Hi all, this is my first time posting on any forum about my skin problems, but im coming towards the end of what i can take. For me, it all started when i was about 16-17 years old. Before then, i had no real problems with my skin, i had a liitle bit of eczema on my legs and a bit of dandruff on my scalp in my early teenage years, which was bad enough at the time, but cleared up soon after leaving school.
When i was 16 or so something strange started happening. Randomly i would start getting hot flushes that would originate in my ears, my ears would get very very hot and make my whole face feel very uncomfortable, the strange thing is that there wouldnt need to be a reason for this to happen. I also had a bit of acne on my face and quite alot on my back which i was very conscious about. No matter what i did i couldnt get rid of it. After visiting the local dermatologist he prescribed me with roaccutane, which i believe i took for about 9 months but it may have been more. Before i go any further though, i would just like to say that in no way am i blaming Roaccutane for any of the problems i have now, im just basically going through the history of things up to this point. So i was on Roaccutane for about a year and it did get rid of pretty much all of my acne, at least on my face anyway. This was when i was 17, and was also the year when i went on holiday to Florida with my family for 2 weeks.This is when things really started to happen.
Before this holiday, i had never used any moisturizing product anywhere on my body and had no idea about skin care. Mid week into the holiday i noticed that i had some dry flaky skin on my nose, which i was quite shocked about because i had never had dry skin on my face before. This got a little bit worse and for the rest of the holiday i had to apply vaseline on to my face daily as this is all we had. After getting back from holiday problems with my skin started to escalate. Since then for almost 7 years now ive been living in my own personal ***l.
Soon after the holiday i started losing my hair, i got sebborhea on my face as well as pityrosporum folliculitis all over my body, i have cold urticaria(hives) which means that my body has an allergic reaction to the cold, this can be anything cold, a soft drink will sometmes make my hand swell up, sometimes ice cream makes my lips swell up,even a luke warm wind will set my face off.The skin on my face has become hyper sensitive to almost anything i put on it. When my body gets warm, it doesnt even have to sweat i get an extreme pricking sensation all over, the only way i can describe it, is that it feels like a needle is pricking every pore in my skin all over my body at the same time. I think this may be prickly heat. If i just graze any part of my skin it will turn into eczema and will take months to heal, i have it on my fingers at the moment , it started on one but has since spread to multiple fingers on each of my hands. No creams or ointments have gotten rid of it. I have to exfoliate the skin on my face almost daily, because i get a build up of dry scaly skin on my face because my oil glands are all out of whack. If i go a day without putting some sort of moistureiser on my face, it becomes instantly dry sore, and very tight. I cant go swimming anymore because water has an extreme drying effect on my skin. When i touch my face or very lightly rub it, even if it is moisturized it will start to flake. Growing very light stubble even makes it flake. I also have mild piles which ive had for about 5 years which wont go away, embarrasing as it may be :(
I have tried almost every treatment i can think of to help myself. Ive tried steroid creams and medications, anti fungul medications. Hundreds of moisturizers, chinese herbs which gave me heart palpitations and made me start hallucinating, ive tried changing my diet, eating very healthy food, drinking lots of water, taking anti histamines,having laser treatment on my face,trying specialist face treatments that have high concentrates of vitamin A. going to a psychological healer, i even got in contact with one of the most famous healers here in the Uk and i can honestly say that not one single thing i have tried has helped any of the problems that i have. I have a twin brother, not identical, but he possesses none of the problems that i have. I have had blood tests but nothing has come up unusual. But there must be something very wrong with me somewhere internally, maybe its something that the medical profession as it is now, has no clue about but i know its something internal. I'm sick of going to the Doctors for them just to look in a book and give me another steroid cream to try. Even the skin specialist at the Hospital was useless.
Mentally im exhausted, years of dealing with all of this has left me a shadow of what i used to be. I no longer find enjoyment in anything life has to offer because my body wont allow me to enjoy it. Many nights i just lie in bed crying wondering whether i'm being punished for something i have no memory of doing.