This is my first post here....
I contracted this about 10 years ago. Its pretty much completely ruined my life. It all started when I was just sitting in bed one day and my head began to twitch very painfully and akwardly. Severe headaches also began and I felt a burning feeling throughout my brain. Sometimes I feel like I barely have control of the muscles in my forehead area.
At the time I was an athlete who had suffered two concussions and a recreational drug user. I figured it was a combination of the two that had caused my condition and never got it looked at by a doctor for a few years. When I finally couldnt take it anymore I went to a neurologist to get a CAT or MRI scan (I forget) and they said that everything "looked ok" and that I was probably under too much stress. Anyways I really wanted them to find a big fat tumor or something that could be removed and put my life back in order. I wouldnt go see another neurologist for another 6 years or so.
The next neurologist said I might have Cervical Dystonia.
She recommended I get a TSH and Ceruloplasmin test to confirm/deny and go from there. Unfortunately I dont have the $400 to pay for the tests :( So now Im stuck wondering if its cervical dystonia or something else which lead me here.
Help please! Anyone else hear of these symptoms!