Discussions By Condition: Medical Stories

Three Years, No Diagnosis

Posted In: Medical Stories 2 Replies
  • Posted By: Blackthorne
  • June 16, 2011
  • 06:30 PM

Hi, hope someone can help me.

I am a 48 year old female. I have been diagnosed with familial hypercholesterolemia; yeast, whitefish and carrot allergies; and GAD. I do not drink alcohol nor do I take anything but my prescription drugs; Lexapro, Crestor, and OTC antihistamines.

Four years ago, I started getting recurrent cystitis. The bacteria causing it was e coli. I was given antibiotics repeatedly.

Suddenly, I began to get horrible symptoms. Terrible headaches, body pain, tendon problems, joint pain, slight fever, rashes, nausea, acid reflux, pain in the mouth, bleeding gums, swelling hands, extreme fatigue, pressure on the chest, impaired hearing, uveitis (allergy drops do not help), blurry vision, etc. The joint pain was worst in the hips, ankles and hands. This was so bad that I could not do anything; I could not use my hands to even pull down my pants to urinate. It hurt to walk. This occurred for two weeks, and once the symptoms began to die down, I was sent to an allergist, who said I was probably allergic to the antibiotics. He gave me Xyzal and a plethora of other drugs, which did nothing to alleviate the problem.

My PCP gave me prednisone; it improved the symptoms but caused severe headaches, dizziness, excessive urination with clear urine, extreme thirst... the PCP claimed that it had caused my blood sugar to elevate (I am not diabetic). My rashes did diminish, but I was left with scattered purple lesions.

It took me over a month to decently recuperate from the symptoms so that I could go back to daily household chores and exercise.

The problem is, this undiagnosed problem keeps coming back at least every couple of months. The episodes are not as severe as the first incident. I will develop a headache, have a slight fever, my vision becomes blurry, then my hands will swell and begin to function less properly. I became fatigued and the chest pressure will follow. This wipes me out completely, and all I can do is sleep.

The problem is with every incidence, my hands get worse and worse and I can no longer open jars and other such operations.

I have been sent repeatedly to the allergist, who sees nothing wrong. I have been to a urologist who says I have a lovely, operational renal system. I have had a CT scan of my head and neck; everything normal. I have had a chest x-ray, which showed slight irritation of a small area of the lower lobe of the left lung, but normal. I had an x-ray of my sinuses... normal. I have an increased WBC count, and sometimes there is trace-to-moderate blood in my urine... usually around the time of an episode. However, there is no indication of nitrites.

I keep getting bounced between specialists, and they are only paying attention to the specific parts and not looking at the whole. I am still undiagnosed after three years... and it is hard to hold down a job if I keep getting these episodes that wipe me out for 1-2 weeks out of every eight.

Please offer your opinions, and thanks for your time.

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2 Replies:

  • Look into morgellons disease online.
    Anonymous 42789 Replies Flag this Response
  • Look into morgellons disease online.Thank you for taking the time to respond.I studied the information, and I do not have the main symptoms: living with constant crawling, itching and biting sensations. having skin lesions, some small and superficial, others deep non-healing wounds, which break out all over your body and extrude strange, unidentifiable fibers. experiencing such cognitive and neurological decline that you are no longer able to work.My inability to work has nothing to do with neurological and cognitive decline. It's the diarrhea and arthritis-like symptoms. I do not have formication, and I do not have unusual materials extruding from my skin.But I really appreciate you taking the time to give me ideas... and thanks for helping!:)
    Blackthorne 1 Replies Flag this Response
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