Discussions By Condition: Medical Stories

serious back pain

Posted In: Medical Stories 26 Replies
  • Posted By: jennie
  • March 4, 2008
  • 05:20 PM

Im only 26 and i suffer terrrible back pain, some days it actually makes me throw up as it seems to spread through my back into my stomach, i've had mild back pain since i was 14, then had an injury when i was 16, which made it worse, although when i was pregnant at 23 it got alot worse. i was put on 2x30mg Dihydrocodiene three times a day whilst pregnant, but since having my son its got worse and worse, the last few months i've been in really bad pain, sometimes i can barely stand up without getting dizzy from the pain.
i had an x-ray just after my son was born, which was supposedly normal, and i stayed on the painkillers which im still on now, and am addicted to them, I've been back to my dr's the last 2 days in a row the first dr just fobbed me off with Diclofenac/Volterol, i was so upset when i got home that my partner phoned up pretty angry as the dr had just rushed me out, i got another appointment for today, I saw a different dr who has referred me to a spinal specialist, he also sent me for a blood test but baffled me with jargon as to what it was for:confused:, i had my son with me which did'nt help, but i went and had my blood test, results (of what, i dont know) will be in on thursday (2 days) but i dont know how long this spinal appointment will be, (probably about 3 months here) i think i need crutches now, which my dr says only the spinal specialist can provide, if deemed necisary (it feels like my spine is being compressed whenever i walk)
I have been walking distances recently by taking my son in his pushchair and leaning on that, but he wants out of it now
I also get severe migraines maybe twice a week, which leave me in bed, too ill to get up and function normally, i saw a neurologist,after an 8 month wait, who tapped my knees and looked in my eyes and sent me on my way, telling my dr to ''play around with my meds'' untill he finds something that works:mad:
All this is causing me to be depressed and i feel like a burdon on my partner and son, and dont know who else to talk to about it, can anyone help me??
or even just make me feel a bit better, as im totally lost and miserable, Thanks for reading my rant, Jennie

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26 Replies:

  • Please consider trying acupuncture - look around and perhaps you can find one near you who offers a sliding scale fee. This will make you feel so much better and better manage your pain! Visit www.acufinder.com to find a practitioner near you. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Hi Jen, If you can handle a little bit of pressure and movement, perhaps try something like Bowen Therapy? It is fairly gentle and helps to realign things. I guess it depends on the type of pain you are feeling as to whether it is muscular, but if it's not showing up on an xray I would say it is to do with muscles and inflammation, but I'm not a dr :). I really feel for you as you should be enjoying the time with your little son, so I hope you find a solution soon. Chin up darl! :)
    Aussie_84 9 Replies Flag this Response
  • I have tried accupuncture once before and it actually made my back worse, maybe i got unlucky or got a bad practitoner, she used the needles around an area of skin at the bottom of my back, (although i told her that was not what was bothering me), that feels like a really bad bruise, although there is nothing to see and it only hurts if it gets knocked, i have'nt a clue what it is but she made it worse the area was about the size of a big coin, and now goes right from one side of my back to the other.Some days i just sit and cry cos of it its so bad and i feel like i cant cope anymore. I dont know how my dr can leave me like this, he says the next painkiller up from Dihydrocodeine is morphine and he makes me feel like a drug addict trying to get painkillers.i know if i did'nt have my little boy i would'nt be here now its so bad, i just dont know what to do, i will go and check out the group above and wait for the results of another pointless blood test tomorow, but hey, least the needle took my mind off the pain for 5 seconds..Thanks for reading my thread, i no its boring but were all on here for a reason, any help at all appreciated, or anyone with similar conditions, would love to hear from you
    jennie 16 Replies Flag this Response
  • I do feel as if my back is uhm...sort of in the wrong position, im constantly cracking the bones of my spine to try and put it right the only way to describe it is i feel like someone needs to loosen the vertebre in my back i get my partner to hug me then pull his arms in towards him, it squashes me but makes me feel a bit better when my back cracks, gross, i know but i cant cope with it, i feel like im going mad, what with the migraines too.:mad:
    jennie 16 Replies Flag this Response
  • Please consider trying acupuncture - look around and perhaps you can find one near you who offers a sliding scale fee. This will make you feel so much better and better manage your pain! Visit www.acufinder.com to find a practitioner near you. Best wishesDOMI have had accupunctre once, i had a patch on my back that felt like a bruise although there was nothing to be seen, although it was'nt bothering me unless it was knocked when it really hurts, anyway the lady put the needles around this area and now the bruise type thing has spread across the bottom of my back, it does'nt really bother me but the accupuncture definately did'nt help my back pain at all and its at its worst now (i had the accupuncture about a year ago) maybe i just got someone who was bad at their job????Also im wondering what this bruise thing is- i had an epidural 9 years ago but no other injurys??
