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unexplained symptoms!!!

Posted In: Medical Stories 10 Replies
  • Posted By: partygirl
  • November 6, 2006
  • 11:48 PM

:confused: Hello, I am a 33 year old female who is concerned about MS. I have had various symptoms for the past year which include loin pain, numbness in face, arms and legs which comes and goes. I also suffer from neck pain which often radiates down my arm, and arm tends to become weak when exerted. I have also suffered from blurred vision and the feeling of somehting being dtuck in your throat. I ahd a brain MRI in April 2006 which was normal, and saw a neurologist last week who confirmed that neurological examination was normal. I expressed my concerns to her but she seemed convinced that my symptoms were not to do with MS seeing as the above tests were negative. I insisted on having a neck and spinal mri which she agreed to arrange. I have read on many sites on the internet that I it is still possible to have MS and have a normal brain mri?? I advise my neurolgist this and she told me in the six years of dealing with ms patients she had never seen one with a negative brain mri. I endeavour that you are very busy but i would extremely appreciate it if you took the time to answer my concerns, should I still be worried or accept the opinion of my neurologist?
My family are going crazy with me wanting me to accept reason but its difficult because i am continuing on this journey to find out what is wrong with me. Any advice welcome, thx.

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  • Hi... I am in the same boat... :confused: The right side of my back and leg has lost the sensation. Almost like when you get novacaine at the dentist. I can feel pressure, just not sensation. I have tingling that comes and goes (multiple ties a day) I also have the radiating pain from my neck to my shoulder that comes and goes. I have lost 26 pounds in the last 5 months. My neuro said my chest x-rays and mri were normal, my bloodwork was normal (so nothing for the weight loss) and didn't really think MS was at fault. I am at a loss too. My back doesn't hurt, but it is so uncomfortable. Let me know if you get any responses, I am curious to see...
    Anonymous 42789 Replies
    • November 7, 2006
    • 04:33 PM
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  • Hi-I don't know if this is the same thing, but my manager had to go to er a while ago. She thought she was having a stroke because her right side of her face went numb. Her right arm had been numb all morning also. Then about two hours after her face went numb her left leg went numb. She had taken all kinds of blood tests and also had cat scans and mri's done. They found nothing wrong. Well finally she had a mri done on her spine, and a specialist looked at it and told her that she has a disorder that causes the opening in her spin to close and thus pinch nerves which cause parts to go numb. She has been numb ever since at least a month now. Also she told me that she is in pain most of the time. So maybe you need to talk to a dr that knows more about nerves in the back. IAlso she was told she has to have a ekg??? or something close to that, done in order to find out where her spine is closing. Then have surgery. I know of at least one more person with the same thing. Hope this helps some.
    Anonymous 42789 Replies
    • November 8, 2006
    • 01:43 AM
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  • Hi... I am in the same boat... :confused: The right side of my back and leg has lost the sensation. Almost like when you get novacaine at the dentist. I can feel pressure, just not sensation. I have tingling that comes and goes (multiple ties a day) I also have the radiating pain from my neck to my shoulder that comes and goes. I have lost 26 pounds in the last 5 months. My neuro said my chest x-rays and mri were normal, my bloodwork was normal (so nothing for the weight loss) and didn't really think MS was at fault. I am at a loss too. My back doesn't hurt, but it is so uncomfortable. Let me know if you get any responses, I am curious to see... Hi thx for your response, silly how it sounds but its food to know that i am not the only one experiencing this!!! I am waiting for spinal and neck mri since i demanded I have one to my neurologist, god knows how long will have to wait though!! The numbness that i experiences comes and goes throughout the day, nobody close to me understands and its seems as if they think I am making the whole thing up, feel like i am going crazy sometimes!! Will keep you informed on what happens next, let me know if you hear anything.....!!!
    partygirl 3 Replies
    • November 10, 2006
    • 09:34 AM
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  • Hello!.....I have experienced similar symptoms as you,for quite a while. I have had many different tests and they have all come back normal. But, I have never had a MRI of the spine. That will be one of the things that will be discussed with my neurologists,as well. There is one more thing that I am definitely looking into and that is a Spinal Tap. I believe that you too should discuss that with your neurologists. There have been plenty of patients with MS who have had test results come back normal,until they had the spinal tap and the test confirmed they had MS. So, just keep that in mind and I wish luck finding some answers. Angels
