Discussions By Condition: Medical Stories

Spinocerebellar ataxia-progressing fast

Posted In: Medical Stories 0 Replies
  • Posted By: nurse_shark
  • March 2, 2013
  • 11:40 PM

I'll explain my symptoms and why I know I have it. In retrospect, the beginning of my disorder was being clumsy. That started around 8 years ago. My speech has been slurred for about 2 years. Balance problems and walking problems have been around 18 months. My GP thought I had MS; so I had an MRI of my brain, which was how I found out my cerebellum is atrophied. That was in October 2012. Since that time, my fingers have gone completely numb (that started in April 2012-when I was typing for school). Recently, my forearms and elbows have become numb. Walking is becoming more of an issue.

I saw a neurologist, who tested me for the 12 that can be tested for.Depending on which site you search on: there's anywhere between 40-60 variations. He's the one that diagnosed me.

I also go to a gym, including yoga to try to slow the progression. Also,my driver's licence was taken away in November, because of the control of my legs.I also am going for a second opinion at the local Movement Disorder Clinic (which has many neurologists and physio).
I'm trying a gluten-free diet, again to slow the progression.

Any other ideas?

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