I have been rectally bleeding for 4 years now. I have been to more than a dozen doctors overall, 8 of the G.I. doctors. I have had at least 13 bowel surgeries, but the last one was in 1999. No problems showed up until 2005, when I began to bleed heavily (rectally). I didn't have time to deal with the issue, as I had a newborn grandson to babysit and a mother dying of cancer. When my hemoglobin got to a critical low of 6.6, I had to have the first of 9 blood transfusions. The doctors have run every test known to man of my G.I. tract, and can find absolutely NOTHING. I bleed pure, blackish/dark red blood, usually with clots in it. Often, the clots are as large as the palm of my hand. I have had nuclear scans, "oscopies" until I am sick of them (both endo and colon), and no one can give me a diagnosis. My most recent G.I. doctor told me that (very cavalierly, I might add), approx. 15% to 20% of G.I. bleeds are NEVER found, and I would just have to keep receiving transfusions until they became too dangerous (about there now). I spent 45 days in the hospital last year alone and had 9 transfusions. I do have several diseases on top of the surgeries, Lupus, R. Arthritis, etc. If you know of anyone else who has had a similar issue, or could recommend anything (I am trying to think outside the box), I would greatly appreciate it! By the way, this is an EXTREMELY painful problem, and I am on chronic pain meds, which barely help at all. Thank you to anyone who can help me!!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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