Hi my name is Sandy, I am 38 years old and was born with Vitamin D Resistant Rickets, diagnosed at 5 years old.
I have two children, Steph 14 and Cayleb 6. Steph has the condition also, though I did not pass it on to Cayleb.
Steph has had 12 surgeries just this year with many more to come, and I am due for surgery in a few weeks.
The older I am getting the less mobile I am becoming and the arthritis that is setting in.
I would love to find people with this condition to chat too just to see what they have experienced and whether they have children with the same condition.
Look forward to hearing from you.