Discussions By Condition: Medical Stories

Vertigo

Posted In: Medical Stories 5 Replies
  • Posted By: Anonymous
  • July 9, 2007
  • 05:02 AM

I have been suffering with Vertigo for 3 years now and I have been to 5 different doctors and nobody seem to want to help me. I use to drive and I can't anymore. I don't dare to. It all started 3 years ago when I got some kind of virus and I couldn't even get up without my whole world spinning. A lot of times I will be standing still and if something or somebody moves, it triggers the vertigo. I find myself stopping constantly and hold my head just to gather myself together so I can move. Right now I wear motion sickness bands on my arms so I can function, but they only help a little bit. Without the arm bands on, everything in the room needs to be still or it spins so bad for me I can't stand it.
I told all 5 of the doctors that I keep getting a flutter in my head when I the vertigo starts and they all looked at me like I was stupid and said nothing. The problem with doctors is, if it hasn't happened to them, they think you are making things up. I like all 5 of those doctors I saw to go the next 3 years with the vertigo that I have and see how they like it. The ENT says it's not and ear problem so he sent me to the Neurologist and the Neuro sent me to physical therapy. That does nothing for it. The other doctor put me on medication so I can't function if I take it. Where is the relief for me. Is there anyone else out there who has suffered this badly with vertigo or is suffering? Is there anyone out there with any suggestion?

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  • Please go to the "I cannot get a diagnosis forum"Please read thread titled "The truth about CS/ME" also CFS/ME/Morgellon's/Alzheimersand "want answers, read here!!!!!!!!!!!!!!!!!!!!!!!!" these are a few good places to start....especially since you have already traced your symptoms back to the onset of a virus. You are not alone. there are several people in this forum having similar problems. Vertigo is a common thread. Hope you are well...mommy cat
    mommy cat 1654 Replies Flag this Response
  • I have been suffering with Vertigo for 3 years now and I have been to 5 different doctors and nobody seem to want to help me. I use to drive and I can't anymore. I don't dare to. It all started 3 years ago when I got some kind of virus and I couldn't even get up without my whole world spinning. A lot of times I will be standing still and if something or somebody moves, it triggers the vertigo. I find myself stopping constantly and hold my head just to gather myself together so I can move. Right now I wear motion sickness bands on my arms so I can function, but they only help a little bit. Without the arm bands on, everything in the room needs to be still or it spins so bad for me I can't stand it.I told all 5 of the doctors that I keep getting a flutter in my head when I the vertigo starts and they all looked at me like I was stupid and said nothing. The problem with doctors is, if it hasn't happened to them, they think you are making things up. I like all 5 of those doctors I saw to go the next 3 years with the vertigo that I have and see how they like it. The ENT says it's not and ear problem so he sent me to the Neurologist and the Neuro sent me to physical therapy. That does nothing for it. The other doctor put me on medication so I can't function if I take it. Where is the relief for me. Is there anyone else out there who has suffered this badly with vertigo or is suffering? Is there anyone out there with any suggestion?I have had recurrent vertigo for about 5 years. I don't know how many medications you have been on, but my doctor has used, I think, 5 different ones. I have changed medications primarily due to side effects. However, the last time I went he retested me and found the area of my inner ear that is affected has changed. Right now, I am off medication and waiting to see if this last drug has finally worked. It has only been a week, so I am not sure, plus I have been off medication before only to have the symtoms return after a few months.I have two suggestions. First, there are many medications, don't give up if one causes side effects. Second, have you gone to an ENT or a Neurotologist. The neurotologist has