My husband is a 51 year old male who two years ago was diagnosed with lung cancer. He underwent a lobectomy Dec. 2004. since the doctor's believed they got all the tumor no other treatment was necessary. One year later they did find a small reoccurence and believe it might have been left accidentally from the 1st surgery. To try and get rid of it he underwent chemo and radiation for 9 months. He is now believed to be 100% cancer free. Immediately following radiation though he developed severe abdominal cramping usually accompanied with nausea. This has now gone on for one year. He has undergone 7 bronchial scopes, a colonoscopy and more CT Scans and PET Scans than you can count and no one can find the cause of the pain. Ken ends up in the hospital, either emergency room or as an admit once to twice a month. We have now seen at least 3-4 doctor's in each specialty and the same thing is always told to us - all tests are normal. The only explanation they offer is possible nerve damage from the radiation therapy. The newest doctor is a pain specialist who has been doing radio frequency nerve blocks since June this year. What has been happening since those started is the pain comes back worse than ever when the nerve block starts to wear off. The last block one week ago didn't even really work. The only thing any of the doctor's are now willing to do (with no problem at all I might add) is prescribe huge amounts of narcotic pain killers. Usually taking 60 mgs. of morphine every 3-4 hours and demerol when that does not work. When it gets so severe he can't even stand they put him into the hospital and just start giving him these medication through I.V. therapy. But nothing is working, not even the medication. My husband has severe pain literally 24 hours a day, 7 days a week and this has been going on literally everyday for one straight year. Has anyone had the same kind of experience? We are so desperate for ideas or suggestions. We have no idea where else to turn anymore. My husband basically has no quality of life, which is so heart breaking because he conquered cancer and now suffers more than ever. All replies are greatly appreciated.
This is a second post, the first one I had submitted was sent as a guest/unregisterd and I really would like to hear back from people, so now that I registered I am resubmitting trying to be a little more detailed.