Been reading this site just getting the courage to write my story. :oThe last ten years have been full of fatigue, Got epstein barr virus mono about 10 years ago developed into an infection in my lymph nodes affected my brain could not walk well (limp) was having electrical sensations in my brain. tested me for ms said it was not that ..three years later thought it was fibro. The doctors had me on so many medications. Ended up on medications for heartburn from side effects from the medications. Then i got gastric internal bleeding and had pneumonia. eight day hospital stay.. Then shortly after that I had extreme burning in my feet and my legs up to my knees. pins and needles both legs. My hands can not open anything, drop items all the time, arms fall asleep. Still have a lot of fatiigue. Finally asked my doctor sure it isnt b12 he just said we tested you years ago. Lets test you again blood serum came back 290 mcv was 98.2 mch was also elevated. My doctor was going to have me come back in to treat me then he decided he was retiring. The new doctor did give me a b12 shot said I could have one a month for three months. Did not seemed concerned. No doctor believes my neuropathy is from b12. I just found out i have a thyroid nodule. Is that related to the b12?. Thanks for your imput. Larena
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