additional training and specializes in vertigo and balance issues. The drugs he has tried generally surprise my other docs - because they aren't generally listed for dizziness (in fact the last one had that as a side effect). The dosages have been very low. The other drugs I had to take for 1 year for them to be effective. This last one , I only took for 3 months and apparantly it is a new treatment coming from a doctor, I think in Cleveland, but I am not sure. Anyway, he told me it has an 80% success rate, with my particular type of vertigo. I am not giving you the names of the drugs, partly, because I can't remember and would have to look them up and partly because,from my understanding, they are very specific to the location of the problem.I still due not know the underlying cause of my vertigo. I believe it is related to my other neuro symtoms, but this is one symtom that I have some success in controlling and now I hope curing.Good luck,Uni
    Anonymous 42789 Replies Flag this Response
  • I would check into Menieres Disease because you have alot of the symptoms. http://www.menieresinfo.com/ Take Care As EvEr Cat
    kitcat48 80 Replies Flag this Response
  • Vertigo can manifest itself as really unsettling symptoms such as everything spinning and dizziness with a feeling of nausea and vomiting; you might feel like you are being pulled down. Part of the treatment for the condition often involves using drugs to treat these symptoms as well as the underlying causes. We will examine some of these drugs here. As well as the drugs that are currently used by physicians there are also other drugs being tested alternative remedies that seem to have food results. VESTIBULAR SUPPRESSANTS The most common medication for treating vertigo is vestibular suppressants. One of the symptoms of vertigo is nystagmus; an involuntarily controlled eye movement that occurs as part of vertigo. The vestibular system is what helps the brain deal with balance and our position in space. Vestibular suppressants work by dampening down nystagmus. These drugs are also used for motion sickness and it is claimed that generally any drug that works well with motion sickness can help with vertigo. Examples of vestibular suppressants include; ativan, valium, and amitriptyline. ANTICHOLINERGICS Anticholinergics are another type of drug that is used in motion sickness that can work well with vertigo. These drugs work by increasing our tolerance for motion and so reducing the unpleasantness associated with vertigo. These don't tend to work well if the symptoms have already appeared. ANTHISTAMINES Antihistamines have anticholinergics properties but they can be used after the symptoms have started. ANTIEMETICS Antiemetics are used to control nausea and they can be useful in treating vertigo as this is a common symptom. Many antiemetics work by stopping the signals that tell the brain stem that the body needs to vomit and so you experience nausea; these signals are sent inappropriately during vertigo. NATURAL VERTIGO REMEDIES As well as the usual vertigo remedies used by the medical professionals there are also natural remedies that have been found to be useful. Ginger is well known for treating motion sickness and seems to work well with vertigo. Ginko Biloba is also believed to reduce the symptoms of vertigo by increasing blood flow to the middle ear. Tanacetum parthenium can work by reducing inflammation in the middle ear. Vinpocetine is also viewed as having properties which stimulate the brain and reduce the symptoms of vertigo. Homeopathic remedies are also having great success As well as these drug treatments there are also other non-pharmacological ways of dealing with the problem.The most common cause of vertigo is benign postural vertigo and this is caused by loose crystals moving around in the inner ear and interfering with the normal functioning of the vestibular system. When this is the case it will often be moving these particles out of their current position that will be the focus of the treatment. In these cases different manoeuvres of the head will be the real mainstay of treatment. It is often the case though, that pharmaceutical agents are useful with dealing with the unpleasant symptoms that are caused by vertigo such as nausea and that awful spinning feeling.
