Discussions By Condition: Medical Stories

Skin problems, had enough :(

Posted In: Medical Stories 4 Replies
  • Posted By: Anonymous
  • September 6, 2009
  • 00:28 AM

Hi all, this is my first time posting on any forum about my skin problems, but im coming towards the end of what i can take. For me, it all started when i was about 16-17 years old. Before then, i had no real problems with my skin, i had a liitle bit of eczema on my legs and a bit of dandruff on my scalp in my early teenage years, which was bad enough at the time, but cleared up soon after leaving school.

When i was 16 or so something strange started happening. Randomly i would start getting hot flushes that would originate in my ears, my ears would get very very hot and make my whole face feel very uncomfortable, the strange thing is that there wouldnt need to be a reason for this to happen. I also had a bit of acne on my face and quite alot on my back which i was very conscious about. No matter what i did i couldnt get rid of it. After visiting the local dermatologist he prescribed me with roaccutane, which i believe i took for about 9 months but it may have been more. Before i go any further though, i would just like to say that in no way am i blaming Roaccutane for any of the problems i have now, im just basically going through the history of things up to this point. So i was on Roaccutane for about a year and it did get rid of pretty much all of my acne, at least on my face anyway. This was when i was 17, and was also the year when i went on holiday to Florida with my family for 2 weeks.This is when things really started to happen.

Before this holiday, i had never used any moisturizing product anywhere on my body and had no idea about skin care. Mid week into the holiday i noticed that i had some dry flaky skin on my nose, which i was quite shocked about because i had never had dry skin on my face before. This got a little bit worse and for the rest of the holiday i had to apply vaseline on to my face daily as this is all we had. After getting back from holiday problems with my skin started to escalate. Since then for almost 7 years now ive been living in my own personal ***l.

Soon after the holiday i started losing my hair, i got sebborhea on my face as well as pityrosporum folliculitis all over my body, i have cold urticaria(hives) which means that my body has an allergic reaction to the cold, this can be anything cold, a soft drink will sometmes make my hand swell up, sometimes ice cream makes my lips swell up,even a luke warm wind will set my face off.The skin on my face has become hyper sensitive to almost anything i put on it. When my body gets warm, it doesnt even have to sweat i get an extreme pricking sensation all over, the only way i can describe it, is that it feels like a needle is pricking every pore in my skin all over my body at the same time. I think this may be prickly heat. If i just graze any part of my skin it will turn into eczema and will take months to heal, i have it on my fingers at the moment , it started on one but has since spread to multiple fingers on each of my hands. No creams or ointments have gotten rid of it. I have to exfoliate the skin on my face almost daily, because i get a build up of dry scaly skin on my face because my oil glands are all out of whack. If i go a day without putting some sort of moistureiser on my face, it becomes instantly dry sore, and very tight. I cant go swimming anymore because water has an extreme drying effect on my skin. When i touch my face or very lightly rub it, even if it is moisturized it will start to flake. Growing very light stubble even makes it flake. I also have mild piles which ive had for about 5 years which wont go away, embarrasing as it may be :(

I have tried almost every treatment i can think of to help myself. Ive tried steroid creams and medications, anti fungul medications. Hundreds of moisturizers, chinese herbs which gave me heart palpitations and made me start hallucinating, ive tried changing my diet, eating very healthy food, drinking lots of water, taking anti histamines,having laser treatment on my face,trying specialist face treatments that have high concentrates of vitamin A. going to a psychological healer, i even got in contact with one of the most famous healers here in the Uk and i can honestly say that not one single thing i have tried has helped any of the problems that i have. I have a twin brother, not identical, but he possesses none of the problems that i have. I have had blood tests but nothing has come up unusual. But there must be something very wrong with me somewhere internally, maybe its something that the medical profession as it is now, has no clue about but i know its something internal. I'm sick of going to the Doctors for them just to look in a book and give me another steroid cream to try. Even the skin specialist at the Hospital was useless.

Mentally im exhausted, years of dealing with all of this has left me a shadow of what i used to be. I no longer find enjoyment in anything life has to offer because my body wont allow me to enjoy it. Many nights i just lie in bed crying wondering whether i'm being punished for something i have no memory of doing.