    jennie 16 Replies Flag this Response
  • I do feel as if my back is uhm...sort of in the wrong position, im constantly cracking the bones of my spine to try and put it right the only way to describe it is i feel like someone needs to loosen the vertebre in my back i get my partner to hug me then pull his arms in towards him, it squashes me but makes me feel a bit better when my back cracks, gross, i know but i cant cope with it, i feel like im going mad, what with the migraines too.:mad: Are you on any birth control?DOM
    acuann 3080 Replies Flag this Response
  • Are you on any birth control?DOMNo i have'nt been for about 5 years
    jennie 16 Replies Flag this Response
  • Hi Jen, If you can handle a little bit of pressure and movement, perhaps try something like Bowen Therapy? It is fairly gentle and helps to realign things. I guess it depends on the type of pain you are feeling as to whether it is muscular, but if it's not showing up on an xray I would say it is to do with muscles and inflammation, but I'm not a dr :). I really feel for you as you should be enjoying the time with your little son, so I hope you find a solution soon. Chin up darl! :)Im not sure i've ever heard of it, i will google it after this- that is what my back feels like- it needs realigning but not gentley i've tried to make my partner walk on back to sort of stretch the vertebre , although he wont do it.i've had alot of physio that helped a bit for a day or so where the physio basically clicked my back but as it was'nt helping long term and just a day at most they decided it was a waste of time.
    jennie 16 Replies Flag this Response
  • Sounds like my back - i can crack mine about 10 times a day - it's when it doesn't crack that I get worried lol. Bowen is good for it though there are several techniques so find the right one for you.
    Aussie_84 9 Replies Flag this Response
  • I have had accupunctre once, i had a patch on my back that felt like a bruise although there was nothing to be seen, although it was'nt bothering me unless it was knocked when it really hurts, anyway the lady put the needles around this area and now the bruise type thing has spread across the bottom of my back, it does'nt really bother me but the accupuncture definately did'nt help my back pain at all and its at its worst now (i had the accupuncture about a year ago) maybe i just got someone who was bad at their job????Also im wondering what this bruise thing is- i had an epidural 9 years ago but no other injurys?? You need to get that "bruise thing" checked out. One acupuncture treatment is NOT enough to make any kind of judgement! If you didn't like the practitioner you saw, please try another one - ask around for referrals from friends or colleagues. You have a chronic condition. It may take 4-6 treatments before you notice lasting pain relief. I really feel this will help, please consider trying again, and ask about electroacupuncture. Best wishes.DOM
    acuann 3080 Replies Flag this Response
  • Have you ever had an MRI? A lot of things cannot be seen on a simple x-ray. That neurologist should have his butt kicked for dismissing you like that. When you mentioned the epidural I had a thought you might want to check out. Look up Arachnoiditis--more specifically Adhesive Arachnoiditis. It has to do with the nerves in your spine. The epidural may have furthered your original back problems. You can get this from injury alone though. An excellent site to check out is COFWA. Just google this. You may want to read symptoms & see if you match up. You don't need all of them but several are indicative. You may find symptoms you did not even think were related.There is an excellent article on site by Dr Sarah Smith who has this herself. Hope this helps.