    Angels 1 Replies
    • November 10, 2006
    • 05:57 PM
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  • I have been having similar symptoms since 2001! Have seen a couple of different neurologists and have had many MRI's (of the spine and brain). MS has been ruled out and everything always comes back normal. I have numbness in the right side of my face which never resolves, numbness down the back of my right leg and into my groin, and sometimes numbness over the top of my right forearm. I am a healthy, normal female. Exercise regularly and eat a healthy diet. I am a Pilates instructor, practice yoga and play tennis....and have been active all my life. These symptoms get even worse with ANY of my activities (especially it seems with anything "twisting") and now include upper back/neck pain. I have been chasing this for way too long, continuing activity with pain, and am ready to give up. Anybody out there have any suggestions?
    Anonymous 42789 Replies
    • November 16, 2006
    • 10:19 PM
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  • Hi Partygirl. I hope this doesn't offend you. For what its worth - my first advice would be for you to get out of the "partygirl" mode for a minute, stop drinking :o (just for even a few months) so you can really feel what is going on in your body. Alcohol is an anesthesia. Alcohol free & free of the party lifestyle, (even if its for a month or two) the healthy eating, sleeping that comes with not parying for a minute will give you and your MD a better idea of whats really going on and some of the symptoms might even go away. :) . If the idea of not drinking for a month or so, especially in order to find out about your health is a big issue for you, it might be a good idea to talk to someone about that fact. My wonderful Stepmother is lossing her legs due to diabetes caused by a lifetime of being a "partygirl". :( Take care.
    Anonymous 42789 Replies
    • November 16, 2006
    • 10:48 PM
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  • hi live4music, partygirl here, my log in name has no resemblance to my life style. thx 4 nought!!!!
    partygirl 3 Replies
    • November 27, 2006
    • 10:23 PM
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  • Hi to all! Just wanted to jump in here. MS symptoms can mimic alot of other disorders. I am going to play devils advocate here and say be sure that all of the usual suspects have been ruled out first. If you are not sure what those are then visit the NMSS website to findout, then do your homework. After you have exhausted all other possibilities with these other diseases then get real proactive and patient with your Doc's and Nuero's. I myself have not been diagnosed yet but have been suffering symptoms for about 6 months now(actively) 4 MRI's later show no lesions or so this doc says. I have been waiting for 1 1/2 months for my spinal tap to be approved. It seems this doc's office cant get their you know what together! But most important what I wanted to say here to everyone is that you all know your body better than anyone. Don't let up and if you feel your diagnosis isnt the right one get a second opinion. But be aware that your mind can manifest many symptoms if you read about them enough. There does have to be some dissemination in time in lesions showing up on MRI's. So be prepared for a long wait for a confirmed diagnosis.Also, When there are no lesions but the spinal tap is positive I have read it genarally is in patients that are in the age range of 40 to 50 and mor likely to be ppms. I am 39 yo. So it doesnt look to good for me right now but at least it isnt a fatal disease.Best of luck to YouKathy
    kitkat2 17 Replies
    • November 28, 2006
    • 06:44 PM
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  • Partygirl-While researching and researching possibilites for a diagnosis with my son. I stumbled across a disease called Chiari malformation. The symptoms are similiar to what you have described. It may be nothing and it may be worth checking out. I have a friend that suffered from this disease. With surgery she is fine today. Like I said before. It may not be what you are experiencing. But just check it out. Good Luck!momof3
    momof3 3 Replies
    • December 5, 2006
    • 07:11 PM
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  • I Am In A Similar Boat To Some Of You. I Have Had Numerous Sx Of Ms For Several Months--including Urination Problems, Constant Numbness Of Left Foot And Left Hand, Stiffness On Right Side, And Blurry Vision And Vision Decrease. My Mri Of Brain And Spine Came Out Normal. I Am Going For A Spinal Tap This Week. Blood Tests Haven't Revealed Any Other Problems. Since I Am 39 I Am Concerned I Have The Primary Progressive Type, Which Apparently Strikes Around My Age And Often Doesn't Show Up On An Mri. I Am Very Depressed And Anxious All The Time. My Friends Aren't Really Taking It Seriously But I Know The Symptoms Are Real. At One Point I Couldn't Urinate At All And The Eye Doc Said My Vision And Declined Dramatically In The Past Several Months. I Hope I Will Have An Answer Soon. But I Don't Want To Have Ms. But At This Point It Looks Like I Do. God Help Me.
    Anonymous 42789 Replies
    • December 12, 2006
    • 11:43 PM
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