Reply Flag this Discussion

4 Replies:

  • When i was 16 or so something strange started happening. Randomly i would start getting hot flushes that would originate in my ears, my ears would get very very hot and make my whole face feel very uncomfortable, the strange thing is that there wouldnt need to be a reason for this to happen.By any chance, do you use a cell phone, cordless phone, or the computer a lot? And at what age did you begin to use these?You might want to read these two articles which deal with an emerging environmental illness. The second one was written by a Swedish doctor. Hives, strange rashes, infections - all sorts of skin conditions can result from these exposures.'I'm allergic to modern living': http://www.dailymail.co.uk/news/article-443717/Im-allergic-modern-living.htmlMystery in the Skin:http://www.feb.se/ARTICLES/OlleJ.html
    kermworm 81 Replies
    • September 7, 2009
    • 04:57 PM
    • 0
    Flag this Response
  • Yes it is internal, nothing applied on the outside will really help. Avoid corticosteroids as they don't cure anything, while permanently drying and thinning the skin - worst possible idea. Firstly, Chinese herbs should only be prescribed by a well trained Chinese Traditional Medicine (TCM) doctor, as the correct herbs depend on a sophisticated diagnosis, on your body type etc. Herbs that can heal can also harm. My mom had severe psoriasis / eczema (among other things) and I had serious piles (bleeding freely) and dry skin. All now well under control, cured even, provided we behave.It had to do with diet, but simply eating healthy food won't work. Both me and my mom seem to be partly unable to digest / metabolise fats. Who knows, that may in turn be from mild wheat intolerance - celiac disease, http://en.wikipedia.org/wiki/Coeliac_disease - harming our small intestines just enough so that fats go the wrong way. Last night my mom had peanut butter and during the night she got some psoriasis again, but we know what to do. I haven't had piles problems for months but can bleed again at will within days - I just need to eat meat, or full cream hard cheese. The fat seems to end up partly in my blood and partly in my rectum, unbalancing the environment there. A little olive or flax oil I can have, but they do make my skin drier. The body makes its own oils, the ones we eat can disturb that.Make an experiment. For 7 to 14 days, eat only brown rice cooked in water, topped with steamed veggies (cabbage, broccoli, pumpkin, carrots, spinach, cucumber) and a little salt. Additionally, overcook veggies in water, discard the veggies and keep the remaining water in the fridge up to a day, to drink in between. For the rest, drink only water (6-8 glasses per day). Supplement only with slow-release vitamin C, about 500 mg per day. In this way you eliminate meat, soy, milk, oils, eggs, yeast, wheat, overdose of vitamins, sugar, nightshade plants etc. If you are any better in a week, add deep ocean hake fish, without oil, steamed in a microwave. Then add some fruit, beans, tomato, fat-free cottage cheese, etc. If it gets worse, start from the beginning. Later also try to have fresh carrot juice and fresh mung bean sprouts - only from those meant for sprouting, other seeds have been poisoned for bugs. Eat a lot of sprouts (if it works for you), raw, discard the green hulls. AVOID all bananas and mangoes.I know the above diet from our Chinese Traditional Medicine (TCM) doctor. As said my mom (80) had very bad circulation together with eczema / psoriasis, everywhere but mostly on her legs and feet. Plus difficult high blood pressure and a slow, irregular heartbeat. Very tired. Also osteoporosis, gout and incontinence, and she had two light strokes. Having a good medical fund she went to all the expert Western doctors, in vain. The TCM doctor cured all of it, even the osteoporosis seems better (pending a scan). Her skin is however very thin in places, due to earlier steroids use. She has been off ALL medicine for over a year, only taking his herbs at times, and none of that either for 3 months now. She could hardly walk and now does 5 km/h on a treadmill. He also fixed her hernia, that her Western doctor wanted to operate on - one could feel it from the outside, it got smaller and now it is gone - only from acupuncture and herbs. I myself had this history of severely bleeding piles, dry skin, sinusitus etc. All gone now. One day we hope to discover our single original food sensitivity, so that we can recover from that and eat everything again. In the mean time the above is working for us.You may well cure yourself with diet alone, but also consider visiting a few Chinese shops / restaurants in your area. Ask their oldies who the best TCM doctor is around there. (Note however that many Chinese only believe in Western doctors.) Research this TCM doctor a bit, once found. Here in South Africa we have a council they should belong to, one can reclaim their fees from medical funds etc. All this is needed but proves nothing yet, so ask many real Chinese as well - there is an invisible energetic side to their most useful doctors. If s/he is from Taiwan and a Taoist/Buddhist, they seem to try harder. Expect results even after 1 or 2 visits. Try www.acufinder.com
    Curly Stooge 319 Replies
    • September 8, 2009
    • 08:46 PM
    • 0
    Flag this Response
  • Hi This may or may not be any use but you might want to try it. I suffered from awful eczema as a child and has every cream and tratment the doctors could over for about ten years then accidentally came across a herbalist or went through lots of history of me my family and my symptoms and gave me some minging herbal medicine to take and a special diet to cut out certain foods some of which could be reintrodiced and some ie diary I know now will trigger my skin to start bubbling again. I can tell as soon as I have had some if I have had too much but this has heloed me to control it and the initial consultation and subsequent medicine really cleared up all of my problems. I revisited another herbalist when the problems began to get worse a number of years later and was also given the same advice and medicine along with herbal cream to apply which again works wonders. I know the medical world can disapporve of herbalists but in my case without them I would never have got sorted, it may be worth trying, they are amazingly clever people. Good Luck :-)Hi all, this is my first time posting