    Anonymous 42789 Replies Flag this Response
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  • Well i got my blood tests back today which were all negative, which means nothing as i dont really know what they were for. I have had such a bad 2 days my back has been getting so bad im sick, dizzy and cant even stand up properly, the only thing that makes me feel any better is valium, even my dihydrocodiene have'nt been working at all past 2 days, i get the valium off my dr who has me on 3x5mg tablets a day, but this dose does not help, i have been taking up to 10 at once (50mg) as i just cant cope with it anymore, but im thinking my valium may be a contributing factor to my deppression, i also have BAD mood swings shouting at my partner on a night (i manage to restrain myself through the day when my sons awake) although i do get deppressed and tearfull, then next minute im fine happy as can be???i just dont know what to do and i know this valium thing is really bad...:mad:
    jennie 16 Replies Flag this Response
  • Have you ever had an MRI? A lot of things cannot be seen on a simple x-ray. That neurologist should have his butt kicked for dismissing you like that. When you mentioned the epidural I had a thought you might want to check out. Look up Arachnoiditis--more specifically Adhesive Arachnoiditis. It has to do with the nerves in your spine. The epidural may have furthered your original back problems. You can get this from injury alone though. An excellent site to check out is COFWA. Just google this. You may want to read symptoms & see if you match up. You don't need all of them but several are indicative. You may find symptoms you did not even think were related.There is an excellent article on site by Dr Sarah Smith who has this herself. Hope this helps.I will go and look at that now, my back is so bad, i dont know what to do anymore, i have been reffered to a spinal specialist, but the waiting list here is really long, but he should give me an mri i hope so, i hope someone does something and soon, cos i cant even carry my son sometimes i cant even stand up. Your right about the neurologist though. but surely all these symptoms must be linked i cant be that unlucky:confused:, thanks, jennie
    jennie 16 Replies Flag this Response
  • Have you ever had an MRI? A lot of things cannot be seen on a simple x-ray. That neurologist should have his butt kicked for dismissing you like that. When you mentioned the epidural I had a thought you might want to check out. Look up Arachnoiditis--more specifically Adhesive Arachnoiditis. It has to do with the nerves in your spine. The epidural may have furthered your original back problems. You can get this from injury alone though. An excellent site to check out is COFWA. Just google this. You may want to read symptoms & see if you match up. You don't need all of them but several are indicative. You may find symptoms you did not even think were related.There is an excellent article on site by Dr Sarah Smith who has this herself. Hope this helps.It does sound about right especially this quote AA is not directly fatal. However, there have been cases of suicide due to the despair of unrelieved pain.Sounds right its driving me mad i had to phone my partner home from work yesterday i was so bad i could'nt get upthis epidural was actually when the pain started to get bad although last few months have been terrible and last few weeks unbearable. I also know my dr is lying when he says theres no pain killers in-between 30mg dihydrocodiene and morphine i know there is 60mg, 90mg, and 120 mg, i did'nt mention this to my dr as he makes me feel like im begging him for drugs or something Will the results of my mri tell me anything about this disease or will i need different tests??? Thanks for taking the time to reply people
    jennie 16 Replies Flag this Response
  • The MRI is usually how it is diagnosed. They should be looking for areas that may look "empty" of nerves in spine or areas where nerves seem stuck together. That is what the "adhesive" part of arachniditis is. The nerves stick together causing them to sort of short circuit or they can stick to the sides of spinal canal giving the appearance of no nerves in portions of spine. They should also be looking for scarring. Be prepared that if you bring this up to Dr some will say they either, never heard of it, or that it is very rare. Not so rare as they think. I belong to the COFWA support group & there are women who acquired this merely from 1 epidural gone wrong. In other cases Drs will not call it by namebut refer to it as scar tissue & clumping of nerves. It is the same thing. As you know from reading up on it you will need pain management as it is not curable. If the spine specialist you find wants to do spinal tap or myleogram I would refuse. The MRI should diagnose the problem. Anything invasive in your spine without ruling out arachnoidits would be kinda foolish as these have given this problem to people as well if not done perfectly. Don't be afraid to see another specialist-maybe one familiar with arachnoiditis--if the first does not find the problem. People, including myself, have gone years in pain searching for answers when it was right on the MRI all along. Educate yourself on Arachnoiditis & best wishes with the specialist.
