I have been experiencing symptoms over the last 2 years that, through many tests and the wonderful resources at the Mayo Clinic, has been diagnosed as a lymphatic or thoracic duct leak. This leak is not like any others that I have read about and has my thoracic surgeon baffled. The leak occurs sporadically - 2 times in 2006, 4 times in 2007, and once thus far in 2008. It starts with pain in my lower back near my spine which eventually moves around to my abdomen area creating a circle of cramp like pains. Sometime later (4 - 8 hours) I develop an instant swelling at the base of my neck on the left side (between the neck and the clavicle). This swelling gradually resides over 1 -3 days. While the swelling is residing, I have significant pain in my stomach area and my abdomen area, reduced when I am laying, increased when I am standing. I had an incident on June 12th and they ran a specialized MRI test on me (2 hours in the tube) which showed them great pictures of what was happening. There is a leak that is occurring in my lower back area and the chyle is moving up through my chest where it is somewhat hampered by organs, bones, muscles, etc. Once it gets up past my clavicle it is "released" into the soft tissue area at the base of my neck (hence the swelling). The chyle then travels back down and ultimately ends up in my abdominal area and is reabsorbed into my body. My team at Mayo has never seen anything like this, can't explain why it is happening, aren't sure why or how it heals itself (since it only happens periodically) and is not sure how to fix it. Has anyone ever experienced or known someone that has experienced anything like this?Reply Follow This Thread Stop Following This Thread Flag this Discussion
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