankful. But, it hurts like crazy.Good luck!Hello All!! Just curious about how much recovery time everyone had after surgery?? I was diagnosed with Mossaic Tuner's when I was born, but didn't fully understand it til at the age of 14. I am now 24, and have my first consultation for the Z Surgery. I am planning on getting it since I absolutely despise my neck and just want a normal one so I can wear my hair up without getting weird stares!! Plus, it is a birth deformality so insurance is covering most of it. Ashley
    rnkris 1 Replies Flag this Response
  • Thanks for the information rnkris!! I have been planning on taking off of work for 15 days, so I'm glad that I've saved up my annual leave for this. Sounds like its very painful ... little nervous about that ... but I'm hoping that it will be worth it with no complications. I've had two consultations with plastic surgeons and they looked and pitched my neck; but said that they didn't feel comfortable taking me as a patient. One of them recommended I use a pediatric plastic surgeon, so I contacted him and he told me that since I'm 24, he can't do anything but recommend me to another plastic surgeon who has done this surgery before. I have a consultation with her next week. Little nervous, anxious, and excited at the same time. Hopefully she'll be able to do something and get my surgery going because I'm running out of places to go to within the area. I also have a webbed neck deformity with no underlying syndromes. I have hated it my entire life, or at least since I realized it was abnormal and ugly to me. I finally got the courage to talk about it and had a few consults. I had surgery June 15th- bilateral modified z-plasty and it was successful. I had it done by an ENT/plastics who specializes in head and neck reconstruction. He originally said bed rest for one week...it ended up being two weeks of nothing but reading and watching TV. It has been so extremely painful. I still have no feeling in my ears and most of my neck because of nerve damage during surgery. He assures me normal feeling with return. My ROM is limited, still cannot turn my head like normal or look up. I couldn't even open my mouth wide enough to put a bite of food in it for one week. I have had bowel resections and c-sections, and this is WAY more painful than that. I was out of work completely for 2 weeks, light duty for another week, and just went back this past week. The first week back I couldn't even make it more than 3-4 hours. I also have a low hairline that got relocated to the sides with this surgery, so I will have to get laser hair removal once my scars heal. But, it was successful and I am thankful. But, it hurts like crazy.Good luck!
    ale04211988 3 Replies Flag this Response
  • To the 24 year old female who is looking for a doctor to take her - were you able to find one? I'm looking for a doctor in Ontario Canada to perform this surgery as well... Haven't seen one yet and am nervous I won't be a good candidate :(

    To those of you who did the surgery how much did it cost and how long was your recovery time? If insurance covered it do you know how much they paid?? Any information at all at this point would help!
    Anonymous 1 Replies
    • February 19, 2014
    • 02:24 AM
    • 0
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  • I was born with webbed neck and didn't know why or what it was about until the 90's and I came across information about Noonan's syndrome. I did have the z plasty surgery in the 80's when I was around 14. I remember I couldn't move much and my scars did get bigger as I got older. I'm more used to them now as I got older. But still hate explaining to people why I have them. Some think I'm being rebellious and had it done on purpose, kind of like getting your skin branded. But this is rare occurrence most people don't notice or just accept it.
    Kevbot 1 Replies Flag this Response
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