    Anonymous 42789 Replies Flag this Response
  • Had another thought as well if arachnoiditis does not seem to fit or to try before you see spine specialist. You did say you had physio who "clicked" your back. Don't know what that means exactly but have you tried a chiropractor or osteopath. Before I found my problem I did see a couple chiropractors for a year to year & a half here & there. You would need to find one who is gentle in manipulations. As it's been explained to me--it takes time to retrain your muscles to hold you in alignment. They tried a tens unit as well. The strange thing I found is that when a reg Dr did my x-rays & MRI they always said everything was normal. I saw 3 different chiropractors & a rhuematologist who upon doing x-rays all saw the osteoarthritis &/or degeneration & spurs very clearly as well as no curve in neck, vertebrae squished every which way in mid back & 1 hip was always 2" higher than the other. Since a fall from horse on tailbone at 8yrs, auto accident at 18 & being thrown from a snowmobile at 55 mph at 19 and another auto accident at 26 I accumulated alot of pain. Of course people are still telling me it's in my head, or I should just buck up & get on with it--it can't be that bad you still walk, etc., etc. (Not so well at times tho) I was dx w/fibromyalgia by rhuemy. Actually I did not know until I got copies of records. I was Rx Diclofenac but was taken off due to liver levels after being on Hydrocodone/tylenol for 4 yrs now. I asked my Primary Dr to switch to Hydro w/ibu which she did but I guess cuz I have no insurance anymore I am not worth checking out liver levels which my rhuemy asked her to do.I am also on Cymbalta which is antidepressant which is supposed to help with nerve pain. I requested a switch to this from Lexapro to see it it would help. They all felt I was just depressed. Well DUH--after trying for answers going on 5 yrs. So I do know how you feel about the drugs. Even with meds my pain is never quite gone. A CARING Dr should not leave you in pain. Especially if it's Arachnoiditis, stress from constant unrelieved pain can do funny things to you. My Dr doesn't care either. When I had insurance I discussed Arachnoiditis as a possibility with my Dr because of all the symptoms I had & did not even know were related until I did research. They were all things I had randomly told her about in the 10 yrs prior at annual exams. I am not one to go to the Dr unless it's really bad. She just poo-pooed me like some drug seeking hypochondriac. Chiropractor only briefly helped. You may have more luck than I did. Best wishes. Let us know what happens.