    toufique 2 Replies
    • November 28, 2009
    • 04:21 PM
    • 0
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  • I hear your pain and feel for you cause I've been there. It sounds like Chronic Epstein Barr Virus to me. I have the virus chronically. I have literally with drugs, misdiagnosis, non-treatment of what I truly have, drug withdrawals, etc... been to ***l and back. I've barely lived to tell the story! Yes, you can come back from the ***l you're in. Cut through the doctor BS and go to a real doctor who heals. If you can't at least call these people and ask for a referral to a good doctor in your area that works with Chronic Epstein Barr Virus. I doctor with, and only with Clinix in Centennial, Colorado. The doc that is the Chronic Epstein Barr Virus go-to guy is Dr. DiAngelo. His wife has the illness. If you are not in Colorado and can't afford to make a special trip (it may be worth it if possible) then like I said call them ask for a referall to a doc who does work with the CEBV. You at least need tested. Most docs don't even recognize this or know anything about the tests since it's a woman's illness and in the med system if they can't see it and it only affects women, it just plain don't exist to them. The female docs are often guilty of the same woman hating attitute. It sounds like you had Mono (Epstein Barr caused this) and never got over it. If it's that no, you are no longer contagious. For complete treatment you may need to go onto the so-called 'Cave Man Diet', also known as the 'Stone Age Diet' and be careful with fruits, carbs, and sugars (since fruits have sugar, and carbs turn into sugar in the body). That helps the immune system deal with the CEBV and put it into 'virus jail' where it belongs. If you have CEBV, you may need to find out why you're immune system isn't dealing with the virus properly. A common cause is food allergy. Candidas also may accompany CEBV and in the event that you do have it, the cave man diet helps with that both illnesses. With the CEBV I do have vertigo, but not as bad as you do. It manifests a little differently with different people, but do you have almost or entirely constant fatigue? Such fatigue is always present with CEBV. Also, if you have CEBV alternative medicine is best, and the Meyer's Cocktail can help. It may be hard to find a doc that will do it. I had to drive the 200 miles weekly to go to Clinix for it. The docs all fear going outside the box, acting as if the entire world is out to sue them! They make more money in this way and do less. Hey we can also blame the pharmacutical companies who involve themselves with funding medical schools, and the FDA for driving costs up and and for being genocidalists. As for the Meyer's cocktail I've had 5 treatments so far and it's helped a lot. The dizziness/vertigo is gone and the fatigue has let up quite a bit. An MRI is a good idea too. Kindly, careful with the ego, tell the doctor what you want and let him/her earn his/her big overpaid bucks. You may've suffered an encephalitis infection (on your brain) when you caught the severe viral infection. If so, that has to be dealt with differently, but you still CAN heal. I did, encephalitis caused me to have seizures throughout my lost adolescent years. If it's encephalitis it depends on the area of the brain affected for whatever specific symptoms you'll have. Finally (and I hope you feel where I'm coming from) I prayed that God would heal me and visualized my brain healing. Within 3 mos the lesion on my brain healed and the seizures went away. This is unheard of. The brain is supposed to heal very slowly. It is nothing short of a miracle, one that you can have too : ) With encephalitis take care to deal with inflammation, and I don't mean drugs, but homeopathics are better for that, the naturopath doc at Clinix, Dr. Young can help with that. Here's the website for a doc that'll earn his/her money www.clinixusa.com. Take care.QUOTE=Unregistered;53191]I have been suffering with Vertigo for 3 years now and I have been to 5 different doctors and nobody seem to want to help me. I use to drive and I can't anymore. I don't dare to. It all started 3 years ago when I got some kind of virus and I couldn't even get up without my whole world spinning. A lot of times I will be standing still and if something or somebody moves, it triggers the vertigo. I find myself stopping constantly and hold my head just to gather myself together so I can move. Right now I wear motion sickness bands on my arms so I can function, but they only help a little bit. Without the arm bands on, everything in the room needs to be still or it spins so bad for me I can't stand it. I told all 5 of the doctors that I keep getting a flutter in my head when I the vertigo starts and they all looked at me like I was stupid and said nothing. The problem with doctors is, if it hasn't happened to them, they think you are making things up. I like all 5 of those doctors I saw to go the next 3 years with the vertigo that I have and see how they like it. The ENT says it's not and ear problem so he sent me to the Neurologist and the Neuro sent me to physical therapy. That does nothing for it. The other doctor put me on medication so I can't function if I take it. Where is the relief for me. Is there anyone else out there who has suffered this badly with vertigo or is suffering? Is there anyone out there with any suggestion?
    Anonymous 42789 Replies
    • December 2, 2009
    • 00:39 PM
    • 0
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