on any forum about my skin problems, but im coming towards the end of what i can take. For me, it all started when i was about 16-17 years old. Before then, i had no real problems with my skin, i had a liitle bit of eczema on my legs and a bit of dandruff on my scalp in my early teenage years, which was bad enough at the time, but cleared up soon after leaving school. When i was 16 or so something strange started happening. Randomly i would start getting hot flushes that would originate in my ears, my ears would get very very hot and make my whole face feel very uncomfortable, the strange thing is that there wouldnt need to be a reason for this to happen. I also had a bit of acne on my face and quite alot on my back which i was very conscious about. No matter what i did i couldnt get rid of it. After visiting the local dermatologist he prescribed me with roaccutane, which i believe i took for about 9 months but it may have been more. Before i go any further though, i would just like to say that in no way am i blaming Roaccutane for any of the problems i have now, im just basically going through the history of things up to this point. So i was on Roaccutane for about a year and it did get rid of pretty much all of my acne, at least on my face anyway. This was when i was 17, and was also the year when i went on holiday to Florida with my family for 2 weeks.This is when things really started to happen. Before this holiday, i had never used any moisturizing product anywhere on my body and had no idea about skin care. Mid week into the holiday i noticed that i had some dry flaky skin on my nose, which i was quite shocked about because i had never had dry skin on my face before. This got a little bit worse and for the rest of the holiday i had to apply vaseline on to my face daily as this is all we had. After getting back from holiday problems with my skin started to escalate. Since then for almost 7 years now ive been living in my own personal ***l. Soon after the holiday i started losing my hair, i got sebborhea on my face as well as pityrosporum folliculitis all over my body, i have cold urticaria(hives) which means that my body has an allergic reaction to the cold, this can be anything cold, a soft drink will sometmes make my hand swell up, sometimes ice cream makes my lips swell up,even a luke warm wind will set my face off.The skin on my face has become hyper sensitive to almost anything i put on it. When my body gets warm, it doesnt even have to sweat i get an extreme pricking sensation all over, the only way i can describe it, is that it feels like a needle is pricking every pore in my skin all over my body at the same time. I think this may be prickly heat. If i just graze any part of my skin it will turn into eczema and will take months to heal, i have it on my fingers at the moment , it started on one but has since spread to multiple fingers on each of my hands. No creams or ointments have gotten rid of it. I have to exfoliate the skin on my face almost daily, because i get a build up of dry scaly skin on my face because my oil glands are all out of whack. If i go a day without putting some sort of moistureiser on my face, it becomes instantly dry sore, and very tight. I cant go swimming anymore because water has an extreme drying effect on my skin. When i touch my face or very lightly rub it, even if it is moisturized it will start to flake. Growing very light stubble even makes it flake. I also have mild piles which ive had for about 5 years which wont go away, embarrasing as it may be :(I have tried almost every treatment i can think of to help myself. Ive tried steroid creams and medications, anti fungul medications. Hundreds of moisturizers, chinese herbs which gave me heart palpitations and made me start hallucinating, ive tried changing my diet, eating very healthy food, drinking lots of water, taking anti histamines,having laser treatment on my face,trying specialist face treatments that have high concentrates of vitamin A. going to a psychological healer, i even got in contact with one of the most famous healers here in the Uk and i can honestly say that not one single thing i have tried has helped any of the problems that i have. I have a twin brother, not identical, but he possesses none of the problems that i have. I have had blood tests but nothing has come up unusual. But there must be something very wrong with me somewhere internally, maybe its something that the medical profession as it is now, has no clue about but i know its something internal. I'm sick of going to the Doctors for them just to look in a book and give me another steroid cream to try. Even the skin specialist at the Hospital was useless. Mentally im exhausted, years of dealing with all of this has left me a shadow of what i used to be. I no longer find enjoyment in anything life has to offer because my body wont allow me to enjoy it. Many nights i just lie in bed crying wondering whether i'm being punished for something i have no memory of doing.
    Anonymous 42789 Replies
    • September 8, 2009
    • 09:40 PM
    • 0
    Flag this Response
  • Hi This may or may not be any use but you might want to try it. I suffered from awful eczema as a child and has every cream and tratment the doctors could over for about ten years then accidentally came across a herbalist or went through lots of history of me my family and my symptoms and gave me some minging herbal medicine to take and a special diet to cut out certain foods some of which could be reintrodiced and some ie diary I know now will trigger my skin to start bubbling again. I can tell as soon as I have had some if I have had too much but this has heloed me to control it and the initial consultation and subsequent medicine really cleared up all of my problems. I revisited another herbalist when the problems began to get worse a number of years later and was also given the same advice and medicine along with herbal cream to apply which again works wonders. I know the medical world can disapporve of herbalists but in my case without them I would never have got sorted, it may be worth trying, they are amazingly clever people. Good Luck :-)Yes. I went on the Atkins diet to lose weight, and all my eczema cleared up. This is a wheat, yeast, gluten, citrus, free diet. Also look up the Id reaction.
    Anonymous 42789 Replies
    • November 30, 2009
    • 11:04 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.