    Anonymous 42789 Replies Flag this Response
  • Hi, well i thought i'd update you as i've been to the dr's AGAIN this morning i cried my eyes out to him and he gave me naproxen 250mg tablets, but did'nt explain what they were just that there stronger than the Dihydrocodeine and Diclofenac (volterol) that i've been taking. So when i went to the chemist i asked him but as soon as i started talking i had tears in my eyes-he asked if i was o.k and i completely broke down, sobbed my heart out, he sat me in a side room got me a buscuit and drink so i could take my new painkillers, i took them about an hour ago , i feel a bit better but i also took 2x30mg Dihydrocodiene and 8x5mg valium, so i dont know whats worked, i was so bad the chemist said go back to the dr's-i told him he wont entertain me, so the CHEMIST told me to go to A&E, which im considering when my partner gets home, also my little boy stayed at his nanna's last night and is due back really soon, but i feel like i need a few hours to pull myself together.I dont have any support apart from my partners mum, as i dont have any family and she takes my boy on a tuesday night till wed morning, but if im ill or my backs really bad i have no-one as my partner works long hours, and i dare'nt ask for help incase people think im not coping, can anyone help me with there experiences with this situation??????, im going to buy some Dihydrocodiene off the net as my dr lies and says they only come in 30mg's (they dont they come in 60mg's, 90mg's and 120mg's, on a plus he's refered me to a muscular skeletal specialist, which was supposed to be done a week ago, im really sick now and cant take much more of this pain. RANT OVER and the pains still there
    jennie 16 Replies Flag this Response
  • Sorry deebz i missed your last reply as it gets kinda confusing on here Thanks for taking the time to reply you've been really helpfull, i know my dr would dismiss anything i suggest so unless i go in armed to the teath with info i think he'll just keep fobbing me off. he thinks i want drugs from him-i dont i need them i dont want to take them, but if i did'nt i , i dont know anyway i have my boy to live for, yeah im depressed too but only cos of all this. If i somehow manage to have a relatively pain free couple of hours as thats the most i ever got, im fine not depressed and crying all the time. well my boys back now and im feeling a bit better enough to do my cleaning with a strugle, with my boy being so young he realises i have a bad back and puts things on the floor on purpose instead of passing them back to me, cos he knows i cant get them, little monster! Thanks for your replys people please keep them coming as it makes me feel a bit better knowing i can talk to people with similar probs, although you sound like you've been in the wars a bit more than me, Also when i went to my dr today he asked if anyone had HIT ME?????:confused: must of meant my partner the cheeky git
    jennie 16 Replies Flag this Response
  • i dont know if i will get in trouble of the moderators:o for this but this forum gets a bit confusing at times so my e-mail is jennie-81@hotmail.co.ukplease e-mail me if you have ANY suggestions, Thanks
    jennie 16 Replies Flag this Response
  • I will reply to you at email as well. You NEED a new Dr.(so do I) The thing I suggest is to print some material from internet. Possible the COFWA site. It may be lengthy but highlight all of your symptoms & be prepared to explain when, how & to what degree you experience them. Gently ask Dr if you may explain your symptoms & ask if he is open to considering/looking into the possibility. Many Drs get really irritated at those of us who do internet research. We need to tread lightly. My Dr originally tossed the paper back at me & then later asked for it back to look at. She stated "well--all those syndromes, you know--there is no test to confirm" Well in a way she was correct (no specific arachnoiditis test)but she is unknowledgeable on the subject & obviously had no interest in researching it. The MRI DOES diagnose the problem. Problem is she had an MRI done without contrast & did not ask for this to be specifically looked for. Some people have had a diagnosis without contrast on MRI but best way to see it is with contrast & they NEED to be looking for it. As I explained in my last post my previous x-rays & MRI were always given "normal" results from MDs but why is it that even x-rays from 3 different chiropractors & my rhuemy ALL see the spurs, misalignment & degeneration. These tests are only as good as the people reading them. Drs need to be told in a rational way how this affects your life. Unfortunately when we are in so much ***n pain it's hard to do. You need to explain what the bad times are like & how often. No one really understands the pain until they have been there. If they see you when you have a pain free moment they assume you are "all better". My personal advice----don't overdue the valiums. That is not helping you with the pain. You need to know what is & what is not helping with that issue. I know here in USA many Drs are afraid to prescribe more powerful painkillers for fear of being looked at by Drug Enforcement. Some of the drugs fellow arachniacs use are fentynal patches, methadone,morphine, vicodan, tramadol and such. They may need to figure out a combo.Your Dr may be hesitant to give you more powerful drugs because he may or may not know you abuse the valium. Please don't take this wrong. I understand what you go thru but you must not give the impression of a drug abuser. I'm here for ya.
    Anonymous 42789 Replies Flag this Response
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