Discussions By Condition: Medical Stories

Vestibulitis since 1998

Posted In: Medical Stories 0 Replies
  • Posted By: lilalover
  • July 14, 2009
  • 04:32 PM

Well, it drains me even thinking how long I've had it, but knowing I am not alone is why I am writing here. I used to belong on other groups, but they just upset me, so I stopped. Anyway, here's my story.

In 1998...I was diagnosed after having 6 months of recurring infections- yeast, vaginal, and so much pain in the vulvar area. I also had a cyst at the time, so my doctor recommended surgery. I had surgery in January 1999, a laparoscopy as well as a vulvar vestibulectomy. The surgery was successful for only 6 months. Then...the vestibulities returned, but inside. WORSE THAN BEFORE!!!

So, since then, I have suffered, and suffered and suffered. I have tried creams, numbing, neurontin, everything but biofeedback because of the major side effects.

I suffer from CHRONIC yeast infections, itching, burning every day. Sex- forget about it. Painful inside, outside...you name it. I am so frustrated.
For the last 2 years, I have had nothing but infections, and now my body is just refecting everything. I am having allergic reactions to medictions, and I just don't know what to do? I am on psychiatric medication for mood disorder, or I probably wouldn't be here. I am also on BC pills so I don't get cysts.

I am just very frustrated, and it seems my doctor is no longer able to help me.

I know there really aren't any specialists out here, I have been to UCLA and they didn't help me. WHERE DO I GO NOW?

Anyway...that's my story.

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