;)I was diagnosed with sporadic OPCA 3 years ago. My primary doc, after a CAT scan said "Your brain is shrinking." Finally, I saw my neuro and after a bunch of blood work and an MRI, he confirmed, Yes, it's shrinking. Not, the entire brain, but the cerebellum, which controls balance, motor skills, swallowing and handwriting!!
It's rare, progressive and chronic. There is no cure or med.....perhaps stem cell research will reveal some hope. Anyway, I am at the "cane" stage and will be in a wheelchair probably in several years. All of that is to say, This is a solitary disease. 1 in 100,000 persons are "challenged" with OPCA. Are there any readers here who have been so diagnosed. I am eager to find persons who experience what I experience and understand the feelings that go with it. Please, respond if you are interested in e-mail correspondence.
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