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ulcerative colitis or celiac?

Posted In: Medical Stories 3 Replies
  • Posted By: krista23
  • January 30, 2010
  • 04:15 AM

hi im krista and i am 20 years old. growing up i was normal as far as gastrointestonal problems but after i had my daughter i was diagnosed with uc.that was in 2007. I tried Lialda and Asacol and they didnt work. I am still bleeding and crampy and bloated feeling all day it seems. I heard on the radio and from research that eating gluten free could help so I am now trying that as well. I still feel sick. the worst is that i cannot go anywhere without having anxiety about where the bathroom is, what if it is to far away, is there a bathroom, what if i dont make it. and in the morning to get ready for work i wake up out of a dead sleep because we only have one bathroom and i worry that if someone is getting ready and i have to go i cant because someone is in there. I can feel fine and then if one tiny thought gets inmy head about getting sick, I will immediatly start to feel sick and have to go. I cant enjoy trips or fun things normal people my age do. Like going to an amusment park, long car trips,taking my daughter to the park or the mueseum. I cant even put her to bed sometimes because if I hold her the wrong way it will bother me. Is this just anxiety or am i really sick? what can I do?i feel helpless!:confused:

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  • hi im krista and i am 20 years old. growing up i was normal as far as gastrointestonal problems but after i had my daughter i was diagnosed with uc.that was in 2007. I tried Lialda and Asacol and they didnt work. I am still bleeding and crampy and bloated feeling all day it seems. I heard on the radio and from research that eating gluten free could help so I am now trying that as well. I still feel sick. the worst is that i cannot go anywhere without having anxiety about where the bathroom is, what if it is to far away, is there a bathroom, what if i dont make it. and in the morning to get ready for work i wake up out of a dead sleep because we only have one bathroom and i worry that if someone is getting ready and i have to go i cant because someone is in there. I can feel fine and then if one tiny thought gets inmy head about getting sick, I will immediatly start to feel sick and have to go. I cant enjoy trips or fun things normal people my age do. Like going to an amusment park, long car trips,taking my daughter to the park or the mueseum. I cant even put her to bed sometimes because if I hold her the wrong way it will bother me. Is this just anxiety or am i really sick? what can I do?i feel helpless!:confused:Hi. I understand (somewhat) how you feel. I had a question a while ago about celiac, but no one has responded yet so I thought I'd at least respond to yours with what I do know with the hope that I can be of any help.I've had GI problems for at least 12 years. Almost every time I eat, I have 30 min to make it to a bathroom. I know where all the restrooms are when I'm driving to work or around town. I hate using public restrooms especially if there is only one because I'll get people banging on the door because it can take me a while before I feel like I'm over it. I guess one important question is are you currently seeing a GI doc? I am, but they are of no help so I'm trying to find a new one. What I do know about celiac, is if you want to be tested for it, you need to NOT be on a gluten-free diet, because the tests will then not show a reaction from your immune system. They will most likely do a blood test to see if you have the autoantibodies produced from the gluten reaction. Beyond that, is an upper endoscopy. If you've been diagnosed with UC then I'm assuming you've had one before? Keep in mind, I am no doctor. It is possible that your anxiety could be making you sick, but then there is a question of what comes first? What I have learned, is start keeping a log of EVERYTHING you eat and how you react. How long before you got sick? How long before you felt better? Then see if there are any patterns. Also, make a list of all of your symptoms to take with you when you see a doctor. I think one of the biggest problems with the medical profession these days is that there are numerous ailments that can be linked to one another, but some doctors will only treat one aspect which leads to people not really getting better. And don't leave out anything you may think is insignificant. Do you have a skin rash? Headaches? Muscle aches? This may help a doctor find the true cause.I found this site because I wanted to check multiple symptoms at once. Have you entered in your symptoms and checked any alternate causes yet? If not, you should.I'm sorry that I can't be more helpful. I wish you the best and hope things work out for you!
    Anonymous 42789 Replies
    • February 6, 2010
    • 02:17 AM
    • 0
