Discussions By Condition: Medical Stories

They say it's trigeminal neuralgia/neuritis -- I dunno... 9 months now. Please help.

Posted In: Medical Stories 3 Replies
  • Posted By: Anonymous
  • July 24, 2010
  • 06:51 AM

I know people don't read novels on the Internet so here's the cliff notes:

October 2009:

- Age 25 male, 180lbs. Healthy, exercise. Blue collar job.
- Began feeling random tooth "sensations" for about a week.
- Saw dentist, X-Ray, said sinus infection: given antibiotics.
- No change. Halloween weekend INTENSE 10/10 pain. Whole weekend was true ***l.

- Saw doctor/dentist that Monday. Nerve blocks calm the pain and allow sleep. Doctor says typical "trigeminal neuralgia"

- Rx'd carbamazepine. No change, took for 6 months.

February 2010:

- Rx'd Klonopin. Helps at night but is strictly a night time drug.

March 2010:

- Saw Neurosurgeon and ENT who redx'd with "atypical trigeminal neuritis" due to lack of relief periods. My pain/feeling is 24/7.

- Nerve blocks 6 times over 2 months. Lidocaine/marcaine - No relief after it wore off.

July 2010:

- Got insurance back (yay), Rx'd Lyrica. Will start it tomorrow night.


One tooth (Bottom, to the right of the vampire tooth, right side) has random sensations/pain. Not dental as 3 X-rays proved the tooth is fine. Dentist recommends root canal/crown but TN sufferers suggest against this as it may cause more pain.

If I wiggle the tooth I get more sensations/feeling.

I never had this issue before October 2010. Other triggers are cold (less than 50F) temperatures outside.

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3 Replies:

  • As recent as 1979, a newly described pain disorder was reported. This disorder, which came to be known as osteocavitational lesions (Ratner's bone cavities), produced pain similar to trigeminal neuralgia, both the typical and atypical types. In fact, usually these patients were diagnosed with trigeminal neuralgia.The diagnosis is complicated by the fact that the x-ray examination of the bone is usually normal. Also, NICO produces referred pain patterns which also serve to confuse both patient and doctor. However, just like trigeminal neuralgia, there are trigger areas that, when pressed, produce pain. These trigger areas develop directly over the areas of dead bone. The mandible is affected more often than the upper jaw.One important aspect of NICO is a history of tooth extraction usually years earlier. Any tooth may be involved. However, lower back teeth seem to be most common. Small areas of bone actually die, producing neuralgia-like pain symptoms. It appears that after a tooth extraction, NICO may develop due to injury of the blood vessels in the area which ultimately results in poor circulation, resulting in bone death in some cases. Pathologically, this is termed osteomyelitis. This bone infection, which can result in bone death, has been known for years. Yet, in the form of NICO, it is a newly described problem.Good Lucktrigtechr
    Anonymous 42,789 Replies Flag this Response
  • What is NICOThanks for your reply. I'll talk to my doctor.
    Anonymous 42,789 Replies Flag this Response
  • What is NICOThanks for your reply. I'll talk to my doctor.It is Neuralgia-inducing cavitational osteonecrosis (NICO), I know your pain I am going to see a doctor at the end of the month in Dallas for it... Good luck to you. Took me over four years and countless doctors to diagnos myself.
    Anonymous 42,789 Replies Flag this Response
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