Discussions By Condition: Medical Stories

von willebrands???

Posted In: Medical Stories 3 Replies
  • Posted By: Anonymous
  • May 9, 2007
  • 06:21 PM

I am on the depo provera shot and I have Von Willebrands disease I do not no what type or level yet becuase my appt for that is not for another 2 weeks.Should I be getting off Depo if all it does is make me bleed for 3 months straight. Or does that not have anything to do with Vw.

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  • Anyone????
    Anonymous 42789 Replies Flag this Response
  • being that hormones can cause bleeding issues such as blood clots , I would contact the dr administering the depo and inform them of your VW. If it were be I would stop the Depo, and use other methods of birth control, excluding the pill untill you have more answers. All though your hormones may not be affected at all, better to be safe than sorry. Good luck!
    Anonymous 42789 Replies Flag this Response
  • I was dx with VW in 1983. They did not have all the differrent types at that time and there was no treatment for the bruising and bleeding I had. In '1992 a Dr said that Depo seems to help women with VW. I started the every 3 month shots then and I remained asymptomatic completely. It was like a majic shot for me. They did not know then that Depo should only be taken for 5 years (not sure why they came up with that) and most importantly, it drains your bones of Calcium. At 44 I had 6 bone fractures in 18 months (Pelvis, foot, hand, 2 ribs, and tailbone from just sitting in an unpadded chair). The bone density test showed I had severe osteoporosis (-3 in some areas) and I was susceptible to more fractures and the worst being spinal. I don't want to bleed, but I don't want to be in a wheelchair either. I stopped the Depo and when it was 2 weeks overdue, I am having joint and limb bruising. I need to find another answer. With ALL drugs, there are payoffs and side affects. Mine was not good with Depo.I am on the depo provera shot and I have Von Willebrands disease I do not no what type or level yet becuase my appt for that is not for another 2 weeks.Should I be getting off Depo if all it does is make me bleed for 3 months straight. Or does that not have anything to do with Vw.
    Anonymous 42789 Replies Flag this Response
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