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  • I have had stomach problems all my life, they run in my family, and so I know a thing or two about the anxiety associated with finding a bathroom. I am an expert!!! Ok so... where to begin? From the ages 9-19 I was in and out of doctors' offices for testing, all coming back negative of course, saying I was making this up and I wasn't really sick. That I was making myself sick. Which is of course, slightly true. However, I knew there was something else going on and all the doctors was wrong. When I started bleeding I fought tooth and nail to find a doctor who would take me on and listen to me. My primary care said I was fine, I said I wanted a GI. The first GI wouldn't even listen to me and his secretary said bleeding was normal (no it isn't), so I went back to my primary care and fought for another GI to take me on, and he did. He saved my life! I made an appointment with him, told him everythingggg, and he said I know what you have but I have to test you for it anyways; you are sick, you are not making this up. And thus, turns out I have colitis! During the years I was being tested as a young teenager, I knew I needed some anxiety medication or I wouldn't be able to make it to class, work, you name it. I found it hard just leaving my house and as soon as someone when into the bathroom my internal clock started ticking (when are they coming out, I need to go in, I'm not going to make it). The anxiety medication made that voice and emotion stop. I am able to go on trips, vacations, you name it because I am on a daily med. You might need an anxiety med or a depression med depending on what your therapist thinks, but you do NEED it to live normally. When I went off it for a while and my stomach was getting worse, my fears got worse. Now I know where every bathroom is, I have no fear of traveling even down the street, and I know when I am sick that I have restrictions but I know how to take care of myself and to quiet those fears. My family is supportive and since we have one bathroom asks if it's ok if they use it, they will be fast (when I am having my bad days) and it all works fine. Now I am 25, so it took me awhile to find my groove and for my family to adapt. I read a lot of books on anxiety, auto-immune diseases such as UC, and what stress can do to your body (ie: make you sick). You need to educate yourself, sounds like you need a new doctor to fight for you, and it wouldn't hurt to have take a med everyday to calm those nerves. Best of luck!
    Anonymous 42789 Replies
    • November 22, 2010
    • 07:10 PM
    • 0
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  • hi im krista and i am 20 years old. growing up i was normal as far as gastrointestonal problems but after i had my daughter i was diagnosed with uc.that was in 2007. I tried Lialda and Asacol and they didnt work. I am still bleeding and crampy and bloated feeling all day it seems. I heard on the radio and from research that eating gluten free could help so I am now trying that as well. I still feel sick. the worst is that i cannot go anywhere without having anxiety about where the bathroom is, what if it is to far away, is there a bathroom, what if i dont make it. and in the morning to get ready for work i wake up out of a dead sleep because we only have one bathroom and i worry that if someone is getting ready and i have to go i cant because someone is in there. I can feel fine and then if one tiny thought gets inmy head about getting sick, I will immediatly start to feel sick and have to go. I cant enjoy trips or fun things normal people my age do. Like going to an amusment park, long car trips,taking my daughter to the park or the mueseum. I cant even put her to bed sometimes because if I hold her the wrong way it will bother me. Is this just anxiety or am i really sick? what can I do?i feel helpless!:confused:Dear Krista,I know how you feel all too well. I was diagnosed about 10 years ago with ulcerative colitis. I have family history of both UC and Celiac. I've been hospitalized three times in the last 5 years and each time bed ridden for months after. I have a 5 year old boy so the stress about getting sick is aweful. I never know why or when I'll get sick and this has caused me serious anxiety over the years which as gotten worse this year especially. The drug that has finally worked for my colitis is Imuran so I would suggest asking your doctor about it. In order to stop the colitis we have to deal with the anxiety as well, it a bad cycle that I have yet to master to be honest but i have found some relief with acupuncture. When I go at least once a month my anxiety and my colitis are much much better. I still struggle with moods and anxiety but acupunture has made a difference. Try it, it can't hurt:-) I wish you all the best, hang in there.JM
    Anonymous 42789 Replies Flag this Response
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