My husband has been ill for over 1 1/2 years. He had a tumor (myxopillary ependemoma) removed from inside his spinal cord in February 2010, which was a Grade 1.There are 3 Grades to spinal tumors. He has had several symptoms, which the doctors say most don't have anything to do with the cancer. After the doctors had given up on him, ready to send him back to work and stop giving pain medicine, I DEMANDED a PET/CT SCAN. Unfortunately
the report said that he had lung cancer, on a Friday. Then, on Monday, we were told that it was a "TYPO". With the first report, we were able to get him into be seen at a different hospital, which did ANOTHER M.R.I.. That found that there is another tumor inside the spine. The bad thing is that the prior M.R.I. was done just 2 1/2 months before. Now they don't know if it is a higher Grade tumor, or a different type of cancer, since it is obviously more agressive. The first tumor took about 2 years to grow, so they say. Now my husband is
having radiation every weekday. Something that should have been done after the first tumor
was removed in pieces, since it was inter-twined in the nerves. Again, after arguing and DEMANDING to have another M.R.I. done, he went in to have one done today of the brain and neck, and another will be this Friday of the thorasic and lumbar. The reason for pushing
for this is that he is getting worse as the days go by. ONE of the scariest things is that for
a spinal tumor to be the "primary cancer" is about 1%!! Almost always, spinal cord and spinal fluid cancer is SECONDARY to another cancer!! Who do we believe, which way do we turn, and what do we do before it is TOO LATE!?!?!?! His fatigue, walking, SEVERE headaches, SEVERE lower back and down the leg pain, and much more is getting worse. His color is very grey and pale looking. If ANYBODY knows ANYTHING about this disease that has no cure, and no given prognosis, PLEASE, PLEASE, PLEASE HELP US!!
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