I was diagnosed in the year 2000/2001 with this rare disease . I had taken a statin Tricor, after a time I was experiencing fatigue, and was very achy, finally someone noticed my CPK level was pretty high, and I had not exercised or ran, which I understand raises CPK levels, so after about 8 months on Tricor, I was told to stop. I had a biopsy done, taken from my thigh muscle, and all sorts of microscopic tests, eventually they diagnosed TAM. They really knew very little about the disease. I have seen a neuromuscular doc at the University of Michigan, Ann Arbor, MI. Again, they just said it is like "gunk" building up in the muscle. There is no known treatment I was told for this disease. I am wondering if there is anyone that has any new information or help with this malady. Thank you so very much. Jim V.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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